Thanks to the efforts of a range of advocates, including the hydrocephalus community, Congress has preserved the Congressionally Directed Medical Research Program (CDMRP).

You are on the road to recovery after yet another surgery but suddenly you find yourself unable to focus. One minute you are sitting at your computer working and the next thing you know you are thinking back to being in the hospital and suddenly you are overwhelmed by emotion.

Idiopathic NPH (iNPH) is a disorder commonly seen in older adults. The three common symptoms seen in adults with iNPH include: gait disorder (difficulty walking), inability to control urination, and behavioral disturbances.

I attended HACONNECT and hoped it would be an educational experience and it was, but it was also much more. Here are my top ten takeaways.

Miss the 15th National Conference on Hydrocephalus, HA CONNECT? Recordings of the 19 live streamed sessions are now available! Register as a virtual attendee for $20 to access the 19 recordings!

Please join the Hydrocephalus Association and Dr. Kristopher Kahle, Assistant Professor of Neurosurgery and Pediatrics at Yale School of Medicine, to learn about the new results from his research on genetic causes of congenital (developmental) hydrocephalus.

Earlier this summer, our intern, Emily Lawrence, who was born with hydrocephalus, launched a birthday fundraiser on Facebook and in one month, she was able to raise $750 for HA! Inspired by her passion and dedication, we decided to launch the Birthday Challenge!

HydroDad Bennett Wilson wanted a creative and fun way to raise awareness and funds for hydrocephalus research & programs, so he built a Hydrocephalus Racecar! Learn more about his racecar journey and how you can help support the Hydrocephalus Racing Team at their first race!

In 2015, HA supported Dr. Michael Piper with a $50,000 Innovator Award to study how ependymal cells develop. We are happy to report that this preliminary work recently resulted in Dr. Piper winning a $500,000 grant from the National Health and Medical Research Council of Australia.

A few months ago, I noticed that my balance was deteriorating so I mentioned it to my GP at my annual physical.  He immediately ordered a CT scan and more Physical Therapy.