Hydrocephalus Blog & Resources

Hydrocephalus Association, Reconciliation Bill Passage

Hydrocephalus Association Statement on Reconciliation Bill Passage

July 9, 2025

The Hydrocephalus Association is deeply concerned about the bill’s sweeping cuts and changes to Medicaid. This will have severe impacts on healthcare access and coverage for individuals with chronic conditions and disabilities.

Read More

The Hydrocephalus Scoop on Capitol Hill — June 2025

June 24, 2025

June updates on Medicaid cuts, CDMRP research funding, and telehealth bills impacting the hydrocephalus community. Make your voice heard on the Hill!

Read More
Press Release

Hydrocephalus Association Applauds Introduction of the Medical Research for Our Troops Act

June 17, 2025

Reps. Carson and Levin introduced the Medical Research for Our Troops Act to restore funding for vital DoD medical research. The Hydrocephalus Association supports the bill to protect research impacting veterans and those with hydrocephalus.

Read More
Neuroanatomy

Learning the Brain: Neuroanatomy Basics for Understanding Hydrocephalus

June 10, 2025

Neuroanatomy Basics for Understanding Hydrocephalus: A simple guide to neuroanatomy and hydrocephalus.

Read More
president, NIH cuts, hydrocephalus, research

Explainer of the President’s FY 2026 HHS Budget Proposal

June 5, 2025

President’s FY 2026 budget proposes major NIH cuts, agency mergers, and restructures that could reduce neuroscience and hydrocephalus research funding.

Read More

The Hydrocephalus Scoop on Capitol Hill — May 2025

June 2, 2025

House passes bill with major Medicaid changes—millions could lose coverage. Learn how this impacts the hydrocephalus community and what’s next in the Senate.

Read More
Billy Joel, NPH

Brain condition forces Billy Joel to cancel concerts: The legendary rocker is suffering from NPH, a condition that is affecting his hearing, vision and balance.

May 28, 2025

The legendary rocker is suffering from a condition that is affecting his hearing, vision and balance. CBS News New York’s Dick Brennan has more on the illness and the prognosis.

Read More
Billy Joel

Billy Joel’s Diagnosis of Normal Pressure Hydrocephalus

May 23, 2025

The Hydrocephalus Association extends its heartfelt support to Billy Joel and his family following his recent announcement of a diagnosis of Normal Pressure Hydrocephalus (NPH). We commend Mr. Joel for his courage in sharing his health journey, which brings much-needed awareness to this often misunderstood and underdiagnosed condition.

Read More
medicaid

Medicaid Impact of U.S. House Reconciliation Package on People with Hydrocephalus

May 19, 2025

Learn how proposed federal Medicaid changes could affect people with hydrocephalus, including burdensome administrative requirements, cuts to vital health services, home care, and coverage for medical equipment.

Read More
Neuroscience Nurses

Celebrating Neuroscience Nurses: Unsung Heroes of Neuro Care

May 9, 2025

Neuroscience nurses are the heart of neuro care. During Neuroscience Nurses Week, we honor their vital role in caring for brain and spinal condition patients.

Read More
Understanding Neuropsychology

Neuropsychology 101: Understanding Cognitive Function in Hydrocephalus

April 30, 2025

Learn how neuropsychology helps identify and manage cognitive symptoms in hydrocephalus—and how research is advancing care and quality of life.

Read More
Capitol Hill, April

The Hydrocephalus Scoop on Capitol Hill — April 2025

April 28, 2025

Congress has returned to Capitol Hill following Easter recess and is beginning the reconciliation process for a major legislative package. Big decisions are being made — and we have everything you need to know.

Read More