Brainy Camps and Camp Headstrong are Back This Year!

March 16, 2022

The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.

Statement by Hydrocephalus Association President and CEO Diana Gray on Washington Post Article About Chloe Kral

February 15, 2022
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The Washington Post recently published a story about Chloe Kral, who suffered for years and was told she had severe mental illness before discovering later that she had hydrocephalus. Here’s a statement from HA’s President & CEO Diana Gray about Chloe’s remarkable story.

The Hydrocephalus Scoop on Capitol Hill: Jan/Feb 2022 Update

February 7, 2022
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It’s been a busy time in Congress. Find out what we’ve been up to on Capitol Hill!

Five Scientists Awarded HA Grants for Their Bold and Innovative Work

January 24, 2022
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Announcing our 2021 Innovator Award recipients! These brilliant scientists are exploring new ideas about why hydrocephalus develops and testing new treatments to improve long term outcomes.

HA’s Medical Advisory Board Issues New Statements Regarding COVID-19

January 20, 2022

The Hydrocephalus Association (HA)’s Medical Advisory Board (MAB) recently issued two new consensus statements regarding COVID-19 for people living with hydrocephalus.

Grey Matter Brain Damage

January 15, 2022

This blog explains the difference between white and grey matter injuries and their effects on the brain.

Celebrating the Life of Dr. Shirley McBay

December 16, 2021
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The Hydrocephalus Association celebrates the life of Dr. Shirley McBay, who passed away in late November. Dr. McBay was the first Black person to receive a doctorate from the University of Georgia and was a pioneer in advocating for diversity in science and math education. She was diagnosed with diabetes and Normal Pressure Hydrocephalus.

The Benefits of Boxing

December 14, 2021

As a health and fitness professional, Sophia tells us that boxing is not about fighting, she believes that with the proper guidance and precautions, boxing can be an empowering and beneficial form of exercise for people living with chronic conditions like hydrocephalus.

AHCRN Awarded $14 Million NINDS Grant to Study Effectiveness of Shunt Treatment for idiopathic Normal Pressure Hydrocephalus

December 8, 2021
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The AHCRN, one of three research networks HA funds, was awarded a $14 million federal grant to study the effectiveness of shunt treatment for NPH.

TECHNOLOGY UPDATE: Rhaeos, Inc. Awarded NIH Grant to Advance Development of FlowSense Wireless Sensor

December 6, 2021
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Rhaeos, Inc. was awarded an NIH grant to advance their development of wearable sensors to detect failed shunts in patients with hydrocephalus.

2021 WALK to End Hydrocephalus Raises over $1.6 Million

December 6, 2021

Our WALK to End Hydrocephalus program had a successful year, raising over $1.6 million for HA’s research, support, education and advocacy efforts.

Isabella Advocates for Children in Congress

November 29, 2021

Like many kids living with hydrocephalus, Isabella is a fighter. This year, she brought her fighting spirit to Congress advocating for better healthcare services for children!