Life with NPH

A diagnosis of NPH can be complex and frustrating. Staying informed about the condition is essential to managing care. Here you'll find resources that will enable you to make informed decisions and have more control of your life.

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A diagnosis of normal pressure hydrocephalus (NPH) is complex and frustrating. Staying informed about the condition is essential to managing care. Here you’ll find resources that will enable you to make informed decisions and have more control of your life.


Navigating Your Care

Once you receive a hydrocephalus diagnosis, choosing your doctor is one of the most important decisions you will make. We have developed resources to help you learn more about the different types of specialists who care for people with hydrocephalus. We also offer suggestions on finding the ones that are right for you.

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Related Health Conditions

It is not unheard of for people living with hydrocephalus to have other symptoms or comorbidities (conditions). These could have preceded the diagnosis or appeared well after. Many people have to manage additional health problems including, but not limited to, headaches, chronic pain, and epilepsy.

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NPH and Rehabilitation Services

Undergoing surgery is a critical first step to regaining functionality lost to normal pressure hydrocephalus (NPH), but it may not be the whole solution.  After surgery, physical therapy, occupational therapy, and other rehabilitation strategies may be advised to help you or your loved one attain as much resolution of symptoms as possible.

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Healthy Living: NPH

Staying healthy, from the inside out, is key to maintaining a good quality of life when living with normal pressure hydrocephalus (NPH). Gain tips and tools to optimize your body and mind so you can live your best life!

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Ask the Expert: NPH Series

This series features two experts from Johns Hopkins Cerebral Fluid Center: Dr. Mark Luciano, a neurosurgeon, and Abhay Moghekar, a neurologist. Together with Amanda Garzon, HA’s National Director of Program Services and Communications they tackle some of the most common questions the Hydrocephalus Association receives to its support line and on social media.

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Thriving with NPH

Have you been recently diagnosed with normal pressure hydrocephalus (NPH)? You are joining a special group of hydrocephalus warriors, and we’d like to introduce you to individuals who have been where you are right now.  They emerged from their surgery successfully and have gone on to accomplish new goals, learn new hobbies, help others in a similar situation, and educate their communities on the condition.  These are people from all over the US and different walks of life, but they have two things in common – they are thriving with NPH, and they are volunteers for the Hydrocephalus Association.

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