Connect with Staff who Listen and Can Help – It’s Why We’re Here

It’s not uncommon to feel overwhelmed when dealing with a chronic medical condition, and we want you to know there are resources available to you. In addition to educational resources and programs, the Hydrocephalus Association offers a toll-free helpline to provide support when you need it most. Through the helpline, we answer your questions and refer you to helpful educational resources and support programs.


Call (888) 598-3789 or email for support, resources, and answers to your questions.

Hours of Operation

Monday through Friday from 9:00 AM to 5:00 PM Eastern.


Who answers the Helpline?
All calls and emails are answered by a trained and caring staff member. Our staff shares knowledge that comes from personal experience with hydrocephalus and from talking with people who live with the condition. Expect a listening ear from staff and access to informed and current resources to help you understand and deal with the complexities of hydrocephalus.

What information is provided?
Staff provide educational information on diagnosis, treatment, and management of hydrocephalus and normal pressure hydrocephalus.

What referrals do staff provide?
The Hydrocephalus Association has developed a Physician Directory to assist you with building your healthcare team. This physician finder allows you to search by location, specialist, and/or age served.

Can you provide medical advice?
No, the Hydrocephalus Association does not provide medical advice or treatment recommendations.

Are calls answered right away?
Normally, a staff member is waiting for your call and will pick up right away. There will be times the line is busy or the staff member is unavailable. You will have the opportunity to leave a message so we can call you back. Please leave a message with your name, phone, the best time to call you, and your time zone. You can also email us at We will return your message within 24 to 48 hours.

You may be able to find the answer to your question by visiting our Resources.