HA Blog

The Hydrocephalus Scoop on Capitol Hill — June 2025

June 24, 2025

June updates on Medicaid cuts, CDMRP research funding, and telehealth bills impacting the hydrocephalus community. Make your voice heard on the Hill!

Read More
Press Release

Hydrocephalus Association Applauds Introduction of the Medical Research for Our Troops Act

June 17, 2025

Reps. Carson and Levin introduced the Medical Research for Our Troops Act to restore funding for vital DoD medical research. The Hydrocephalus Association supports the bill to protect research impacting veterans and those with hydrocephalus.

Read More
Neuroanatomy

Learning the Brain: Neuroanatomy Basics for Understanding Hydrocephalus

June 10, 2025

Neuroanatomy Basics for Understanding Hydrocephalus: A simple guide to neuroanatomy and hydrocephalus.

Read More
president, NIH cuts, hydrocephalus, research

Explainer of the President’s FY 2026 HHS Budget Proposal

June 5, 2025

President’s FY 2026 budget proposes major NIH cuts, agency mergers, and restructures that could reduce neuroscience and hydrocephalus research funding.

Read More

The Hydrocephalus Scoop on Capitol Hill — May 2025

June 2, 2025

House passes bill with major Medicaid changes—millions could lose coverage. Learn how this impacts the hydrocephalus community and what’s next in the Senate.

Read More
Billy Joel, NPH

Brain condition forces Billy Joel to cancel concerts: The legendary rocker is suffering from NPH, a condition that is affecting his hearing, vision and balance.

May 28, 2025

The legendary rocker is suffering from a condition that is affecting his hearing, vision and balance. CBS News New York’s Dick Brennan has more on the illness and the prognosis.

Read More
Billy Joel

Billy Joel’s Diagnosis of Normal Pressure Hydrocephalus

May 23, 2025

The Hydrocephalus Association extends its heartfelt support to Billy Joel and his family following his recent announcement of a diagnosis of Normal Pressure Hydrocephalus (NPH). We commend Mr. Joel for his courage in sharing his health journey, which brings much-needed awareness to this often misunderstood and underdiagnosed condition.

Read More
medicaid

Medicaid Impact of U.S. House Reconciliation Package on People with Hydrocephalus

May 19, 2025

Learn how proposed federal Medicaid changes could affect people with hydrocephalus, including burdensome administrative requirements, cuts to vital health services, home care, and coverage for medical equipment.

Read More
Neuroscience Nurses

Celebrating Neuroscience Nurses: Unsung Heroes of Neuro Care

May 9, 2025

Neuroscience nurses are the heart of neuro care. During Neuroscience Nurses Week, we honor their vital role in caring for brain and spinal condition patients.

Read More
Understanding Neuropsychology

Neuropsychology 101: Understanding Cognitive Function in Hydrocephalus

April 30, 2025

Learn how neuropsychology helps identify and manage cognitive symptoms in hydrocephalus—and how research is advancing care and quality of life.

Read More
Capitol Hill, April

The Hydrocephalus Scoop on Capitol Hill — April 2025

April 28, 2025

Congress has returned to Capitol Hill following Easter recess and is beginning the reconciliation process for a major legislative package. Big decisions are being made — and we have everything you need to know.

Read More
HHS, CDC, NIH

Assessing Recent HHS Reductions in Force (RIF) Layoffs and Their Impact on the Hydrocephalus Community

April 15, 2025

Mass layoffs at HHS are disrupting key health agencies like the FDA, CDC, NIH, and ACL—jeopardizing research, care, and innovation for the hydrocephalus community. These cuts threaten access to treatment, delay medical device approvals, and weaken support systems for patients nationwide.

Read More
Dereck, hydrocephalus journey

Dereck’s Hydrocephalus Journey: Finding the Silver Lining

April 11, 2025

Discover how Dereck finds silver linings and strength in everyday moments while living with hydrocephalus and overcoming over 500 brain surgeries.

Read More
Bradley E. Weprin, Healthcare

When We Cut Research, We Cut Hope: The Human Cost of Medical Funding Cuts

April 4, 2025

When we cut research, we do not just slow progress. We delay relief. We postpone innovation. And, for many patients and families, we delay hope.

Read More
Brain Surgery, Therapies

A Future Without Brain Surgery? The Push for Non-Invasive Therapies for Hydrocephalus

April 1, 2025

What if treating hydrocephalus didn’t require brain surgery? The Hydrocephalus Association (HA) is working to turn this vision into reality!

Read More
The Scoop from Capitol Hill

The Scoop from Capitol Hill – March 2025

April 1, 2025

Get the latest federal updates on hydrocephalus research, advocacy, and policy changes. Learn how you can take action to protect critical funding and healthcare access!

Read More
Traveling with Hydrocephalus and Spina Bifida

Traveling with Hydrocephalus and Spina Bifida: Must-Know Tips

March 21, 2025

Traveling with hydrocephalus and spina bifida takes planning! Here are my tips for navigating air and train travel, accessibility, and accommodations.

Read More

The Latest Research on Shunt Occlusion

March 13, 2025

Understanding the cause of occluded catheters is key to improving shunt systems and brings hope that future designs will offer more reliable treatments, improving the quality of life for individuals with hydrocephalus and reducing the need for frequent surgeries.

Read More
Advocacy, The scoop

The Scoop from Capitol Hill – February 2025

March 3, 2025

House and Senate Republicans have been focused on passing the Administration’s priorities. The Senate approved a billion-dollar budget framework focusing on defense and border enforcement funding. On the other side of the Capitol, the House recently passed its own budget framework. This package is wider in scope and costs.

Read More
Funding, HA CONNECT

Funding Tips for HA CONNECT: Grants, Aid and Savings

February 26, 2025

Discover funding options to attend HA CONNECT! Explore financial aid, grants, and creative strategies to make conference participation more affordable.

Read More