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HA Welcomes New National Director of Development
September 22, 2020Linda Riley has joined the Hydrocephalus Association as the new National Director of Development. Linda brings more than 20 years of fundraising experience to this position.
Posted In: HA Updates
Study Explores Quality of Life of Children with Hydrocephalus and Caregivers
September 2, 2020A new study published in the Journal of Neurosurgery: Pediatrics assessed quality of life and mental wellbeing of both children with hydrocephalus and their caregivers.
Posted In: HA Updates
Let’s Get Loud for Hydrocephalus Awareness Month!
August 31, 2020September is Hydrocephalus Awareness Month – our chance to bring national attention to the over one million Americans living with hydrocephalus. Let’s make some noise on social media by showing what YOU would do to end hydrocephalus.
Posted In: HA Updates
The Hydrocephalus Scoop on Capital Hill for August 2020
August 26, 2020Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Posted In: HA Updates
Sophia Gigante: Finding Strength from Within
July 31, 2020Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.
Posted In: HA Updates
Get to Know Dr. Engin Deniz: HA 2019 Innovator Award Grantee
July 27, 2020For our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Engin Deniz, one of four scientists who received a 2019 Innovator Award. Through his research, he hopes to determine how cilia, small hair like structures that move CSF, contribute to post-traumatic hydrocephalus.
Posted In: HA Updates
Dorothy Sorlie: A Teacher’s Unbreakable Spirit
July 21, 2020Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.
Posted In: HA Updates
Staying out of the Hospital: Comparing Hydrocephalus Treatments in the Pediatric Population
July 13, 2020A new Hydrocephalus Clinical Research Network (HCRN) study examined differences in the number of subsequent surgeries a child with hydrocephalus had to undergo after their initial treatment. The study compared a shunt, an endoscopic third ventriculostomy (ETV), and an ETV with chorioid plexus cauterization (ETV-CPC).
Posted In: HA Updates
Over 2,000 People Attend HA’s First-Ever Virtual Conference
July 10, 2020For the first time ever, our National Conference on Hydrocephalus, HA CONNECT, was held entirely online. A record 2,000 people from over 60 countries participated in our virtual sessions and connected through our HA CONNECT mobile app!
Posted In: HA Updates
Brainy Camps and Camp Headstrong are Back with a Twist This Year!
June 9, 2020Camp Head Strong, the summer camp for children and teens living with hydrocephalus, will be going virtual for the first time ever!
Posted In: HA Updates
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September 26, 2020LIVE National WALK to End Hydrocephalus Celebration
Join us for the LIVE National Celebration!
September 26, 2020Columbia WALK to End Hydrocephalus
Join us for our Columbia, S.C. WALK to End Hydrocephalus on Sept. 26!
September 26, 2020National Capital WALK to End Hydrocephalus
Join us for our National Capital virtual WALK to End Hydrocephalus on Sept. 26!
October 7, 2020Introduction to Mindfulness Course
Join us for a virtual course on mindfulness!
October 10, 2020Charlotte WALK To End Hydrocephalus
Join us on October 10, 2020 for our VIRTUAL Charlotte, N.C. WALK to End Hydrocephalus!
October 11, 2020Columbus WALK to End Hydrocephalus
Join us on Oct. 11, 2020 for our VIRTUAL WALK to End Hydrocephalus in Columbus, OH!