It’s not uncommon to feel overwhelmed when dealing with a chronic medical condition, and we want you to know there are resources available to you. In addition to educational resources and programs, the Hydrocephalus Association offers a toll-free helpline to provide support when you need it most. Through the helpline, we answer your questions and refer you to helpful educational resources and support programs.
Call (888) 598-3789 or email info@hydroassoc.org for support, resources, and answers to your questions.
Hours of Operation
Monday through Friday from 9:00 AM to 5:00 PM Eastern.
It’s important to know that you’re not alone as you deal with hydrocephalus. Our support groups, also known as Community Networks, provide localized support, education, and empowerment through community. Our network hosts educational events, support group meetings, and other gatherings that enable individuals and families to connect.
Hydrocephalus affects everyone differently, that’s why it’s important to have someone you can count on to support you in the way that you need. HydrocephalusCONNECT provides you with access to trained volunteers, via phone or email, who have been coping with the complexities of hydrocephalus.
Frequently Asked Questions
All calls and emails are answered by a trained and caring staff member. Our staff shares knowledge that comes from personal experience with hydrocephalus and from talking with people who live with the condition. Expect a listening ear from staff and access to informed and current resources to help you understand and deal with the complexities of hydrocephalus.
Staff provide educational information on diagnosis, treatment, and management of hydrocephalus and normal pressure hydrocephalus.
The Hydrocephalus Association has developed a Physician Directory to assist you with building your healthcare team. This physician finder allows you to search by location, specialist, and/or age served.
No, the Hydrocephalus Association does not provide medical advice or treatment recommendations.
Normally, a staff member is waiting for your call and will pick up right away. There will be times the line is busy or the staff member is unavailable. You will have the opportunity to leave a message so we can call you back. Please leave a message with your name, phone, the best time to call you, and your time zone. You can also email us at info@hydroassoc.org. We will return your message within 24 to 48 hours.
You may be able to find the answer to your question by visiting our Resources.