Life Transitions

As an adult with hydrocephalus, there will be many major milestones in your life where hydrocephalus will be a factor in the decisions you make. Embrace these milestones fully informed and with confidence.


There are a number of milestones in your life where hydrocephalus will play a role in your planning and the decisions you make. Exciting milestones like leaving for college, getting married, deciding to have children, getting your first job or changing jobs, and financial planning for everyday life and retirement, to name a few. Explore the different milestones detailed here to make sure you're entering this next exciting time in your life fully informed and with the necessary pieces in place.

Transitioning from Pediatric to Adult Care

As adolescents become young adults, they typically must leave the pediatric health care system for the adult health care system, a process called health care transition. They will have new physicians and practitioners in a setting that is very different from the pediatric system. Planning for transition is vital, but this process can be complex and overwhelming.

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High School

Are you starting high school? This is a very exciting time in one’s life, but for individuals living with a complex medical condition like hydrocephalus, it can also be a scary and intimidating step to take.

Life and tackling high school can be an overwhelming and difficult time for any teenager. But throw hydrocephalus into the mix, and you are faced with challenges the average student doesn’t have to think about. Not only do teenagers have to manage the basic social and academic struggles, but also deal with the daunting task of keeping their health in check. Coping with hydrocephalus makes it even trickier to manage all the demands of your day-to-day life.

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College is an exciting, intimidating, and emotionally charged event. College opens the door to new opportunities and offers personal development, growth, and independence. Transitioning from high school to college can be difficult for anyone, however, when you have hydrocephalus extra challenges are thrown into the mix. In addition to adjusting to the regular aspects of college life, you also need to learn how to manage your condition. We believe with proper management and by creating a plan you can still go on to have a successful, fun-filled college experience.

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Transitioning to Independence

Living well with hydrocephalus is no longer an impossible dream. While many challenges remain, along with associated conditions that may affect quality of life, it is now reasonable to think that young adults diagnosed in infancy or childhood with hydrocephalus can live full, productive, happy, and satisfying lives.

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