As Your Child Grows


The journey of raising a child with hydrocephalus may be challenging and we’re committed to providing information to help you make the best decisions, advocate for your child, and connect with other parents.

What You Need to Know

Primary Care Needs of Children with Hydrocephalus

Children with hydrocephalus may have life-long special health care needs that can impact their primary care. It is important that caregivers understand hydrocephalus in order to provide optimal primary health care to these children and their families.

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Social Skills Development in Children with Hydrocephalus

As the first generation of children treated for hydrocephalus mature into adulthood, it has become apparent that some of them will have difficulty developing their social skills. This article talks about those difficulties and suggests tools for overcoming them.

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Learning Disabilities in Children with Hydrocephalus

Learning difficulties are not uncommon in children with hydrocephalus. It is important that parents be aware that their child may be at risk for learning disabilities and be prepared to take early action to assure their child the best social and academic start.

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Sending your Child to Daycare

Sending off a child to daycare is scary on its own. Doing so with a child with hydrocephalus can be even more difficult to handle. We have developed a checklist to help you prepare.

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Hydrocephalus and it’s Impact on Cognitive Development and Education

This presentation will explore how hydrocephalus impacts the brain and its ability to process and hold information. Dr. Zabel will identify the learning challenges most commonly confronted by children with hydrocephalus at various ages and stages of their education. This session will also highlight school-based intervention/accommodation techniques that can often be effective in addressing these problems.

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SS - S&E Webinar EVENT

For your Child or as an Adult with Hydrocephalus: Is your Legal House In Order?

This webinar will discuss the broad range of estate-related legal documents, including wills, revocable living trusts, supplemental needs trusts, beneficiary designations, powers of attorney for property and health care, and living wills. It will consider their use both for adult individuals with hydrocephalus and for parents and other family members of individuals with hydrocephalus, with a particular focus on desired documents when an individual reaches the age of majority and becomes an adult.

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