What I Know Now: Tips to Prepare for Shunt Surgery

September 23, 2022
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If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!

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Welcome New Board Member Michael Siegel, Ph.D.

August 22, 2022
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The Hydrocephalus Association (HA) would like to warmly welcome new board member Michael (Mike) Siegel, Ph.D. He is the Executive Director of the Pediatric Dermatology Research Alliance (PeDRA) and serves on our Scientific Advisory Board & Research Committee.

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Welcome New Board Member Stephanie Vogt

August 15, 2022
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The Hydrocephalus Association (HA) would like to warmly welcome new board member Stephanie (Buffa) Vogt, M.S. She is a Vice President of Supply Chain Strategy with Express Scripts at Cigna and has served as the chair of the St. Louis WALK to end Hydrocephalus since 2008.

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Welcome New Board Member Deitra Matthews

August 11, 2022
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The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA.…

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Life-changing Impact at Hydrocephalus Conference

July 25, 2022
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How do you put a life-changing experience into words? The 17th National Conference on Hydrocephalus, is now in the rearview mirror for everyone in attendance from across the country and internationally, but the memories and the connections will leave a lasting impact.

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Remembering Dr. Taeun Chang

June 24, 2022
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It is with great sadness that the Hydrocephalus Association announces the passing of our colleague…

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Brainy Camps and Camp Headstrong are Back This Year!

March 16, 2022
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The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.

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Statement by Hydrocephalus Association President and CEO Diana Gray on Washington Post Article About Chloe Kral

February 15, 2022
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The Washington Post recently published a story about Chloe Kral, who suffered for years and was told she had severe mental illness before discovering later that she had hydrocephalus. Here’s a statement from HA’s President & CEO Diana Gray about Chloe’s remarkable story.

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The Hydrocephalus Scoop on Capitol Hill: Jan/Feb 2022 Update

February 7, 2022
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It’s been a busy time in Congress. Find out what we’ve been up to on Capitol Hill!

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Five Scientists Awarded HA Grants for Their Bold and Innovative Work

January 24, 2022
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Announcing our 2021 Innovator Award recipients! These brilliant scientists are exploring new ideas about why hydrocephalus develops and testing new treatments to improve long term outcomes.

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HA’s Medical Advisory Board Issues New Statements Regarding COVID-19

January 20, 2022
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The Hydrocephalus Association (HA)’s Medical Advisory Board (MAB) recently issued two new consensus statements regarding COVID-19 for people living with hydrocephalus.

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Grey Matter Brain Damage

January 15, 2022
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This blog explains the difference between white and grey matter injuries and their effects on the brain.

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