OUR CAUSES VIEW ALL
-
Parents
Dealing with your child’s hydrocephalus diagnosis can be overwhelming. It’s common to have countless questions that range from learning more about what hydrocephalus is to what one can expect a child’s experience to be across the life spectrum.
$0 Donated -
Teens and Young Adults
If you’re a teen or young adult affected by hydrocephalus, we want you to know that you are not alone. Browse our teen and young adult pages to learn about resources to help you. This is YOUR place for information and empowerment.
$0 Donated -
Adults and Caregivers
A hydrocephalus diagnosis is overwhelming, whether you’re a recently diagnosed adult, someone who’s been living with the condition for many years, or a friend or family member. Here you will find information enabling you to have more control of your life.
$0 Donated -
NPH and Caregivers
A normal pressure hydrocephalus (NPH) diagnosis is often confusing, complex, scary and frustrating. For those living with NPH and their caregivers, staying informed about the condition is essential to managing care.
$0 Donated -
Community Network
It’s important to know that you’re not alone as you deal with hydrocephalus. The Hydrocephalus Association’s Community Network provides localized support, education and empowerment through community.
$0 Donated -
Helpline: Free One-on-One Support
Our support staff shares knowledge that comes from personal experience with hydrocephalus and from talking with people who live with the condition. We are here for you by phone and email. We also provide programs and support services to connect you with peers, volunteers and medical professionals.
$0 Donated
BLOG VIEW ALL
-
The Hydrocephalus Scoop on Capitol Hill December 2020
December 17, 2020October and November have been a super busy time for all three branches of government (Executive, Legislative and Judicial). Here’s our latest summary of what’s been happening on Capitol Hill.
Posted In: HA Updates -
The Use of Lumboperitoneal Shunts in iNPH Patients
December 15, 2020In the United States, the standard treatment for idiopathic Normal Pressure Hydrocephalus (iNPH) patients is a ventriculoperitoneal shunt (VPS). But a new study explores the effectiveness of lumboperitoneal shunts (LPS), which have also been shown to improve iNPH symptoms and are widely used in Japan.
Posted In: HA Updates -
Diana Gray Named Chair of National Health Council Board
December 8, 2020Diana Gray, HA President and CEO, was named Chairperson of the National Health Council (NHC) Board of Directors for 2021. She was elected to the role at the NHC’s annual membership meeting this week.
Posted In: HA Updates -
Changing Treatments: Converting from a Shunt to an ETV for the Treatment of Hydrocephalus
December 7, 2020A recent study published in Neurosurgery looked at the success rate of converting from a shunt to an endoscopic third ventriculostomy (ETV) in pediatric and young adult patients. The study, with lead author Dr. David S. Hersh, retrospectively reviewed patient data from three children’s hospitals in the United States.
Posted In: HA Updates -
Rhaeos CEO Shares Details About Wearable FlowSense Device
December 7, 2020Earlier this year, Rhaeos won MedTech Innovator’s 2020 Global Competition. In a recent conversation with Rhaeos CEO Anna Lisa Somera, Somera discussed the significance of the award and how FlowSense can improve the way hydrocephalus is managed.
Posted In: HA Updates -
Giving Tuesday 2020
December 7, 2020We can’t thank you enough for donating to the Hydrocephalus Association for GivingTuesday. It’s truly an honor to have your support!
Posted In: HA Updates -
Announcing our 2020 Hydrocephalus Association Scholarship Recipients!
October 12, 2020Were pleased to announce the 2020 Hydrocephalus Association Scholarship Award Recipients. HA’s scholarship program was established in 1994 to provide financial assistance to capable and promising teens, young adults, and adults who live with the ongoing challenges and complexities of hydrocephalus.
Posted In: HA Updates -
The Hydrocephalus Scoop on Capitol Hill for September-October 2020
October 6, 2020In addition to celebrating Hydrocephalus Awareness month, the Hydrocephalus Association has been tracking the ins and outs of what’s happening on Capitol Hill. Read our latest advocacy update!
Posted In: HA Updates -
A Poem for HydroWarriors
September 25, 2020Amanda Harrinauth is a poet, author, life coach and Special Olympics athlete living with hydrocephalus, vision impairment and autism. For Hydrocephalus Awareness Month, she wrote a poem to inspire others.
Posted In: HA Updates -
HA Welcomes New National Director of Development
September 22, 2020Linda Riley has joined the Hydrocephalus Association as the new National Director of Development. Linda brings more than 20 years of fundraising experience to this position.
Posted In: HA Updates
EVENTS VIEW ALL
Mon | Tue | Wed | Thu | Fri | Sat | Sun |
---|---|---|---|---|---|---|
1 | 2 | 3 | ||||
4 | 5 | 6 | 7 | 8 | 9 | 10 |
11 | 12 | 13 | 14 | 15 | 16 | 17 |
18 | 19 | 20 | 21 | 22 | 23 | 24 |
25 | 26 | 27 | 28 | 29 | 30 | 31 |
-
Introduction to Mindfulness Course
Back by popular demand — join us for a 6-part virtual course on mindfulness meditation!