HA Blog
2020 Innovator Award Series: Get to Know Dr. Stavros Taraviras
Learn about Dr. Stavros Taraviras, one of four scientists who received a Hydrocephalus Association 2020 Innovator Award. Dr. Taraviras is working to turn scar tissue back into ependymal cells as a novel therapeutic strategy for hydrocephalus.
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Balancing Work, School, and Hydrocephalus
In this blog, Carly shares the important takeaways about what it means to balance parts of your life along with hydrocephalus.
Read MoreBack To School Checklist
It’s that time of the year – back to school time! Here is a checklist that includes a couple of simple tips for starting the school year on the right foot.
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The Benefits of Informing Your Child’s School about Their Hydrocephalus
Informing your child’s school about hydrocephalus is important. Read these tips to ensure that you’re prepared when talking to the school about your child’s condition.
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Get on the Right Career Track
When choosing a career, college major, or educational program, it’s important to take the time to explore your options.
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Making Your Work Environment Work For You
Individuals with hydrocephalus can succeed at work despite their condition. Learn how to make your work environment work for you.
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The Hydrocephalus Scoop on Capitol Hill December 2020
October and November have been a super busy time for all three branches of government (Executive, Legislative and Judicial). Here’s our latest summary of what’s been happening on Capitol Hill.
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The Use of Lumboperitoneal Shunts in iNPH Patients
In the United States, the standard treatment for idiopathic Normal Pressure Hydrocephalus (iNPH) patients is a ventriculoperitoneal shunt (VPS). But a new study explores the effectiveness of lumboperitoneal shunts (LPS), which have also been shown to improve iNPH symptoms and are widely used in Japan.
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Diana Gray Named Chair of National Health Council Board
Diana Gray, HA President and CEO, was named Chairperson of the National Health Council (NHC) Board of Directors for 2021. She was elected to the role at the NHC’s annual membership meeting this week.
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Rhaeos CEO Shares Details About Wearable FlowSense Device
Earlier this year, Rhaeos won MedTech Innovator’s 2020 Global Competition. In a recent conversation with Rhaeos CEO Anna Lisa Somera, Somera discussed the significance of the award and how FlowSense can improve the way hydrocephalus is managed.
Read MoreChanging Treatments: Converting from a Shunt to an ETV for the Treatment of Hydrocephalus
A recent study published in Neurosurgery looked at the success rate of converting from a shunt to an endoscopic third ventriculostomy (ETV) in pediatric and young adult patients. The study, with lead author Dr. David S. Hersh, retrospectively reviewed patient data from three children’s hospitals in the United States.
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Two Sisters, Two Brain Disorders, 36 Brain Surgeries
St. Louis family fights for a cure for leading cause of brain surgery in children…
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Announcing our 2020 Hydrocephalus Association Scholarship Recipients!
We’re pleased to announce the 2020 Hydrocephalus Association Scholarship Award Recipients. HA’s scholarship program was established in 1994 to provide financial assistance to capable and promising teens, young adults, and adults who live with the ongoing challenges and complexities of hydrocephalus.
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The Hydrocephalus Scoop on Capitol Hill for September-October 2020
In addition to celebrating Hydrocephalus Awareness month, the Hydrocephalus Association has been tracking the ins and outs of what’s happening on Capitol Hill. Read our latest advocacy update!
Read MoreLocal Mom Living with Brain Disorder Fights for a Cure
Hopes to raise funds for a cure at the New Orleans WALK to End Hydrocephalus…
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Congressman Josh Gottheimer Joins Congressional Pediatric and Adult Hydrocephalus Caucus
Hydrocephalus is the leading cause of brain surgery in children. Rep. Josh Gottheimer (NJ-5) has joined the bipartisan…
Read MoreCongress Recognizes September as Hydrocephalus Awareness Month
Aims to raise awareness of the impact of hydrocephalus and COVID-19 especially in older adults.…
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A Poem for HydroWarriors
Amanda Harrinauth is a poet, author, life coach and Special Olympics athlete living with hydrocephalus, vision impairment and autism. For Hydrocephalus Awareness Month, she wrote a poem to inspire others.
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