Remembering Dr. Taeun Chang
It is with great sadness that the Hydrocephalus Association announces the passing of our colleague and friend, Dr. Taeun Chang, after a two-year battle with cancer. Dr. Chang was a valuable member of our Medical Advisory Board and truly loved by so many, including all of her colleagues and patients. Our heartfelt sympathy and thoughts…
Brainy Camps and Camp Headstrong are Back This Year!
The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.
Statement by Hydrocephalus Association President and CEO Diana Gray on Washington Post Article About Chloe Kral
The Washington Post recently published a story about Chloe Kral, who suffered for years and was told she had severe mental illness before discovering later that she had hydrocephalus. Here’s a statement from HA’s President & CEO Diana Gray about Chloe’s remarkable story.
The Hydrocephalus Scoop on Capitol Hill: Jan/Feb 2022 Update
It’s been a busy time in Congress. Find out what we’ve been up to on Capitol Hill!
Five Scientists Awarded HA Grants for Their Bold and Innovative Work
Announcing our 2021 Innovator Award recipients! These brilliant scientists are exploring new ideas about why hydrocephalus develops and testing new treatments to improve long term outcomes.
HA’s Medical Advisory Board Issues New Statements Regarding COVID-19
The Hydrocephalus Association (HA)’s Medical Advisory Board (MAB) recently issued two new consensus statements regarding COVID-19 for people living with hydrocephalus.
Grey Matter Brain Damage
This blog explains the difference between white and grey matter injuries and their effects on the brain.
Celebrating the Life of Dr. Shirley McBay
The Hydrocephalus Association celebrates the life of Dr. Shirley McBay, who passed away in late November. Dr. McBay was the first Black person to receive a doctorate from the University of Georgia and was a pioneer in advocating for diversity in science and math education. She was diagnosed with diabetes and Normal Pressure Hydrocephalus.
The Benefits of Boxing
As a health and fitness professional, Sophia tells us that boxing is not about fighting, she believes that with the proper guidance and precautions, boxing can be an empowering and beneficial form of exercise for people living with chronic conditions like hydrocephalus.
AHCRN Awarded $14 Million NINDS Grant to Study Effectiveness of Shunt Treatment for idiopathic Normal Pressure Hydrocephalus
The AHCRN, one of three research networks HA funds, was awarded a $14 million federal grant to study the effectiveness of shunt treatment for NPH.
TECHNOLOGY UPDATE: Rhaeos, Inc. Awarded NIH Grant to Advance Development of FlowSense Wireless Sensor
Rhaeos, Inc. was awarded an NIH grant to advance their development of wearable sensors to detect failed shunts in patients with hydrocephalus.
2021 WALK to End Hydrocephalus Raises over $1.6 Million
Our WALK to End Hydrocephalus program had a successful year, raising over $1.6 million for HA’s research, support, education and advocacy efforts.
Isabella Advocates for Children in Congress
Like many kids living with hydrocephalus, Isabella is a fighter. This year, she brought her fighting spirit to Congress advocating for better healthcare services for children!
Announcing our 2021 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2021 Hydrocephalus Association Scholarship Recipients.
Fighting for Hydrocephalus Funding in Congress. October Update
October has been a busy time for Congress, and the Hydrocephalus Association has been hard at work ensuring that we have a seat at the table. We have an exciting new bill introduced and an update on congressional funding for hydrocephalus research.
Research 101: Generalizability
The concept of Generalizability in research studies is especially important for individuals living with hydrocephalus because there are so many different causes.
Congressman Mike Levin Joins Congressional Hydrocephalus Caucus
Caucus helps families impacted by a brain condition that has no cure. Rep. Mike Levin (CA-49) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Levin’s support of children and adults living with hydrocephalus, a chronic neurological condition that affects over 1 million Americans. “I’m proud to join the caucus, which will help find solutions…
Congresswoman Cindy Axne Joins Congressional Hydrocephalus Caucus
Caucus helps find solutions for the leading cause of brain surgery in children. Rep. Cindy Axne (IA-3) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Axne’s support of families impacted by hydrocephalus. Her action reflects a welcome commitment to working with members of Congress to find practical, bipartisan solutions for the over one million…
The Importance of a Support System
Living with hydrocephalus can feel overwhelming at times. That’s why building a strong support system is so important. Our team of trained professionals is here to help! Our staff will listen to your concerns and connect you with helpful resources.
The Hydrocephalus Scoop on Capitol Hill – Sept/Oct 2021
The Hydrocephalus Association has been busy protecting hydrocephalus-related research dollars in Congress, and working with members Congress to recognize National Hydrocephalus Awareness Month.