Find a Community Network


It’s important to know that you’re not alone as you deal with hydrocephalus. The Hydrocephalus Association’s Community Networks, also known as support groups, provide localized support, education, and empowerment through the community. Our network hosts educational events, support group meetings, and other gatherings that enable individuals and families to connect.

We encourage you to explore the resources available in your area. Be informed and stay connected!
Our Community Network is vital to the continued strength of the Association. If there’s not a Community Network in your area, and you’re interested in learning more please contact


Online Network State City/Market Category Contact
AK Anchorage All Ages Kendra Chavez
AL Birmingham Online
AR Northwest All Ages Kipp Coco
AZ Phoenix All Ages Chanda McRoberts
CA Los Angeles Online
Ventura All Ages Tony and Lauren Napoli
CO Denver Online
Facebook CT Hartford All Ages Tracy Taback
Facebook DC Washington All Ages Amanda Garzon & Susan Fiorella
Facebook DE Middletown All Ages Darlene Turner
Facebook FL South All Ages Tiffany Everett
Central Online
Miami All Ages Suany Ortiz
Facebook GA Atlanta All Ages Larissa Olivieri
Facebook  IL Chicago All Ages Felicity Gorham
Facebook IN Indianapolis All Ages Sarah McClellan
Facebook IA Online
Facebook KS Online
Facebook KY Online
Facebook LA Online
Facebook MA Boston All Ages Jennifer Miles & Sue Wiegers
Facebook MD Baltimore All Ages Sara Curran-Kellogg
Facebook ME Portland All Ages Kristen Melanson
Facebook MI Detroit Online  Dan Naragon
Facebook MN Minneapolis Pediatric & Adolescent Jennifer Bulthuis
Facebook MO St. Louis All Ages Edde Morgan
Facebook NC Charlotte All Ages Jennifer Acheson & Margaret Marshall
Facebook ND Fargo (& Moorhead, MN) All Ages Briana Scearcy
NE Omaha Online
Facebook NJ Jersey Shore All Ages Carly Weisman, Dana Weisman, Kristin Huston, and Dorothy Walsh-Calabro
Facebook North New Jersey NPH Trish Bogucki
Facebook NY Western All Ages Toddie Rogers
Long Island All Ages Mia Padron & Jackie Davidson
Facebook New York City All Ages Elana Schwartz & Sarah Delahousse
Facebook OH Cleveland All Ages  Amber Frost
Facebook OK Oklahoma City All Ages Amy Hendrix and Jessica Walton
Facebook OR Portland (& Vancouver, WA) Online
Facebook PA Pittsburgh Online
Facebook Eastern All Ages Sierra Smith
Facebook RI Providence Online Jessica Young
Facebook SC Columbia All Ages
Charleston All Ages Laci Robinson & Lisa Robinson
Facebook SD Sioux Falls Online
Facebook TN Chattanooga All Ages Chara McLaughen
Memphis Online
Facebook TX Dallas All Ages Drew Null
Houston Pediatric/Adolescent Kelly Bruen
Facebook UT Salt Lake City All Ages Kelly Varga
Facebook VA Richmond All Ages Kelly Brandenburg-Westcott
Facebook  WA Seattle Pediatric Lori Poliski
Facebook Eastern WA All Ages Katie Reich
Facebook  WI Milwaukee Online
Facebook La Crosse Online Toni Travline
Facebook U.S. Military Members & Family Online Deborah Norris
Facebook Red de Apoyo Para la Hidrocefalia Online Sukanty Oliva
Facebook National Young Adults (Age 20s) Online Lauren Eng, Suany Ortiz, Genesis Espaillat
NIGERIA Lagos Children & Families with Hydrocephalus & Spina Bifida Afolabi Fajemilo Festus Fajemilo Foundation