HA Blog

2021 WALK to End Hydrocephalus Raises over $1.6 Million

December 6, 2021

Our WALK to End Hydrocephalus program had a successful year, raising over $1.6 million for HA’s research, support, education and advocacy efforts.

Read More

Isabella Advocates for Children in Congress

November 29, 2021

Like many kids living with hydrocephalus, Isabella is a fighter. This year, she brought her fighting spirit to Congress advocating for better healthcare services for children!

Read More
scholarship, hydrocephalus

Announcing our 2021 Hydrocephalus Association Scholarship Recipients!

November 29, 2021

The Hydrocephalus Association (HA) is pleased and honored to announce our 2021 Hydrocephalus Association Scholarship Recipients.

Read More

Fighting for Hydrocephalus Funding in Congress. October Update

November 8, 2021

October has been a busy time for Congress, and the Hydrocephalus Association has been hard at work ensuring that we have a seat at the table. We have an exciting new bill introduced and an update on congressional funding for hydrocephalus research. 

Read More

Research 101: Generalizability

November 5, 2021

The concept of Generalizability in research studies is especially important for individuals living with hydrocephalus because there are so many different causes.

Read More

Timeline for a Successful Transition to Adult Care

October 21, 2021

Mapping out a path to taking over your medical care once you are of legal age and/or ready to move away from home will help you have a successful transition into the adult medical world.

Read More

Congressman Mike Levin Joins Congressional Hydrocephalus Caucus

October 20, 2021

Caucus helps families impacted by a brain condition that has no cure. Rep. Mike Levin (CA-49) has joined…

Read More

Congresswoman Cindy Axne Joins Congressional Hydrocephalus Caucus

October 20, 2021

Caucus helps find solutions for the leading cause of brain surgery in children. Rep. Cindy Axne (IA-3) has…

Read More
Complications of ETV

The Importance of a Support System

October 19, 2021

Living with hydrocephalus can feel overwhelming at times. That’s why building a strong support system is so important. Our team of trained professionals is here to help! Our staff will listen to your concerns and connect you with helpful resources.

Read More

The Hydrocephalus Scoop on Capitol Hill – Sept/Oct 2021

October 4, 2021

The Hydrocephalus Association has been busy protecting hydrocephalus-related research dollars in Congress, and working with members Congress to recognize National Hydrocephalus Awareness Month.

Read More

Congressman Lloyd Doggett Recognizes September as Hydrocephalus Awareness Month

September 29, 2021

Raises awareness of the leading cause of brain surgery in children. There are over 1…

Read More

Local Mom on a Mission to Find a Cure for Son’s Brain Disorder

September 28, 2021

Will take part in Cincinnati WALK to End Hydrocephalus on Oct. 3rd Chase Parker Lorenzo…

Read More

Massachusetts Governor Names September Hydrocephalus Awareness Month

September 14, 2021

Hydrocephalus is the leading cause of brain surgery in children. Every 15 minutes, a brain…

Read More

Make Some Noise for Hydrocephalus Awareness Month!

August 13, 2021

September is Hydrocephalus Awareness Month (HAM), our chance to shine a light on hydrocephalus and how it impacts our community!

Read More

Announcement About Anuncia ReFlowTM System Mini

June 15, 2021

Earlier this year, Anuncia Inc., a medical device company focused on the development of treatment devices for hydrocephalus and other cerebrospinal fluid (CSF) disorders, announced that the ReFlowTM System Mini received the U.S Food and Drug Administration (FDA) Breakthrough Device Designation. The ReFlowTM System Mini is the next generation version of the commercial ReFlowTM Ventricular System.

Read More

In the NICU: Preparing Families for Life with Hydrocephalus

May 25, 2021

A recent study explored how neonatal intensive care units (NICUs) can better prepare families that receive a diagnosis of posthemorrhagic hydrocephalus  of prematurity (PHHP).

Read More

9 Foods to Nourish Brain Health

May 4, 2021

After having brain surgery, eating nutrient-dense foods that support your brain can promote healing. Learn more about the 9 foods that can help nourish brain health.

Read More

Hydrocephalus and Independence

May 4, 2021

By Madeleine Darowiche, HA Volunteer So, you’re considering living on your own for the first…

Read More

How to Reconnect and Trust your Body

April 29, 2021

In this blog, Bethany Holmes, Certified Integrative Health Coach, and Reiki Practitioner discusses how to reconnect, trust, love, and heal your body after trauma.

Read More

Congressmen Lloyd Doggett and Chris Smith Join Forces to Raise Awareness About Hydrocephalus

April 14, 2021

Representatives Lloyd Doggett (D-TX) and Chris Smith (R-NJ) have joined forces to champion two critical…

Read More