Hydrocephalus is relentless. So are we.

"It may not always be easy and brain surgery is often part of life, but hydrocephalus should not have to define you."
— Alex Rodger


Driving Research Forward

Improving lives now and funding the breakthrough research of tomorrow.


$12 Million

Invested in research

$35 Million

Additional Federal Grants Awarded


Potential Drug Therapies

Let’s Navigate this together

Trusted resources to help you on your journey.


Recently Diagnosed?

Have you or a loved one recently been diagnosed with hydrocephalus?


Tools for Daily Life

Learn how to manage the day to day symptoms and challenges you might encounter on your journey with hydrocephalus.


Get Support

We're here to help! Find the support you need and talk to people who know what you're going through.

Come Together. Connect.

The goal of our conference is to provide tools and connections to address the medical, educational and social complexities of living with hydrocephalus and to learn from world-renowned medical professionals and researchers.

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Make An Impact

We come together in so many ways — all of us driven by a passion to find a cure and improve the lives of those impacted by hydrocephalus. Whether you participate in a WALK to End Hydrocephalus or join our advocacy efforts, you’re making a difference!

Help us find a cure for hydrocephalus by participating in a WALK to End Hydrocephalus in your area!

Researchers need input from people living with hydrocephalus in order to ask the right questions and develop treatments.

The best advocates are patients, family members, medical caregivers, and others who are directly affected by the condition.

Raise awareness about hydrocephalus and look great doing it!

Connect With Us

When you're ready, let's take the next step together. Stay informed with our monthly newsletter! We'll share inspiring stories, and information about our programs, events, and research.