HA’s Medical Advisory Board Issues New Statements Regarding COVID-19

January 20, 2022

The Hydrocephalus Association (HA)’s Medical Advisory Board (MAB) recently issued two new consensus statements regarding COVID-19 for people living with hydrocephalus.

Grey Matter Brain Damage

January 15, 2022

This blog explains the difference between white and grey matter injuries and their effects on the brain.

Celebrating the Life of Dr. Shirley McBay

December 16, 2021

The Hydrocephalus Association celebrates the life of Dr. Shirley McBay, who passed away in late November. Dr. McBay was the first Black person to receive a doctorate from the University of Georgia and was a pioneer in advocating for diversity in science and math education. She was diagnosed with diabetes and Normal Pressure Hydrocephalus.

The Benefits of Boxing

December 14, 2021

As a health and fitness professional, Sophia tells us that boxing is not about fighting, she believes that with the proper guidance and precautions, boxing can be an empowering and beneficial form of exercise for people living with chronic conditions like hydrocephalus.

AHCRN Awarded $14 Million NINDS Grant to Study Effectiveness of Shunt Treatment for idiopathic Normal Pressure Hydrocephalus

December 8, 2021
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The AHCRN, one of three research networks HA funds, was awarded a $14 million federal grant to study the effectiveness of shunt treatment for NPH.

TECHNOLOGY UPDATE: Rhaeos, Inc. Awarded NIH Grant to Advance Development of FlowSense Wireless Sensor

December 6, 2021
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Rhaeos, Inc. was awarded an NIH grant to advance their development of wearable sensors to detect failed shunts in patients with hydrocephalus.

2021 WALK to End Hydrocephalus Raises over $1.6 Million

December 6, 2021

Our WALK to End Hydrocephalus program had a successful year, raising over $1.6 million for HA’s research, support, education and advocacy efforts.

Isabella Advocates for Children in Congress

November 29, 2021

Like many kids living with hydrocephalus, Isabella is a fighter. This year, she brought her fighting spirit to Congress advocating for better healthcare services for children!

scholarship, hydrocephalus

Announcing our 2021 Hydrocephalus Association Scholarship Recipients!

November 29, 2021

The Hydrocephalus Association (HA) is pleased and honored to announce our 2021 Hydrocephalus Association Scholarship Recipients.

Fighting for Hydrocephalus Funding in Congress. October Update

November 8, 2021

October has been a busy time for Congress, and the Hydrocephalus Association has been hard at work ensuring that we have a seat at the table. We have an exciting new bill introduced and an update on congressional funding for hydrocephalus research. 

Complications of ETV

The Importance of a Support System

October 19, 2021
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Living with hydrocephalus can feel overwhelming at times. That’s why building a strong support system is so important. Our team of trained professionals is here to help! Our staff will listen to your concerns and connect you with helpful resources.

The Hydrocephalus Scoop on Capitol Hill – Sept/Oct 2021

October 4, 2021
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The Hydrocephalus Association has been busy protecting hydrocephalus-related research dollars in Congress, and working with members Congress to recognize National Hydrocephalus Awareness Month.