Learn More About Ongoing Studies

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    Enrolling in clinical research trials is one way our community can become active participants in the quest to improve outcomes and find a cure for hydrocephalus. On this page, you can learn about ongoing trials.

    Clinical Trials


    Genetic Causes of Congenital Hydrocephalus

    Enrolling NOW
    Lead Investigator: Kristopher Kahle, MD, PhD
    Location: Yale University, The Anlyan Center, 300 Cedar Street, Rm S311, New Haven, CT 06519
    Recruiting: locally, regionally, and nationally
    Eligibility: Families affected by congenital (developmental) hydrocephalus

    Learn More >


    A Randomized Controlled Trial of Anterior versus Posterior Entry Site for CSF Shunt Insertion

    Enrollment is now COMPLETE
    Lead Investigator: William Whitehead, MD, Texas Children’s Hospital
    Location: HCRN Centers in the United States and Canada
    Eligibility: Children younger than 18 years of age and getting their first permanent shunt

    Learn More >


    Patient Registries


    HAPPIER™ – HA Patient Powered Registry

    Join the FIRST Hydrocephalus Patient Registry and help accelerate hydrocephalus research.
    The Patient Registry is an online database created for our community to share your experience living with hydrocephalus. By sharing your experience, you’re giving researchers access to important data that can lead to discoveries in underlying causes of the condition, intervention strategies for preventing the condition, improvements in diagnosis, and/or alternative treatments.

    Lead Investigator: Jenna Koschnitzky, PhD
    Recruiting: Worldwide
    Eligibility: Adults older than 18 years of age or parents/caregivers

    Learn More >


    AHCRN Core Data Project

    Open to patients at participating AHCRN Centers
    Lead Investigator: Mark Hamilton, MD, University of Calgary
    Location: AHCRN Centers in United States and Canada
    Eligibility: Adults older than 18 years of age

    Learn More >


    HCRN Core Data Project

    Open to patients at participating HCRN Centers
    Lead Investigator: Jay Riva-Cambrin, MD, University of Utah
    Location: HCRN Centers in United States and Canada
    Eligibility: Children younger than 18 years of age

    Learn More >

    Learn More About HCRN >


    HCRN Core Data Project: Characterizing Patient Populations within the HCRN: Shunt Infection Registry

    Open to patients at participating HCRN Centers
    Lead Investigator: Tamara Simon, MD, Seattle Children’s Hospital
    Location: HCRN Centers in United States and Canada
    Eligibility: Children younger than 18 years of age


    HCRN Core Data Project: Characterizing Patient Populations within the HCRN: Endoscopic Third Ventriculostomy Registry

    Open to patients at participating HCRN Centers
    Lead Investigator: Abhaya Kulkarni, MD, The Hospital for Sick Children
    Location: HCRN Centers in United States and Canada
    Eligibility: Children younger than 18 years of age
    To search for more hydrocephalus clinical trials visit clinicaltrials.gov