Hydro Mom Organizes Successful Golf Fundraiser for HA
On July 20, golfers in South Florida came together for an important cause – to raise funds for a cure for hydrocephalus.
Conan O’Brien to Headline Comedy Show on April 11 to Raise Funds for Incurable Brain Condition
Emmy Award-winning comedian and host Conan O’Brien will headline “In Stitches, a Night of Laughs,” an evening of comedy and cocktails to raise awareness and funds to find a cure for hydrocephalus, a chronic brain condition that affects 1 million Americans. “In Stitches, a Night of Laughs” will take place Thursday, April 11 at 6:30 […]
Chicago Family Walks to Find a Cure for Daughter’s Brain Disorder
Will join hundreds of families at Soldier Field for the Chicago WALK to End Hydrocephalus on Aug. 17 When your child lives with a chronic brain condition that has no cure, life can seem daunting at times. Candace Corner and husband Johnny Miller, whose daughter Mari June was diagnosed with hydrocephalus at three weeks old, […]
The Hydrocephalus Scoop on Capitol Hill
Hydrocephalus-related policy issues have been on the move in Congress. We thought we’d give you a quick rundown on what’s going on and how it impacts our community.
HA Volunteer Educates Senior Citizens About NPH
NPH continues to be relatively unknown among the general public and even in the medical community. In April, Trish Bogucki, a longtime HA volunteer, led a presentation on NPH and cognitive therapy for senior citizens in Midland Park, NJ.
Technology Update: Moving Towards a Self-Sensing Shunt
We recently submitted a letter of support for Senseer’s grant application to the National Science Foundation to develop their “smart shunt”. Learn about this device and what it could mean for patients.
Wyatt: Meeting Adversity with Joy
Wyatt Foster was born with Spina Bifida and hydrocephalus and has already endured six surgeries before turning 3. Despite that, Wyatt brings joy to everyone he meets and pushes himself to achieve his milestones.
Get To Know Image Outfitters: A Company That Gives Back
Get to know Image Outfitters, a promotional products company. Through their iShare program, they donate up to 10% of sales to the Hydrocephalus Association!
New Clinical Trial Aims to Determine Effectiveness of Shunting for iNPH Patients
Patients diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH) are typically treated by having a shunt placed surgically. A new clinical trial will determine whether or not shunts are an effective form of treatment for iNPH patients.
ETV-CPC for the treatment of infants with hydrocephalus: Predicting Success
The Hydrocephalus Clinical Research Network (HCRN) conducted a study to determine which babies under two years old with hydrocephalus have the best chance of success with an ETV-CPC procedure. In her blog, Dr. Jenna Koschnitzky, National Director of Research Programs, explains why the findings of this study are important when determining if a baby under two years old should receive a shunt or undergo the ETV-CPC procedure.
Two Friends Run 200 Mile Race to Find a Cure for Hydrocephalus
How far would you run to raise awareness and funds for hydrocephalus research? Brett Bauer and buddy Matt Campbell will run 200 miles!
Finding Life’s Purpose Through Hydrocephalus
James “JT” Thompson developed hydrocephalus as a teen. Little did he know that his experience would help him find his purpose in life.