HA Blog
Hydrocephalus Community Advocates for Change on Capitol Hill
The Hydrocephalus Association brought over 50 key leaders from the hydrocephalus community to advocate for change by meeting with their congressional representatives on Capitol Hill.
Read MoreThe January Hydrocephalus Scoop on the Hill
The 119th Congress is in full swing. Republican leadership is zoned in on crafting a large legislative package that includes key priorities around tax, immigration, and budgetary issues. The package will likely go through a process called reconciliation, which allows certain budget-related bills to bypass the 60-vote filibuster in the Senate.
Read MoreAdvocates to Rally on Capitol Hill for Hydrocephalus Awareness and Research Funding
50 key leaders in the hydrocephalus community from 18 states will convene in Washington, D.C., for Hydrocephalus Capitol Hill Day.
Read MoreExploring Emerging Technology in Smart Shunts
To address the challenges of traditional shunt systems, scientists are developing innovative devices known as “smart shunts”. These emerging technologies aim to make hydrocephalus management easier.
Read MoreMy Transformative Fitness Journey with Hydrocephalus: Overcoming Challenges and Gaining Confidence
My journey to fitness with hydrocephalus taught me resilience, self-care, and confidence as I overcame challenges and embraced progress.
Read MoreHydrocephalus Association Expresses Concern Over Executive Orders That Could Affect Hydrocephalus Research
The Trump Administration recently issued Executive Orders that could have long-term consequences for hydrocephalus research, potentially impacting the health of hydrocephalus patients, particularly children.
Read MoreBringing in the Next Generation of Engineers in Hydrocephalus
The Hydrocephalus Association’s research department has expanded its outreach efforts to include engineers, aiming to broaden their network beyond physicians and scientists.
Read MoreHydrocephalus Association Publishes Key Neuropsychology and Cognitive Research Priorities
The Hydrocephalus Association (HA) is excited to announce the publication of our Research Priorities in Neuropsychology and Cognition in the Journal of Fluids and Barriers of the CNS.
Read MoreHydrocephalus Association Publishes Key Neuropsychology and Cognitive Research Priorities
The Hydrocephalus Association (HA) is excited to announce the publication of our Research Priorities in Neuropsychology and Cognition in the Journal of Fluids and Barriers of the CNS.
Read MoreLooking Back at Key Accomplishments in 2024
2024 was a year full of legislative accomplishments for the Hydrocephalus Association and the broader hydrocephalus community. Our successes could not have been achieved without the hard work of advocates from across the country. Partners in Congress were some of the strongest contributors for our mission as well.
Read MoreU.S. House Foreign Affairs Committee Holds Hearing on the Challenges Affecting Global Hydrocephalus Patients
The House Foreign Affairs Subcommittee’s November 20th hearing discussed global brain health challenges, focusing on hydrocephalus in developing countries. Experts, including Dr. Benjamin Warf of NeuroKids, highlighted the need for better care and training to support patients, particularly in low-resource regions. The hearing also addressed the lack of USAID programs for brain health and the importance of international aid for hydrocephalus treatment.
Read MoreUniversity of Washington Researcher Dr. Jennifer Kong Receives Prestigious Innovator Award for Hydrocephalus Research
The Hydrocephalus Association (HA) is proud to announce that Jennifer Kong, PhD, an assistant professor of biochemistry at the University of Washington, has been named a recipient of the esteemed 2024 Hydrocephalus Association Innovator Award.
Read MoreUniversity of Colorado Researcher Dr. Mohammed Alshareef Receives Prestigious Innovator Award for Hydrocephalus Research
Bethesda, MD – The Hydrocephalus Association (HA) proudly announces that Mohammed Alshareef, BSE, MD, an…
Read MoreThe Exclusive Hydrocephalus Scoop on the Hill | Key Updates for November 2024
Washington, D.C. is buzzing as Congress pushes key legislation and the Hydrocephalus Association partners with advocates to drive priorities forward. With government funding set to expire on December 20th, a short-term resolution is likely. The new presidential administration and Congress will bring major changes, especially in the first 100 days. Stay tuned!
Read MoreAnnouncing the 2024 Hydrocephalus Association Innovator Award Recipients
The Innovator Awards fund groundbreaking projects advancing hydrocephalus research, driving innovation, and improving outcomes for those impacted worldwide.
Read MoreBreaking Myths About Hydrocephalus: What’s Fact and What’s Fiction?
Hydrocephalus is often misunderstood, with myths overshadowing the realities of this invisible condition. This blog breaks down common misconceptions, highlights the facts, and sheds light on the challenges faced by those living with hydrocephalus, proving that what you see on the outside doesn’t always reflect the struggles within.
Read MoreAnnouncing our 2024 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2024 Hydrocephalus Association Scholarship Recipients.
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