Since the start of our Research Initiative in 2009, HA has worked diligently to build a comprehensive research program that is responsive to our community’s needs. Today, our program spans basic, translational, and clinical research and funds efforts to find a cure and improve the lives of those living with the condition, from the smallest preemies to seniors with Normal Pressure Hydrocephalus.
The Hydrocephalus Association (HA) will continue to push promising research forward. Our programs are designed to accelerate the movement of new therapies from bench to bedside. By continuing to fund innovative projects, leveraging our partnerships with key federal agencies, expanding our network of scientists, and collaborating with patients and industry, HA is working to achieve our vision of a world without hydrocephalus.
To learn more about HA Grant Opportunities and to apply, click here.
Connecting Basic, Translational, and Clinical Researchers
The Hydrocephalus Association Research Program is focused on advancing promising avenues of hydrocephalus research and building a committed and connected hydrocephalus research community. Through the support of three research networks and our patient-powered registry, HA has created a research ecosystem that improves the lives of those with hydrocephalus now, while identifying and testing new hypotheses and therapies. By connecting basic, translational, and clinical researchers, HA is accelerating hydrocephalus research and working to fulfill our mission.
HA Network for Discovery Science (HANDS)
HANDS is a platform for communication and collaboration among hydrocephalus researchers, emphasizing mentorship, innovation, and shared resources. We support innovative research through grants and host conferences and workshops to foster collaboration and uncover new opportunities.
Members gain access to HA Grant Opportunities, a CSF Biobank, Grant and Conference Calendars, and Research Discussions — all for free.
The ha patient powered interactive engagement registry (HAPPIER)
The Hydrocephalus Association Patient Powered Interactive Engagement Registry (HAPPIER) is an online database created to bring the patient perspective to hydrocephalus research. HAPPIER is collecting information on the treatment and symptoms, health, and quality of life of people living with hydrocephalus.
This data will then be made available to the research community through HANDS.
Hydrocephalus Clinical Research
Network (HCRN)
HCRN is a network of fourteen leading children’s hospitals that conduct field-changing, multi-center clinical research on hydrocephalus. Their mission is to dramatically improve the lives of children living with this challenging condition.
Adult Hydrocephalus Clinical Research Network (AHCRN)
AHCRN is a network of hospitals that conduct clinical research on hydrocephalus to improve treatment for the adult forms of hydrocephalus, including transitional patients who were diagnosed as children, those who acquire hydrocephalus as adults, and patients with normal pressure hydrocephalus.