Emmy Award-winning comedian and host Conan O’Brien will headline “In Stitches, a Night of Laughs,” an evening of comedy and cocktails to raise awareness and funds to find a cure for hydrocephalus, a chronic brain condition that affects 1 million Americans. “In Stitches, a Night of Laughs” will take place Thursday, April 11 at 6:30 […]
Will join hundreds of families at Soldier Field for the Chicago WALK to End Hydrocephalus on Aug. 17 When your child lives with a chronic brain condition that has no cure, life can seem daunting at times. Candace Corner and husband Johnny Miller, whose daughter Mari June was diagnosed with hydrocephalus at three weeks old, […]
Hydrocephalus-related policy issues have been on the move in Congress. We thought we’d give you a quick rundown on what’s going on and how it impacts our community.
NPH continues to be relatively unknown among the general public and even in the medical community. In April, Trish Bogucki, a longtime HA volunteer, led a presentation on NPH and cognitive therapy for senior citizens in Midland Park, NJ.
We recently submitted a letter of support for Senseer’s grant application to the National Science Foundation to develop their “smart shunt”. Learn about this device and what it could mean for patients.
Wyatt Foster was born with Spina Bifida and hydrocephalus and has already endured six surgeries before turning 3. Despite that, Wyatt brings joy to everyone he meets and pushes himself to achieve his milestones.
Get to know Image Outfitters, a promotional products company. Through their iShare program, they donate up to 10% of sales to the Hydrocephalus Association!
Patients diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH) are typically treated by having a shunt placed surgically. A new clinical trial will determine whether or not shunts are an effective form of treatment for iNPH patients.
The Hydrocephalus Clinical Research Network (HCRN) conducted a study to determine which babies under two years old with hydrocephalus have the best chance of success with an ETV-CPC procedure. In her blog, Dr. Jenna Koschnitzky, National Director of Research Programs, explains why the findings of this study are important when determining if a baby under two years old should receive a shunt or undergo the ETV-CPC procedure.