I am a parent

Myles was diagnosed with hydrocephalus before birth and spent 44 days in the NICU. After seven surgeries, he is now thriving, running, and inspiring his family.

Jaylani’s mother shares her daughter’s congenital hydrocephalus journey, from diagnosis at one month old to successful ETV surgery and a thriving recovery.

Victoria was diagnosed with hydrocephalus before birth due to aqueductal stenosis and continues to thrive through every challenge.

Layla was diagnosed with hydrocephalus after a brain bleed. Through surgeries and challenges, she continues to thrive with resilience.

Kyliah was diagnosed with hydrocephalus before birth and given little hope, yet today she’s hitting milestones, learning new skills, and thriving.

Camden was diagnosed with hydrocephalus in infancy and had multiple brain surgeries before age two, yet his joy, strength, and love shine bright.

Ethan was diagnosed with hydrocephalus before birth and grew at his own pace—meeting every milestone with joy, determination, and a smile.

Allison was diagnosed with hydrocephalus at 11 months. After multiple surgeries and therapy, she’s now 6, thriving, strong, and full of courage.

Colton was a preemie diagnosed with hydrocephalus and a tough start. At 4, he’s thriving, playing, and full of joy.

Hunter was 2 when his parents’ persistence led to his hydrocephalus diagnosis—after months of being told nothing was wrong.

In memory of Maryam, diagnosed with hydrocephalus before birth, Maryam’s journey highlights the critical care gaps faced by families across Africa.

Hannah, a twin diagnosed with hydrocephalus before birth, is defying the odds. After surgeries and setbacks, she’s now thriving in everyday life.

Born premature, Colton faced hydrocephalus and multiple shunt surgeries. Now, at almost three, he’s thriving and two years shunt failure-free!

Savannah introduced her mother to hydrocephalus 13 years ago and has since been her greatest teacher. Her resilience and determination inspired her mother to become a Teacher of Students with Visual Impairments, turning challenges into purpose.