Hydrocephalus Blog & Resources
Hydrocephalus Association Brings the Patient Voice to the Hydrocephalus World Congress
The Hydrocephalus Association (HA) proudly represented the patient community at the 2026 Hydrocephalus World Congress…
Meet the 2026 Next Generation Scientists Advancing Hydrocephalus Research
Meet the 2026 Next Generation Scientists Travel Award recipients and explore the innovative hydrocephalus research they presented at HA CONNECT 2026, spanning patient care, shunt technology, caregiver experiences, and emerging treatments.
Podcast: School Life, Growing Confidence, and Becoming More Independent: Camille’s Hydro Journey
In this Hydro Heroes Unite podcast episode, hear from Camille, a 15-year-old sharing her experience living with hydrocephalus in her own words.
Podcast: Mental Health and Hydrocephalus with Pediatric Psychologist Dr. Elizabeth McRae
In this Hydro Heroes Unite podcast episode, Dr. Elizabeth McRae discusses teen mental health, family support, and self-advocacy.
The Hydrocephalus Scoop on Capitol Hill — August 2026
The Hydrocephalus Association continues to press Congress and the federal government to protect the policies, programs, and research that move our mission forward.
IU School of Medicine professor survives 68 surgeries, inspires future physicians
At just 6 years old, Kyle Gospodarek had a brain aneurysm rupture that led to his brain being unable to absorb cerebrospinal fluid around it, eventually causing a condition called hydrocephalus.
Why Hydrocephalus Matters: The Impact of Our 2026 Health Economics Research Workshop
The Hydrocephalus Association, with the generous support of the Rudi Schulte Research Institute, hosted its…
Indiana University Student Researchers Pursue New Treatment for Often-Misdiagnosed Form of Hydrocephalus
This story spotlights the collaborative research underway at Indiana University’s Hydrocephalus Research Center to develop future drug therapies for normal pressure hydrocephalus, with findings featured at HA CONNECT 2026.
Danny Bonaduce joined FOX59 Morning News to share his personal hydrocephalus journey and help raise awareness for the condition while previewing HA CONNECT 2026
Was this resource helpful? Yes No Submit Cancel Thanks for your feedback!
Living with hydrocephalus: IU professor shares his story as Hydrocephalus Research Center aims to develop non-surgical treatments
After 68 brain surgeries, Dr. Kyle Gospodarek is using his story to inspire others while helping advance the future of hydrocephalus research at Indiana University.
FOX59 Highlights Hydrocephalus Research Ahead of HA CONNECT 2026
FOX59 spotlighted Indiana University’s groundbreaking hydrocephalus research and previewed HA CONNECT 2026, the nation’s largest conference dedicated to hydrocephalus. The segment highlights how researchers and clinicians are advancing care while bringing together patients, families, and experts from across the country in Indianapolis.
A Brain Condition as Common as Parkinson’s Disease Remains Largely Unknown: More People Live with Hydrocephalus Than You Think
The Hydrocephalus Association has announced its 2026 Annual Research Workshop, bringing together leading experts to address the population burden, economic impact, and barriers to care for hydrocephalus. Read the full press release to learn why this condition deserves greater recognition and how this important event is advancing awareness, research, and innovation.