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New Resources to Help You Stay Resilient

April 7, 2020

Our hydrocephalus community KNOWS resiliency! To help you stay resilient throughout the COVID-19 crisis, we launched a new series on social media called #WeAreResilient.

Get to Know Dr. Joel Geerling: HA 2019 Innovator Award Grantee

March 25, 2020

In the 3rd installment of our Meet the Innovator Awardees Blog Series, we interviewed Dr. Joel Geerling, one of four scientists who received our 2019 Innovator Award, and Maggie Tish, who works in Dr. Geerling’s lab. They delve deeper into their fascinating research on Normal Pressure Hydrocephalus (NPH).

Update and Information for the Hydrocephalus Community Regarding COVID-19

March 16, 2020

Many in our community have asked if hydrocephalus is considered a risk factor for severe disease with COVID-19. As a follow up to our previous post, Dr. Michael A. Williams, Chair of HA’s Medical Advisory Board, has reviewed published medical research and found that hydrocephalus has not been mentioned as a specific risk factor in adults or children.

UPDATE: Hydrocephalus Association Statement on COVID-19

March 10, 2020

Several people in the hydrocephalus community have expressed their concern about the novel coronavirus. After consulting with our Medical Advisory Board, read our statement and recommendations.

Transition Initiative: Transitioning from Pediatric to Adult Care

March 2, 2020

A major milestone in a young adult living with hydrocephalus is the transition from pediatric to adult medical care. Learn about the HA Transition Initiative.

Get to Know Dr. Brandon Miller: HA 2019 Innovator Award Grantee

February 26, 2020

In the second installment of our Meet the Innovator Awardees Blog Series, we interviewed Dr. Brandon A. Miller, one of four scientists who received an Innovator Award grant.

Medical Alert IDs and Hydrocephalus

February 24, 2020

Without proper ID of a medical condition, common symptoms can be misdiagnosed and appropriate care could be jeopardized or delayed. Learn more about Medical Alert IDs.

Living Independently

February 24, 2020

Hydrocephalus can affect your independence and day-to-day needs, and there are additional considerations to keep in mind. Learn more about living independently and hydrocephalus.

Driving and Hydrocephalus

February 23, 2020

Driving is often seen as a rite of passage into adulthood. However, it’s not uncommon for individuals with hydrocephalus to experience challenges.

Bullying and Hydrocephalus

February 23, 2020

Bullying. We hold on to the 1950s image of the big kid on the playground taunting, name-calling, pushing, and intimidating other children.

Seeking a Second Opinion

February 23, 2020

Even though second opinions are a common and accepted practice in medicine, many people feel uncomfortable asking for them.

How to be an Assertive Member of the Treatment Team

February 23, 2020

People with hydrocephalus and their caregivers are highly encouraged to become active, assertive members of their treatment team.

What to Ask Your Doctor about NPH

February 23, 2020

Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

What to Ask Your Doctor about Young and Middle-Age Adults with Hydrocephalus

February 23, 2020

Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

What to Ask Your Doctor about Teens with Hydrocephalus

February 23, 2020

Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

What to Ask Your Doctor About Infants and Children with Hydrocephalus

February 23, 2020

Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

Your Healthcare Team

February 23, 2020

Living well with hydrocephalus often requires a team of healthcare providers. Together, you’ll monitor your condition.

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