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What is Hydrocephalus
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Research
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What is Hydrocephalus
- - - About Hydrocephalus
    - Learn about hydrocephalus, a chronic, neurological condition marked by an excess accumulation of fluid in the brain, that affects over 1 million Americans.
    - About Hydrocephalus
  - - Types and Causes
    - Hydrocephalus is a complex, chronic condition that can develop for a variety of reasons, sometimes as part of another condition. Learn about the different types and causes of this condition.
    - Types and Causes
  - - Newly Diagnosed
    - Have you or a loved one recently been diagnosed with hydrocephalus? Whether you are living with hydrocephalus or are a caregiver – we’re here to help you on this journey. We developed guides and next steps tailored to specific age groups and life stages.
    - Newly Diagnosed
Treatments
- - - Treatments
    - While there is currently no known way to prevent or cure hydrocephalus, there are three life-saving treatment options that require brain surgery.
    - How to Treat Hydrocephalus
      - Shunt Systems
      - ETV and ETV with CPC
  - - Preparing for Surgery
    - The thought of having to undergo brain surgery is frightening and can be physically and emotionally taxing. We are here to help.
    - Preparing for Surgery
      - What to Expect with Hydrocephalus Shunt Surgery
      - What to Expect With ETV Surgery
  - - Treatment Complications
    - It is imperative to understand the signs and symptoms of a shunt or ETV failure. Things can change quickly therefore it’s critical to be prepared.
    - Treatment Complications
      - Complications of Shunt Systems
      - ETV Complications
Research
- - - About Our Research
    - Our research is focused on improving lives now and funding the breakthrough research of tomorrow.
    - About Our Research
  - - Get Involved In Research
    - Researchers may have the scientific expertise, but they need input from people living with hydrocephalus in order to ask the right questions and develop treatments that will benefit our entire community.
    - Get Involved in Research
  - - Research We Fund
    - By connecting basic, translational, and clinical researchers, HA is accelerating hydrocephalus research and working to fulfill our mission
    - Research We Fund
      - The Clinical Networks
      - Leveraging Your Research Dollars
  - - For Researchers
    - Our programs are designed to accelerate the movement of new therapies from bench to bedside. HA will continue to push promising research forward.
    - For Researchers
      - Funding Opportunities
Daily Life
- - - Caring for Your Child
    - Gain the tools and resources to help you advocate for your child, make informed decisions, and manage your child’s daily needs.
    - Caring for Your Child
  - - Life Transitions
    - There are many milestones where hydrocephalus will play a role in your planning and the decisions you make. Embrace these milestones fully informed and with confidence.
    - Life Transitions
  - - Daily Life
    - Learn how to manage the day to day symptoms and associated problems you might encounter on your journey with hydrocephalus.
    - Daily Life
  - - Living with NPH
    - A diagnosis of NPH can be complex and frustrating. Here you’ll find resources that will enable you to make informed decisions and have more control of your life.
    - Life with NPH
Help & Support
- - - Resources
    - HA is your trusted source for information at every stage of life. We offer resources that provide life-changing support to people living with hydrocephalus and their loved ones.
    - Resources
  - - Get Support
    - HA is here to help. We are eager to guide you to the support you need for your particular situation.
    - Get Support
  - - Programs & Services
    - HA offers specialized programs and services to support anyone impacted by hydrocephalus at every stage of life.
    - Programs and Services
  - - Scholarship Programs
    - HA’s Scholarship Program provides financial assistance to capable and promising young adults who live with the ongoing challenges and complexities of hydrocephalus.
    - Scholarship Program
Get Involved
- - - Give
    - Help us change the future of hydrocephalus by supporting the Hydrocephalus Association!
    - Give
  - - Fundraise
    - Help support our mission by registering for a WALK to End Hydrocephalus near you, sponsoring our WALK program, or starting your own fundraiser!
    - Fundraise
  - - Participate
    - Take an active role in supporting our mission and connect with others impacted by hydrocephalus. Explore the many ways you can get involved!
    - Participate
  - - Advocate
    - HA is the leading voice for the hydrocephalus community on Capitol Hill. Join our advocacy efforts.
    - Advocate

Teacher’s Guide: Early Elementary (K-2nd)

By JennBechard / March 26, 2021

Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.

My Thoughts for Teachers

By JennBechard / March 3, 2021

Sarah Kell, an adult living with hydrocephalus, offers thoughts for teachers when working with a child with hydrocephalus.

The Hydrocephalus Association is a registered 501(c)(3) non-profit organization. Tax ID: 94-3000301.

Information on this website may be reproduced provided a full citation of the source is given.

Hydrocephalus Association
4340 East West Highway, Suite 905
Bethesda, MD 20814-4447

301-202-3811

+888-598-3789

Fax: 301-202-3813

info@hydroassoc.org

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The mission of the Hydrocephalus Association is to find a cure for hydrocephalus and improve the lives of those impacted by the condition. We will accomplish this by collaborating with patients, caregivers, researchers, and industry, raising awareness, and funding innovative, high-impact research to prevent, treat and ultimately cure hydrocephalus.

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