Our programs are designed to accelerate the movement of new therapies from bench to bedside. The Hydrocephalus Association will continue to push promising research forward.
Since the start of our Research Initiative in 2009, HA has worked diligently to build a comprehensive research program that is responsive to our community’s needs. Today, our program spans basic, translational, and clinical research and funds efforts to find a cure and improve the lives of those living with the condition, from the smallest preemies to seniors with Normal Pressure Hydrocephalus.
The Hydrocephalus Association will continue to push promising research forward. Our programs are designed to accelerate the movement of new therapies from bench to bedside. By continuing to fund innovative projects, leveraging our partnerships with key federal agencies, expanding our network of scientists, and collaborating with patients and industry, HA is working to achieve our vision of a world without hydrocephalus.
The Hydrocephalus Association Network for Discovery Science (HANDS) A platform for both communication and collaboration among hydrocephalus basic and translational researchers with a focus on mentorship, innovation, and shared infrastructure.
Through HANDS we award research grants to individual investigators conducting innovative research and also hold research conferences and workshops that are designed to promote collaboration and identify promising new opportunities.
By joining HANDS you will have access to HA Grant Opportunities, a CSF Biobank, Grant and Conference Calendars, and Research Discussions.
It is free to join, so join now at https://hands.hydroassoc.org/
The Hydrocephalus Association (HA) supports the work of two clinical research networks: the pediatric-focused Hydrocephalus Clinical Research Network and the adult-focused Adult Hydrocephalus Clinical Research Network.
Hydrocephalus Clinical Research Network (HCRN):
HCRN is a network of fourteen children’s hospitals that conduct clinical research on hydrocephalus to improve the lives of children suffering from hydrocephalus.
Learn more at HCRN.org
Adult Hydrocephalus Clinical Research Network (AHCRN):
AHCRN is a network of eight hospitals that conduct clinical research on hydrocephalus to improve treatment for the adult forms of hydrocephalus, including transitional patients who were diagnosed as children, those who acquire hydrocephalus as adults, and patients with normal pressure hydrocephalus.
Learn more at AHCRN.org
The Hydrocephalus Association Patient Powered Interactive Engagement Registry (HAPPIER) is an online database created to bring the patient perspective to hydrocephalus research. HAPPIER is collecting information on the treatment and symptoms, health, and quality of life of people living with hydrocephalus.
This data will then be made available to the research community through HANDS. Stay tuned!