I am a parent

Caitlin shares her family’s unique journey of having three children diagnosed with hydrocephalus, beginning with her oldest son, Cavan. Despite being told the condition wasn’t genetic, both of her younger children, Breccan and Teagan, were also diagnosed with hydrocephalus.

It has now been almost 4 months since Oliver had his shunt placed, and he is living life to the fullest!

Cadogan, born with hydrocephalus, has faced multiple surgeries and challenges, but continues to show resilience and progress with the strong support of his family.

Nineteen. That’s how many days Benaiah’s family had with him before realizing how much he was up against. Benaiah’s story is hard, but it’s a good one, filled with hope and strength.

Carla’s journey began with a revelation that resonated with uncertainty. Carla was diagnosed with congenital…

“Our miracle baby is now a young woman who has been truly blessed and remains steadfast.” Read Tyerria’s story, told by her mom, Terra.

Kristen shares Cecilia’s inspiring journey, born at 29 weeks, a testament to resilience and the human spirit’s triumph.

Zoe is not even a year old but has already endured 13 surgeries due to hydrocephalus. Despite her challenges, she continues to amaze everyone with her smiles and joy.

At almost 2 years old, Jack has already endured nine brain surgeries to treat his hydrocephalus. But his parents have no doubt that their little “fighter” will continue to amaze them and make them stronger in the process.

When Isaac developed hydrocephalus, his parents were told that he would have severe disabilities his entire life. Now, the spunky 3-year-old is defying the odds – running, laughing, dancing, speaking two languages and more!

“Max is our inspiration for everything. As his parents, we couldn’t be prouder of him!”

“Skylene saved the lives of 5 individuals through organ donation. She was the most giving person. If she knew she gave this gift of life she would be so proud!” Read Skylene’s story, told by her mom.

Besides the Chiari 2 malformation, there was no sign of hydrocephalus. At 38 weeks, our beautiful baby boy Cayden was born.

As Vincent recovered we scoured the internet looking for anything on Hydrocephalus. We had no idea so many people of all ages suffered from this condition!

Luna was born 7 weeks early and delivery went pretty well, and after 17 hours our baby girl was finally here!

Hydrocephalus. I had never heard of the word and it sent me into a panic. The next day we named him Hiro, which means vast  in Japanese, we thought the name was very fitting!