HA Blog
2021 WALK to End Hydrocephalus Raises over $1.6 Million
Our WALK to End Hydrocephalus program had a successful year, raising over $1.6 million for HA’s research, support, education and advocacy efforts.
Read MoreIsabella Advocates for Children in Congress
Like many kids living with hydrocephalus, Isabella is a fighter. This year, she brought her fighting spirit to Congress advocating for better healthcare services for children!
Read MoreAnnouncing our 2021 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2021 Hydrocephalus Association Scholarship Recipients.
Read MoreFighting for Hydrocephalus Funding in Congress. October Update
October has been a busy time for Congress, and the Hydrocephalus Association has been hard at work ensuring that we have a seat at the table. We have an exciting new bill introduced and an update on congressional funding for hydrocephalus research.
Read MoreResearch 101: Generalizability
The concept of Generalizability in research studies is especially important for individuals living with hydrocephalus because there are so many different causes.
Read MoreCongressman Mike Levin Joins Congressional Hydrocephalus Caucus
Caucus helps families impacted by a brain condition that has no cure. Rep. Mike Levin (CA-49) has joined…
Read MoreCongresswoman Cindy Axne Joins Congressional Hydrocephalus Caucus
Caucus helps find solutions for the leading cause of brain surgery in children. Rep. Cindy Axne (IA-3) has…
Read MoreThe Hydrocephalus Scoop on Capitol Hill – Sept/Oct 2021
The Hydrocephalus Association has been busy protecting hydrocephalus-related research dollars in Congress, and working with members Congress to recognize National Hydrocephalus Awareness Month.
Read MoreCongressman Lloyd Doggett Recognizes September as Hydrocephalus Awareness Month
Raises awareness of the leading cause of brain surgery in children. There are over 1…
Read MoreLocal Mom on a Mission to Find a Cure for Son’s Brain Disorder
Will take part in Cincinnati WALK to End Hydrocephalus on Oct. 3rd Chase Parker Lorenzo…
Read MoreMassachusetts Governor Names September Hydrocephalus Awareness Month
Hydrocephalus is the leading cause of brain surgery in children. Every 15 minutes, a brain…
Read MoreMake Some Noise for Hydrocephalus Awareness Month!
September is Hydrocephalus Awareness Month (HAM), our chance to shine a light on hydrocephalus and how it impacts our community!
Read MoreAnnouncement About Anuncia ReFlowTM System Mini
Earlier this year, Anuncia Inc., a medical device company focused on the development of treatment devices for hydrocephalus and other cerebrospinal fluid (CSF) disorders, announced that the ReFlowTM System Mini received the U.S Food and Drug Administration (FDA) Breakthrough Device Designation. The ReFlowTM System Mini is the next generation version of the commercial ReFlowTM Ventricular System.
Read MoreIn the NICU: Preparing Families for Life with Hydrocephalus
A recent study explored how neonatal intensive care units (NICUs) can better prepare families that receive a diagnosis of posthemorrhagic hydrocephalus of prematurity (PHHP).
Read MoreHydrocephalus and Independence
By Madeleine Darowiche, HA Volunteer So, you’re considering living on your own for the first…
Read MoreCongressmen Lloyd Doggett and Chris Smith Join Forces to Raise Awareness About Hydrocephalus
Representatives Lloyd Doggett (D-TX) and Chris Smith (R-NJ) have joined forces to champion two critical…
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