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Scout O’Donnell: Using Fashion to Help Others Heal
February 14, 2020After being diagnosed with hydrocephalus at 18, Scout O’Donnell found a way to combine her two passions — fashion and finding a cure for hydrocephalus.
Posted In: HA Updates
Get to Know Dr. Bernadette Holdener: HA 2019 Innovator Award Grantee
February 10, 2020In our first installment of our Meet the Innovator Awardees Blog Series, we interview Dr. Bernadette Holdener, one of four scientists who received a Hydrocephalus Association 2019 Innovator Award.
Posted In: HA Updates
Add Your Voice to the My PaTH Story Booth Project
February 4, 2020Add your hydrocephalus story to the MyPaTH Story Booth Project to help researchers better understand the hydrocephalus patient experience.
Posted In: HA Updates
Four Scientists Awarded HA Grants to Deepen Our Understanding about Hydrocephalus
January 27, 2020There is a lot we do not know about how hydrocephalus develops and how to best treat the condition across our many communities. Our 2019 Innovator Award recipients are looking to change that.
Posted In: HA Updates
Study Finds CERTAS™ Plus Programmable Valve Safe from Everyday Magnets
January 14, 2020Can everyday magnets affect programmable shunt valves? A new study found that the CERTAS™ Plus Programmable Valve resisted interference from common household magnets, even at close proximity.
Posted In: HA Updates
An Easy Way to Shop on AmazonSmile!
January 7, 2020Your Amazon mobile app is not able to support HA when your purchase from your phone. But we have a great hack for you…
Posted In: HA Updates
Advocacy Wins for the Hydrocephalus Community
January 2, 2020While impeachment still occupies the headlines, it’s not the only thing that happened this past December in Washington, DC. Amidst all the end-of-year chaos, Congress handed the hydrocephalus community a number of big wins!
Posted In: HA Updates
High School Student Educates Others about Hydrocephalus
January 2, 2020Mauryce Thomas organized an event in Mobile, AL to educate his community about hydrocephalus. The event raised awareness and $1,320 to support HA’s mission!
Posted In: HA Updates
New Ask the Expert Video Series for Adults Living with Hydrocephalus
January 2, 2020Check out our latest Ask the Expert Video Series developed specifically for adults living with hydrocephalus. The series answers some of the most common questions we receive to our support line.
Posted In: HA Updates
James Forrest Vedder Hydrocephalus Research Challenge
December 11, 2019The challenge is made possible through the generosity of Ms. Leslys Vedder, in tribute to her late husband, James Forrest Vedder, PhD, a scholar, archaeologist and physicist.
Posted In: HA Updates
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February 27, 2020Houston Community Network Get-Together at Demeris BBQ!
Come meet new friends, share your stories and learn about local & national hydrocephalus activities and how you can get involved!
March 2, 2020Supporting Individuals Living w/Spina Bifida & Hydrocephalus
FFF’s support group provides platform for children and adults and their families living with Spina Bifida & Hydrocephalus (SBH) to share knowledge and experience, providing them with necessary skills to deal with challenges of SBH.
April 2, 2020In Stitches – A Night of Laughs with Ramy Youssef & Friends
Are your ready to join us for a fantastic evening of cocktails and comedy all while supporting a great cause?
May 2, 2020StrikeOUT Hydrocephalus Play Day: Charlotte Knights vs. Pawtucket Red Sox!
How much fun will it be come together to help a cause that needs some support? Let’s StrikeOUT Hydrocephalus with the Charlotte Knights Baseball team!
June 25, 202016th National Conference on Hydrocephalus
Registration for HA CONNECT is now OPEN!