The 2018 WALK to End Hydrocephalus season is in the books! And what a year it was. Thanks to the Hydrocephalus Association’s wonderful volunteers, 43 WALKS were held across the U.S., with more than 14,000 participants representing over 1,200 teams.

A new paper summarizing the findings from the Hydrocephalus Association’s first-ever Transition Summit was published in the prestigious Journal of Neurosurgery (JNS). The JNS reaches both pediatric and adult providers, all of whom will have crucial roles to play in improving transition.

After struggling with a declining interest in activities that she loved, decreasing mobility, and urinary incontinence, Dorothy Sorlie was finally diagnosed with Normal Pressure Hydrocephalus (NPH). A recent article in the Leader-Telegram detailed her journey.

A study from Yale School of Medicine looked at the personal experiences of people diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH).

On Tuesday, November 6th, voters went to the polls and made some significant changes to the U.S. Congress. Due to the bi-partisan nature of policy issues impacting the hydrocephalus community, this outcome represents both opportunities and challenges moving forward.

The 2018 Vision Dinner was held on Friday, Nov. 2 in New York City. Generously underwritten by Craig and Vicki Brown, benefactors of the Hydrocephalus Association, the evening seeks to raise national attention about hydrocephalus and raise funds to advance hydrocephalus research.  

We’re excited to announce that Brett Weitz, a hydro dad and longtime member of the hydrocephalus community, has been named chair of our Board of Directors.

Nov. 17 is World Prematurity Day, which highlights the health challenges premature babies face at birth and beyond. For us at HA, World Prematurity Day is a way to draw attention to Posthemorrhagic Hydrocephalus (PHH), one of the most insidious forms of hydrocephalus.

The Hydrocephalus Association (HA) is funding the best and brightest. Since 2009, HA has spent $7.8 million on our research programs. Our researchers have then gone on to secure over $19 million in additional funding to continue their innovative work.

The budget bill recently signed by President Trumps protects and increases funding for several crucial hydrocephalus-related research programs.