Hydrocephalus Blog & Resources
HA CONNECT 2026: Our Community, Connected.
More than 600 people came together in Indianapolis for HA CONNECT 2026, our largest in-person National Conference on Hydrocephalus to date.
The Hydrocephalus Scoop on Capitol Hill — September 2026
Congress is back in session, and hydrocephalus advocates are raising awareness, protecting critical research funding, and making their voices heard. Learn about a recent advocacy victory, key federal funding priorities, and how you can take action during Hydrocephalus Awareness Month.
Staying Social with NPH: 10 Empowering Tips
Learn practical tips for staying social with normal pressure hydrocephalus (NPH) while managing memory changes, balance issues, fatigue, and other symptoms.
Switching Hydrocephalus Doctors: A Smooth Transition
Learn how to switch hydrocephalus doctors, prepare for planned or unexpected changes, organize your medical history, and maintain continuity of care.
New Hydrocephalus Diagnosis: What to Do Next
Newly diagnosed with hydrocephalus? Learn what to ask, understand treatment, recognize warning signs, prepare for emergencies, and find support.
Essential Facts About Epilepsy and Hydrocephalus
Learn about epilepsy and hydrocephalus, including seizure signs, triggers, risk factors, treatment options, and what to do when a seizure occurs.
Podcast: Navigating IEP and 504 Plans
The Hydro Heroes Podcast explains IEPs and 504 plans, legal protections, and how teens with hydrocephalus can advocate for themselves.
Hydrocephalus Association Brings the Patient Voice to the Hydrocephalus World Congress
The Hydrocephalus Association (HA) proudly represented the patient community at the 2026 Hydrocephalus World Congress…
Meet the 2026 Next Generation Scientists Advancing Hydrocephalus Research
Meet the 2026 Next Generation Scientists Travel Award recipients and explore the innovative hydrocephalus research they presented at HA CONNECT 2026, spanning patient care, shunt technology, caregiver experiences, and emerging treatments.
Podcast: School Life, Growing Confidence, and Becoming More Independent: Camille’s Hydro Journey
In this Hydro Heroes Unite podcast episode, hear from Camille, a 15-year-old sharing her experience living with hydrocephalus in her own words.
Podcast: Mental Health and Hydrocephalus with Pediatric Psychologist Dr. Elizabeth McRae
In this Hydro Heroes Unite podcast episode, Dr. Elizabeth McRae discusses teen mental health, family support, and self-advocacy.
The Hydrocephalus Scoop on Capitol Hill — August 2026
The Hydrocephalus Association continues to press Congress and the federal government to protect the policies, programs, and research that move our mission forward.