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The Subjective Experience of Patients Undergoing Shunt Surgery for Idiopathic NPH
December 6, 2018A study from Yale School of Medicine looked at the personal experiences of people diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH). This study measured patient outcomes and documented each patient’s experience through diagnosis, treatment, and recovery in order to guide clinical counseling.
Posted In: HA Updates -
How a Changed Congress Could Impact Hydrocephalus
November 13, 2018On Tuesday, November 6th, voters went to the polls and made some significant changes to the U.S. Congress. Due to the bi-partisan nature of policy issues impacting the hydrocephalus community, this outcome represents both opportunities and challenges moving forward.
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$3 Million Raised for Posthemorrhagic Hydrocephalus!
November 7, 2018The 2018 Vision Dinner was held on Friday, Nov. 2 in New York City. Generously underwritten by Craig and Vicki Brown, benefactors of the Hydrocephalus Association, the evening seeks to raise national attention about hydrocephalus and raise funds to advance hydrocephalus research.
Posted In: HA Updates -
Brett Weitz Named New Board Chair!
November 7, 2018We’re excited to announce that Brett Weitz, a hydro dad and longtime member of the hydrocephalus community, has been named chair of our Board of Directors.
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Honor Your Preemie HydroHero on World Prematurity Day
November 6, 2018Nov. 17 is World Prematurity Day, which highlights the health challenges premature babies face at birth and beyond. For us at HA, World Prematurity Day is a way to draw attention to Posthemorrhagic Hydrocephalus (PHH), one of the most insidious forms of hydrocephalus.
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HA-Funded Researcher Awarded $1.8M NIH Grant
October 9, 2018The Hydrocephalus Association (HA) is funding the best and brightest. Since 2009, HA has spent $7.8 million on our research programs. Our researchers have then gone on to secure over $19 million in additional funding to continue their innovative work.
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Our Advocacy Efforts on Capitol Hill Worked!
October 8, 2018The budget bill recently signed by President Trumps protects and increases funding for several crucial hydrocephalus-related research programs.
Posted In: HA Updates -
Hydrocephalus Without a Safety Net
September 25, 2018I have never known a life without hydrocephalus. For 33 years, that meant I had also never known a life without a shunt.
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Announcing the 2018 Discovery Science Award Grantees!
September 18, 2018The award allows these scientists to expand their research on posthemorrhagic hydrocephalus (PHH).
Posted In: HA Updates -
Hydrocephalus research presented at the international Europhysiology Conference
September 17, 2018Alexandra Hochstetler was one of our ten Young Investigator Travel Award winners at the 2018 HACONNECT. This past weekend, she presented her work at the Europhysiology Conference held in London, United Kingdom!
Posted In: HA Updates
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December 11, 2018Dallas/Fort Worth Let’s Get Virtual!
The Dallas / Fort Worth area is BIG, which can sometimes make it hard to connect in person. But, we know we want to connect. So, please join us for an exciting virtual meet-up!
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December 13, 2018FREE WEBINAR: Planning for the Road Ahead
FREE Webinar! We highly encourage caregivers and family members to attend this informative webinar with their loved one who is living with a chronic and/or neurological condition such as NPH.
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December 15, 2018
Maryland and DC-area NPH Meet Up!
Are you an adult that has been diagnosed with NPH? Or caring for a loved one living with the condition? Join us for a morning chat with Dr. Abhay Moghekar, Johns Hopkins Medicine.