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Hiking for a Cure! An Adventure Seeker Takes on the Appalachian Trail
March 6, 2019Willow Bolton decided to hike the Appalachian Trail to raise awareness and funds for hydrocephalus. Read about what inspired her journey.
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Extracurricular Activities and Hobbies: The Positive Effect They Have for Individuals with Disabilities
March 4, 2019People with disabilities can benefit greatly by taking part in hobbies and extracurricular activities. Here are some tips to help you identify the activity that’s right for you.
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You spoke! We wrote!
February 21, 2019In October 2017, 82 individuals responded to a question we posed on social media about how hydrocephalus impacts their daily life. Researchers at the University of Pittsburgh Medical Center analyzed their responses in a new paper.
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Valentine’s Day Digital Tag Game!
February 5, 2019This Valentine’s Day get ready for the biggest game of digital tag you’ve ever played!
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Three Scientists Awarded HA Grants for Their Bold and Innovative Work
February 5, 2019What if you could prevent or stop the development of hydrocephalus after a brain bleed or develop a shunt that doesn’t get clogged? That’s what the 2018 HA Innovator Award grantees are hoping to do through their research projects.
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Does the size of an Endoscopic Third Ventriculostomy (ETV) hole increase over time?
February 4, 2019This study is the first to evaluate the size of the ETV hole using MR imaging over a period of time. This research is important because it shows us how useful MR imaging can be to neurosurgeons who want to evaluate an ETV.
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Sleep Away Camp for Kids with Hydrocephalus!
January 29, 2019Camp Head Strong offers children and teens with hydrocephalus (ages 10-17) five days and four nights of summer fun, education, and social connections!
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HA-Funded Researchers Awarded $2.3 Million Grant from the Department of Defense
January 29, 2019HA-funded researchers were awarded funding through the Department of Defense (DoD) Congressionally Directed Medical Research Programs (CDMRP) to study acquired hydrocephalus, with a particular focus on hydrocephalus that develops after a brain injury.
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WALKs to End Hydrocephalus Help Raise Nearly $2 Million
December 14, 2018The 2018 WALK to End Hydrocephalus season is in the books! And what a year it was. Thanks to the Hydrocephalus Association’s wonderful volunteers, 43 WALKS were held across the U.S., with more than 14,000 participants representing over 1,200 teams.
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Comprehensive Paper Addressing Transitioning to Adult Care Published in Journal of Neurosurgery
December 13, 2018A new paper summarizing the findings from the Hydrocephalus Association’s first-ever Transition Summit was published in the prestigious Journal of Neurosurgery (JNS). The JNS reaches both pediatric and adult providers, all of whom will have crucial roles to play in improving transition.
Posted In: HA Updates
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March 22, 201910th Annual Charity Card Party
Play fun card games, including Duplicate, Social bridge, Canasta, Mahjong, and enjoy a delicious brunch.
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March 23, 2019Hydrocephalus Education Day – Washington D.C.
Join Dr. Suresh Magge, pediatric neurosurgeon, and Dr. Taeun Chang, Neonatal and Fetal Neurologist, from Children’s National as we explore predicting neurodevelopmental prognosis. A special panel led by DC psychiatrist Dr. Louis Ari Kopolow will delve into coping with the daily challenges and stressors of living with a chronic and unpredictable medical condition.
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March 25, 2019FREE WEBINAR: New Results on the Genetic Causes of Congenital Hydrocephalus
Please join the Hydrocephalus Association and Dr. Kristopher Kahle, Assistant Professor of Neurosurgery and Pediatrics at Yale School of Medicine, to learn about the new results from his research on genetic causes of congenital (developmental) hydrocephalus.
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March 30, 2019
Hydrocephalus Education Day – Baltimore, MD
Join the Johns Hopkins pediatric neurosurgery team for an interactive discussion on managing and living with hydrocephalus. This year we have a Circus theme!
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April 6, 2019Colorado & Wyoming Community Network Meeting
The Colorado & Wyoming Community Network Meetings are designed to bring us together, connect with one another, ask questions and find support from others that are or have walked the same path as us.
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April 6, 2019
Long Island NY Community Network Meeting
We welcome all ages, family, friends and anyone looking to learn more and meet others affected by the chronic neurological condition known as hydrocephalus
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April 9, 2019
DFW- ZOOM Time!
The Dallas / Fort Worth area is BIG, which can sometimes make it hard to connect in person. But, we know we want to connect. So, please join us for an exciting virtual meet-up!
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April 11, 2019In Stitches featuring Conan O’Brien
Are your ready to join us for a fantastic evening of cocktails and comedy all while supporting a great cause? Conan O’Brien brings his talent to the stage as he and his comedic team perform in this annual benefit in Los Angeles, CA.
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April 27, 2019
Baltimore Mommy Meet Up!
Join Maryland moms for a MEET UP! OPEN TO all moms of children living with hydrocephalus, no matter the age of your child.
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May 5, 2019Colorado & Wyoming Community Network StrikeOUT Hydrocephalus!
How much fun will it be come together to help a cause that needs some support? Let’s StrikeOUT Hydrocephalus with the Rockies Baseball team!
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May 19, 2019
Charlotte, NC Strike Out Hydrocephalus Play Day!!!
How much fun will it be come together to help a cause that needs some support? Let’s Strike OUT Hydrocephalus with the Charlotte Knights Baseball team!
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June 1, 2019
Columbia, SC Hydrocephalus Kick-off Group Outing!
Join us for a night with the Fireflies. We will be in the Berm area so we can all be together. Tickets are FREE! Food, Fun, Games, Education, Support, & Families.
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July 7, 2019Sleep Away Camp for Kids with Hydrocephalus!
Camp Head Strong offers children and teens with hydrocephalus (ages 10-17) five days and four nights of summer fun, education, and social connections!
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September 5, 2019
Columbia, SC Hydrocephalus Support Group Meeting
Come meet new friends, share your stories, and learn about local & national hydrocephalus activities and how you can get involved!
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December 5, 2019
Columbia, SC Hydrocephalus Support Group Meeting
Come meet new friends, share your stories, and learn about local & national hydrocephalus activities and how you can get involved!