Why one family hopes for a ‘smarter’ device

October 26, 2022
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Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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Hydrocephalus Spotlight on Two Medical Drama TV Series

October 20, 2022
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Hydrocephalus was highlighted with patients on two medical drama TV shows. The Good Doctor and The Resident.

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Oppenheimer Employees WALK To End Hydrocephalus

October 6, 2022
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Oppenheimer’s Seattle and Bellevue offices recently participated in the Seattle WALK to end Hydrocephalus. Oppenheimer Financial Professional, Lou Conyard, and his wife Betsy, have been involved in organizing Team Oppenheimer and participating in this effort for years.

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September is Hydrocephalus Awareness Month. How much do you know about this life-threatening condition?

September 26, 2022
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Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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What I Know Now: Tips to Prepare for Shunt Surgery

September 23, 2022
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If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!

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She Once Thought Becoming a Doctor Wasn’t Possible

September 14, 2022
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Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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Detroit Walk to End Hydrocephalus to be held at River Bends Park

September 13, 2022
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Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

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Hydrocephalus fundraiser aims to support better treatments and a cure

September 12, 2022
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Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

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Welcome New Board Member Michael Siegel, Ph.D.

August 22, 2022
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The Hydrocephalus Association (HA) would like to warmly welcome new board member Michael (Mike) Siegel, Ph.D. He is the Executive Director of the Pediatric Dermatology Research Alliance (PeDRA) and serves on our Scientific Advisory Board & Research Committee.

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Welcome New Board Member Stephanie Vogt

August 15, 2022
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The Hydrocephalus Association (HA) would like to warmly welcome new board member Stephanie (Buffa) Vogt, M.S. She is a Vice President of Supply Chain Strategy with Express Scripts at Cigna and has served as the chair of the St. Louis WALK to end Hydrocephalus since 2008.

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HA Welcomes New Board Member Deitra Matthews, Columbia, SC

August 15, 2022
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The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA. She is CEO of The Ram Foundation and serves on HA’s Support and Education Committee.

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Welcome New Board Member Deitra Matthews

August 11, 2022
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The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA.…

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‘He’s never alone’: See the tattoo dad got to honor his son’s brain surgery

July 27, 2022
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Carlos Marquez has a tattoo for each of his children, but this one feels extra special as son Luke has already been through five brain surgeries.

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Life-changing Impact at Hydrocephalus Conference

July 25, 2022
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How do you put a life-changing experience into words? The 17th National Conference on Hydrocephalus, is now in the rearview mirror for everyone in attendance from across the country and internationally, but the memories and the connections will leave a lasting impact.

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Medical disorder common to infants found in astronauts; doctors seek solution

July 22, 2022
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Medical disorder common to infants found in astronauts; doctors seek solution

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How science, space travel may help families living with neurological conditions

July 22, 2022
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How science, space travel may help families living with neurological conditions

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Remembering Dr. Taeun Chang

June 24, 2022
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It is with great sadness that the Hydrocephalus Association announces the passing of our colleague…

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Brainy Camps and Camp Headstrong are Back This Year!

March 16, 2022
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The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.

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Statement by Hydrocephalus Association President and CEO Diana Gray on Washington Post Article About Chloe Kral

February 15, 2022
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The Washington Post recently published a story about Chloe Kral, who suffered for years and was told she had severe mental illness before discovering later that she had hydrocephalus. Here’s a statement from HA’s President & CEO Diana Gray about Chloe’s remarkable story.

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The Hydrocephalus Scoop on Capitol Hill: Jan/Feb 2022 Update

February 7, 2022
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It’s been a busy time in Congress. Find out what we’ve been up to on Capitol Hill!

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