Hydrocephalus Blog & Resources
Hydrocephalus Association Statement on Reconciliation Bill Passage
The Hydrocephalus Association is deeply concerned about the bill’s sweeping cuts and changes to Medicaid. This will have severe impacts on healthcare access and coverage for individuals with chronic conditions and disabilities.
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The Hydrocephalus Scoop on Capitol Hill — June 2025
June updates on Medicaid cuts, CDMRP research funding, and telehealth bills impacting the hydrocephalus community. Make your voice heard on the Hill!
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Hydrocephalus Association Applauds Introduction of the Medical Research for Our Troops Act
Reps. Carson and Levin introduced the Medical Research for Our Troops Act to restore funding for vital DoD medical research. The Hydrocephalus Association supports the bill to protect research impacting veterans and those with hydrocephalus.
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Learning the Brain: Neuroanatomy Basics for Understanding Hydrocephalus
Neuroanatomy Basics for Understanding Hydrocephalus: A simple guide to neuroanatomy and hydrocephalus.
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Explainer of the President’s FY 2026 HHS Budget Proposal
President’s FY 2026 budget proposes major NIH cuts, agency mergers, and restructures that could reduce neuroscience and hydrocephalus research funding.
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The Hydrocephalus Scoop on Capitol Hill — May 2025
House passes bill with major Medicaid changes—millions could lose coverage. Learn how this impacts the hydrocephalus community and what’s next in the Senate.
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Brain condition forces Billy Joel to cancel concerts: The legendary rocker is suffering from NPH, a condition that is affecting his hearing, vision and balance.
The legendary rocker is suffering from a condition that is affecting his hearing, vision and balance. CBS News New York’s Dick Brennan has more on the illness and the prognosis.
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Billy Joel’s Diagnosis of Normal Pressure Hydrocephalus
The Hydrocephalus Association extends its heartfelt support to Billy Joel and his family following his recent announcement of a diagnosis of Normal Pressure Hydrocephalus (NPH). We commend Mr. Joel for his courage in sharing his health journey, which brings much-needed awareness to this often misunderstood and underdiagnosed condition.
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Medicaid Impact of U.S. House Reconciliation Package on People with Hydrocephalus
Learn how proposed federal Medicaid changes could affect people with hydrocephalus, including burdensome administrative requirements, cuts to vital health services, home care, and coverage for medical equipment.
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Celebrating Neuroscience Nurses: Unsung Heroes of Neuro Care
Neuroscience nurses are the heart of neuro care. During Neuroscience Nurses Week, we honor their vital role in caring for brain and spinal condition patients.
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Neuropsychology 101: Understanding Cognitive Function in Hydrocephalus
Learn how neuropsychology helps identify and manage cognitive symptoms in hydrocephalus—and how research is advancing care and quality of life.
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The Hydrocephalus Scoop on Capitol Hill — April 2025
Congress has returned to Capitol Hill following Easter recess and is beginning the reconciliation process for a major legislative package. Big decisions are being made — and we have everything you need to know.
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