Hydrocephalus Blog & Resources
Quick Stress Relief Strategies for Overwhelming Days
Stress can make even simple tasks feel impossible. Discover quick stress relief strategies to reduce anxiety, manage overwhelm, and feel more in control.
The Hydrocephalus Scoop on Capitol Hill – May 2026
Congress continues to focus on health care affordability in 2026, with hearings examining insurance costs, prescription drug pricing, provider transparency, and access to care. In this month’s Hydrocephalus Scoop on Capitol Hill, learn how these ongoing policy discussions connect to the Hydrocephalus Association’s advocacy priorities, including lower out-of-pocket costs, telehealth access, and medical research funding. We also share updates on the early stages of the 2027 federal funding process and what it could mean for hydrocephalus research and support programs.
Spina Bifida and Hydrocephalus: What Families Should Know
Learn how spina bifida and hydrocephalus are connected, including symptoms, treatment, lifelong care, school support, and transition planning.
Hydrocephalus Symptoms That Fluctuate: Coping Without Panic
Hydrocephalus symptoms can fluctuate. Learn how to manage changing symptoms calmly, avoid panicking, and feel more in control of your health.
Middle School with Hydrocephalus: Smart Preparation
Learn how to prepare for middle school with hydrocephalus. Tips for parents and students on independence, school success, and managing health.
The Hydrocephalus Scoop on Capitol Hill – April 2026
From affordability and coverage to telehealth and brain health, lawmakers are weighing policies that could either strengthen access to care or leave patients facing new barriers. For the Hydrocephalus Association, the message is clear: continued advocacy is essential to ensure that patients, families, and caregivers are not left behind.
Shunt Revision Surgery: What to Expect During Surgery and Recovery
Learn what happens before, during, and after shunt revision surgery, including preparation, recovery, risks, and signs of complications.
Precocious Puberty and Hydrocephalus: Helpful Insights
Learn how precocious puberty affects children with hydrocephalus, including early signs, causes, and when to talk to your child’s doctor.
Cerebral Palsy and Hydrocephalus: Essential Facts to Know
Discover how cerebral palsy and hydrocephalus overlap, with key facts on symptoms, prevalence, and what families should know.
Using AI to Research Hydrocephalus Safely
Learn how to research hydrocephalus safely using AI, find accurate information, and avoid common risks.
Empowering Your Child to Be Their Own Advocate: Navigating Healthcare with Confidence
Empowering your child to advocate in healthcare builds confidence, communication skills, and independence for navigating lifelong medical care.
New HAPPIER Study Highlights Challenges in Accessing Care
New HAPPIER study reveals major gaps in access to care for people with hydrocephalus, including limited specialists, insurance barriers, and high costs.