Hydrocephalus Blog & Resources

Hydrocephalus Association Highlights Revolutionary Women in Medical Research

March 13, 2024

Celebrate Influential Leaders during National Women’s History Month. Dr. Robinson & Dr. Jantzie are both revolutionary women making strides for hydrocephalus

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Get the Hydrocephalus Scoop on Capitol Hill for February 2024

March 8, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Hydrocephalus Association Advocates for Rare Disease Week

Hydrocephalus Association Unites Advocates for 2024 Rare Disease Week

March 5, 2024

Members from the Hydrocephalus Association Action Network came to Washington, DC, to participate in the Everylife Foundation for Rare Disease’s Rare Disease Week, which took place from February 25-28, 2024.

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Get the Hydrocephalus Scoop on Capitol Hill for January 2024

February 6, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Representative Ritchie Torres Joins Pediatric and Adult Hydrocephalus Caucus to Advocate for Affected Families in NY-15

January 8, 2024

Representative Torres will play an integral role in advocating for increased awareness, funding, and support for pediatric and adult hydrocephalus patients. His commitment further amplifies the voice of those impacted by this condition and allows him to support hydrocephalus research at Columbia University.

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The Hydrocephalus Scoop on Capitol Hill for December 2023

January 2, 2024

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Dr. Peter Chiarelli Receives the Hydrocephalus Association Cynthia Solomon Resident’s Prize for Noninvasive Shunt Function Assessment Method

December 18, 2023

The Resident’s prize is awarded each year to the most promising hydrocephalus-related research paper presented by a neurosurgical resident at the Pediatric Section meeting of the AANS/CNS. The prize is designed to encourage young doctors to focus their research efforts on advancing treatment and care of individuals with hydrocephalus.

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Coast to Coast for Hydrocephalus – An Amazing Family’s Journey

December 11, 2023

On November 17, 2023, the Touchberry Family embarked on an extraordinary journey, setting out on a cross-country drive in their century-old Model T Ford—a symbolic quest aimed at raising awareness and crucial funding for hydrocephalus.

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The Hydrocephalus Scoop on Capitol Hill for November 2023

December 8, 2023

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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WALK to End Hydrocephalus 2023 Season Recap

December 7, 2023

Thanks to the Hydrocephalus Association’s wonderful volunteers, 40 WALKS were held across the U.S., with nearly 7,000 participants representing over 800 teams.

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Announcing our 2023 Hydrocephalus Association Scholarship Recipients!

December 1, 2023

The Hydrocephalus Association (HA) is pleased and honored to announce our 2023 Hydrocephalus Association Scholarship Recipients.

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Celebrating Milestones and Empowering Hope at our 40th Anniversary Gala

November 17, 2023

In celebrating this milestone, the Hydrocephalus Association reaffirmed its pledge to persist in driving forward research, support, and advocacy, ensuring that every step brings us closer to a world where hydrocephalus is a thing of the past.

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