HA Blog

Hydrocephalus Community Advocates for Change on Capitol Hill

February 10, 2025

The Hydrocephalus Association brought over 50 key leaders from the hydrocephalus community to advocate for change by meeting with their congressional representatives on Capitol Hill.

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January, Advocacy, Hydrocephalus

The January Hydrocephalus Scoop on the Hill

February 5, 2025

The 119th Congress is in full swing. Republican leadership is zoned in on crafting a large legislative package that includes key priorities around tax, immigration, and budgetary issues. The package will likely go through a process called reconciliation, which allows certain budget-related bills to bypass the 60-vote filibuster in the Senate.

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Advocates, Capitol Hill

Advocates to Rally on Capitol Hill for Hydrocephalus Awareness and Research Funding

January 31, 2025

50 key leaders in the hydrocephalus community from 18 states will convene in Washington, D.C., for Hydrocephalus Capitol Hill Day.

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Smart Shunt, emerging technology

Exploring Emerging Technology in Smart Shunts

January 30, 2025

To address the challenges of traditional shunt systems, scientists are developing innovative devices known as “smart shunts”. These emerging technologies aim to make hydrocephalus management easier.

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Fitness Journey,

My Transformative Fitness Journey with Hydrocephalus: Overcoming Challenges and Gaining Confidence

January 29, 2025

My journey to fitness with hydrocephalus taught me resilience, self-care, and confidence as I overcame challenges and embraced progress.

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Executive Orders, trump

Hydrocephalus Association Expresses Concern Over Executive Orders That Could Affect Hydrocephalus Research

January 28, 2025

The Trump Administration recently issued Executive Orders that could have long-term consequences for hydrocephalus research, potentially impacting the health of hydrocephalus patients, particularly children.

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Engineers

Bringing in the Next Generation of Engineers in Hydrocephalus

January 21, 2025

The Hydrocephalus Association’s research department has expanded its outreach efforts to include engineers, aiming to broaden their network beyond physicians and scientists.

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Hydrocephalus Association Publishes Key Neuropsychology and Cognitive Research Priorities

January 17, 2025

The Hydrocephalus Association (HA) is excited to announce the publication of our Research Priorities in Neuropsychology and Cognition in the Journal of Fluids and Barriers of the CNS.

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Research Priorities, neuropsychology

Hydrocephalus Association Publishes Key Neuropsychology and Cognitive Research Priorities

January 17, 2025

The Hydrocephalus Association (HA) is excited to announce the publication of our Research Priorities in Neuropsychology and Cognition in the Journal of Fluids and Barriers of the CNS.

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Hydrocephalus Community, 2024

Looking Back at Key Accomplishments in 2024

December 23, 2024

2024 was a year full of legislative accomplishments for the Hydrocephalus Association and the broader hydrocephalus community. Our successes could not have been achieved without the hard work of advocates from across the country. Partners in Congress were some of the strongest contributors for our mission as well.

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Hydrocephalus Challenges

U.S. House Foreign Affairs Committee Holds Hearing on the Challenges Affecting Global Hydrocephalus Patients

December 19, 2024

The House Foreign Affairs Subcommittee’s November 20th hearing discussed global brain health challenges, focusing on hydrocephalus in developing countries. Experts, including Dr. Benjamin Warf of NeuroKids, highlighted the need for better care and training to support patients, particularly in low-resource regions. The hearing also addressed the lack of USAID programs for brain health and the importance of international aid for hydrocephalus treatment.

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Press Release, Press Releases

University of Washington Researcher Dr. Jennifer Kong Receives Prestigious Innovator Award for Hydrocephalus Research

December 18, 2024

The Hydrocephalus Association (HA) is proud to announce that Jennifer Kong, PhD, an assistant professor of biochemistry at the University of Washington, has been named a recipient of the esteemed 2024 Hydrocephalus Association Innovator Award.

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Press Release, Press Releases

University of Colorado Researcher Dr. Mohammed Alshareef Receives Prestigious Innovator Award for Hydrocephalus Research

December 10, 2024

Bethesda, MD – The Hydrocephalus Association (HA) proudly announces that Mohammed Alshareef, BSE, MD, an…

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The Exclusive Hydrocephalus Scoop on the Hill | Key Updates for November 2024

December 3, 2024

Washington, D.C. is buzzing as Congress pushes key legislation and the Hydrocephalus Association partners with advocates to drive priorities forward. With government funding set to expire on December 20th, a short-term resolution is likely. The new presidential administration and Congress will bring major changes, especially in the first 100 days. Stay tuned!

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The Power of a Second Opinion: Advocating for Your Health

December 2, 2024

Even though second opinions are a common and accepted practice in medicine, many people feel uncomfortable asking for them.

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Announcing the 2024 HA Innovator Award Recipients

Announcing the 2024 Hydrocephalus Association Innovator Award Recipients

November 26, 2024

The Innovator Awards fund groundbreaking projects advancing hydrocephalus research, driving innovation, and improving outcomes for those impacted worldwide.

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Myths about hydrocephalus, myths, facts

Breaking Myths About Hydrocephalus: What’s Fact and What’s Fiction?

November 25, 2024

Hydrocephalus is often misunderstood, with myths overshadowing the realities of this invisible condition. This blog breaks down common misconceptions, highlights the facts, and sheds light on the challenges faced by those living with hydrocephalus, proving that what you see on the outside doesn’t always reflect the struggles within.

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Understanding Cerebral/Cortical Visual Impairment (CVI) and Hydrocephalus: How Vision Can Be Affected

November 19, 2024

Cerebral Visual Impairment (CVI) affects how the brain processes visual information. This article highlights the link between CVI and hydrocephalus, its impact on vision, and ways to support those affected.

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Strategies for Coping with Memory Issues and Forgetfulness, stress reduction

Strategies for Coping with Memory Issues and Forgetfulness

November 19, 2024

Memory challenges can impact daily life in many ways, whether they’re related to managing medical conditions like hydrocephalus or are part of the natural aging process. Here are some practical strategies, tools, and resources to help manage forgetfulness and enhance your memory.

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Announcing our 2024 Hydrocephalus Association Scholarship Recipients!

November 18, 2024

The Hydrocephalus Association (HA) is pleased and honored to announce our 2024 Hydrocephalus Association Scholarship Recipients.

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