Learn More About Ongoing Studies
Enrolling in clinical research trials is one way our community can become active participants in the quest to improve outcomes and find a cure for hydrocephalus. On this page, you can learn about ongoing trials.
Clinical Trials
Genetic Causes of Congenital Hydrocephalus
Enrolling NOW
Lead Investigator: Kristopher Kahle, MD, PhD
Location: Yale University, The Anlyan Center, 300 Cedar Street, Rm S311, New Haven, CT 06519
Recruiting: locally, regionally, and nationally
Eligibility: Families affected by congenital (developmental) hydrocephalus
A Randomized Controlled Trial of Anterior versus Posterior Entry Site for CSF Shunt Insertion
Enrollment is now COMPLETE
Lead Investigator: William Whitehead, MD, Texas Children’s Hospital
Location: HCRN Centers in the United States and Canada
Eligibility: Children younger than 18 years of age and getting their first permanent shunt
Patient Registries
HAPPIER™ – HA Patient Powered Registry
Join the FIRST Hydrocephalus Patient Registry and help accelerate hydrocephalus research.
The Patient Registry is an online database created for our community to share your experience living with hydrocephalus. By sharing your experience, you’re giving researchers access to important data that can lead to discoveries in underlying causes of the condition, intervention strategies for preventing the condition, improvements in diagnosis, and/or alternative treatments.
Lead Investigator: Jenna Koschnitzky, PhD
Recruiting: Worldwide
Eligibility: Adults older than 18 years of age or parents/caregivers
AHCRN Core Data Project
Open to patients at participating AHCRN Centers
Lead Investigator: Mark Hamilton, MD, University of Calgary
Location: AHCRN Centers in United States and Canada
Eligibility: Adults older than 18 years of age
HCRN Core Data Project
Open to patients at participating HCRN Centers
Lead Investigator: Jay Riva-Cambrin, MD, University of Utah
Location: HCRN Centers in United States and Canada
Eligibility: Children younger than 18 years of age
HCRN Core Data Project: Characterizing Patient Populations within the HCRN: Shunt Infection Registry
Open to patients at participating HCRN Centers
Lead Investigator: Tamara Simon, MD, Seattle Children’s Hospital
Location: HCRN Centers in United States and Canada
Eligibility: Children younger than 18 years of age
HCRN Core Data Project: Characterizing Patient Populations within the HCRN: Endoscopic Third Ventriculostomy Registry
Open to patients at participating HCRN Centers
Lead Investigator: Abhaya Kulkarni, MD, The Hospital for Sick Children
Location: HCRN Centers in United States and Canada
Eligibility: Children younger than 18 years of age
To search for more hydrocephalus clinical trials visit clinicaltrials.gov