Were pleased to announce the 2020 Hydrocephalus Association Scholarship Award Recipients. HA’s scholarship program was established in 1994 to provide financial assistance to capable and promising teens, young adults, and adults who live with the ongoing challenges and complexities of hydrocephalus.

In addition to celebrating Hydrocephalus Awareness month, the Hydrocephalus Association has been tracking the ins and outs of what’s happening on Capitol Hill. Read our latest advocacy update!

Amanda Harrinauth is a poet, author, life coach and Special Olympics athlete living with hydrocephalus, vision impairment and autism. For Hydrocephalus Awareness Month, she wrote a poem to inspire others. 

Linda Riley has joined the Hydrocephalus Association as the new National Director of Development. Linda brings more than 20 years of fundraising experience to this position.

A new study published in the Journal of Neurosurgery: Pediatrics assessed quality of life and mental wellbeing of both children with hydrocephalus and their caregivers.

September is Hydrocephalus Awareness Month – our chance to bring national attention to the over one million Americans living with hydrocephalus. Let’s make some noise on social media by showing what YOU would do to end hydrocephalus. 

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.

For our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Engin Deniz, one of four scientists who received a 2019 Innovator Award. Through his research, he hopes to determine how cilia, small hair like structures that move CSF, contribute to post-traumatic hydrocephalus.

Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.