Help Raise Awareness

Over 1 million Americans are living with hydrocephalus, yet the condition remains relatively unknown among the general public. Help us change that by raising your voice on social media!

Hydrocephalus is not as widely known as other health conditions -- even those with smaller incidence numbers! That's why we need YOUR HELP to spread awareness about this complex condition. Let's bring hydrocephalus out of the shadows!

social media, raise awareness

Educate Others on Social Media

Harness the power of social media to educate your family, friends, and social followers about hydrocephalus, how it impacts you and your loved ones, and how they can help make a difference! Follow us on Facebook, Twitter, Instagram, and LinkedIn and be sure to share, like and retweet our daily educational and research posts. Then, use our Social Media Toolkit to create your own posts about hydrocephalus.

ham, hydrocephalus awareness month

Get Involved in Hydrocephalus
Awareness Month (HAM)

September is Hydrocephalus Awareness Month – our chance to bring national attention to the one million Americans living with hydrocephalus. Join the growing number of individuals, communities and organizations during Hydrocephalus Awareness Month, who are calling attention to the impact of this condition and urging people to donate and get involved.

Start a Facebook Fundraiser

Start a Facebook Fundraiser

Have a birthday, anniversary or another major milestone coming up? Celebrate by starting a fundraiser for the Hydrocephalus Association on Facebook! Facebook makes it easy for you to raise money for the Hydrocephalus Association and invite friends and family to help. 100% of the funds you raise will be delivered to us. Let your friends and family gift you something that can make a huge difference!

Connect with us

Start your journey today with the Hydrocephalus Association’s network of hydrocephalus patients, caregivers, supporters, and friends. Like, subscribe, and follow us to keep up with the latest hydrocephalus research news, events, inspirational stories, and more.

In The News

Press Release, Press Releases

A Brain Condition as Common as Parkinson’s Disease Remains Largely Unknown: More People Live with Hydrocephalus Than You Think

The Hydrocephalus Association has announced its 2026 Annual Research Workshop, bringing together leading experts to address the population burden, economic impact, and barriers to care for hydrocephalus. Read the full press release to learn why this condition deserves greater recognition and how this important event is advancing awareness, research, and innovation.

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indianapolis

Danny Bonaduce, Katie Lucas to speak at conference on brain condition in Indianapolis

Danny Bonaduce, Katie Lucas to speak at conference on brain condition in Indianapolis

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In The News Article 514x286 1 1

Older adults with hydrocephalus benefit from shunt surgery

A treatment trial improved gait speed, cognition and bladder control in older patients with the brain-fluid condition.

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