I am a college graduate, an advocate and a strong, resilient woman. I am so much more than my hydrocephalus.
adult with hydrocephalus and spina bifida
Driving Research Forward
Improving lives now and funding the breakthrough research of tomorrow.
Invested in research
Additional Federal Grants Awarded
Potential Drug Therapies
Let’s Navigate this together
Trusted resources to help you on your journey.
Have you or a loved one recently been diagnosed with hydrocephalus?
Tools for Daily Life
Learn how to manage the day to day symptoms and challenges you might encounter on your journey with hydrocephalus.
We're here to help! Find the support you need and talk to people who know what you're going through.
Walk with US!
The WALK to End Hydrocephalus is our largest annual fundraising event, raising critical funds for research, advocacy efforts, support and education. Come join the fun and be part of the movement.
We will be WALKing in cities all across the US from August 20th through November 13th. We also have a Virtual WALK for those that cannot attend in person.
Make An Impact
We come together in so many ways — all of us driven by a passion to find a cure and improve the lives of those impacted by hydrocephalus. Whether you participate in a WALK to End Hydrocephalus or join our advocacy efforts, you’re making a difference!
Our community of patients and caregivers is there for you so you can connect, share life experiences, and find hope.
Researchers need input from people living with hydrocephalus in order to ask the right questions and develop treatments.
Connect With Us
When you're ready, let's take the next step together. Stay informed with our monthly newsletter! We'll share inspiring stories, and information about our programs, events, and research.