I have NPH

Tina

Diagnosed at 63

Tina

Story Written by Husband

By Sierra Smith October 31, 2025

Tina was diagnosed with NPH after months of unexplained changes and declining mobility. Now, her husband shares their ongoing journey of care and hope.

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John, normal pressure hydrocephalus, NPH

Diagnosed at 75

John

Story Written by Wife

By JennBechard September 25, 2025

John was diagnosed with normal pressure hydrocephalus (NPH) at the age of 75. Sukey, John’s wife, shares his journey.

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Barkley

Diagnosed at 64

Barkley

Story Written by Self

By Sierra Smith August 22, 2025

Barkley’s story reflects perseverance, navigating life with normal pressure hydrocephalus, shunt surgeries, and setbacks with courage and hope.

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Carol

Diagnosed at 73

Carol

Story Written by Self

By Sierra Smith August 18, 2025

Carol shares her journey with normal pressure hydrocephalus, from sudden memory loss to regaining independence after life-changing shunt surgery.

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Karen

Diagnosed at 75

Karen

Story Written by Self

By Sierra Smith August 18, 2025

Karen went from struggling to walk to living well with NPH after shunt surgery—and now she’s advocating to raise awareness of hydrocephalus.

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Diagnosed at 70

Harry

Story Written by Self

By Sierra Smith April 4, 2025

Misdiagnosed with Parkinson’s, Harry fought for the right diagnosis—NPH. Now, he’s rebuilding his life with therapy, community, and renewed independence.

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Diane, NPH

Diagnosed at 70

Diane

Story Written by Self

By Sierra Smith January 7, 2025

At 70 years old, Diane was diagnosed with NPH after struggles with falls and incontinence. Following ventriculoperitoneal (VP) shunt surgery, she has made steady progress, moving from a walker to a cane, supported by her husband Alan and family as she embraces life’s challenges and small victories.

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Olga

Diagnosed at 62

Olga

Story Written by Self

By JennBechard April 5, 2024

Olga confronted unexpected health hurdles at 62. From navigating unexplained falls to advocating for her treatment, her story embodies resilience.

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Evelyn

Diagnosed at 67

Evelyn

Story Written by Author/Self

By JennBechard July 17, 2023

Evelyn shares how the surgical placement of a shunt for NPH transformed her life.

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Mira

Diagnosed at 79

Mira

Story Written by Author/Self

By JennBechard March 28, 2023

Mira was diagnosed with NPH at the age of 79. She believes in early detection of hydrocephalus.

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Diagnosed at 62

Kim

Story Written by Author/Self

By Ines Schlegel January 19, 2023

Kim was diagnosed with normal pressure hydrocephalus (NPH) at the age of 62.

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Diagnosed at 66

Trish

Story Written by Author/Self

By Ines Schlegel August 17, 2022

Trish was diagnosed with NPH and had shunt surgery. Thanks to that and several kinds of therapy, Trish is now back to doing what she loves.

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Diagnosed at 34

Gary

Story Written by Author/Self

By Liz June 8, 2022

Gary has been living with NPH for over 40 years. He hopes the information he offers is helpful to someone that is just learning about the condition.

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Diagnosed at 77

Dorothy

Story Written by Author/Self

By Liz June 8, 2022

Dorothy’s goal is to help others find an accurate NPH diagnosis and treatment to avoid what she, and so many, have experienced.

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Share Your Hydrocephalus Story

Merlin

Story Written by Author/Self

By Amanda Garzon September 22, 2015

Merlin was diagnosed with normal pressure hydrocephalus (NPH). She is a retired international flight attendant.

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