Find a Community Network

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    It’s important to know that you’re not alone as you deal with hydrocephalus. The Hydrocephalus Association’s Community Networks, also known as support groups, provide localized support, education, and empowerment through the community. Our networks host in-person and virtual educational events, networking opportunities, and other social gatherings that enable individuals and families to connect.


    Virtual Meet-ups

    Adults with Hydrocephalus Meet-Up (DC,MD,VA,PA,DE,NJ)
    Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

    When:
    Every Saturday
    Contact: Sierra Smith and Sara Curran-Kellogg
    Adults with Hydrocephalus Meet-Up (WA, OR, ID, CA, NV, UT, NM, AZ)
    Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

    When:
    1st Friday of the month
    Contact: Kelly Varga
    Adults with Hydrocephalus Meet-Up (FL, GA, AL, SC, MS)
    Lively and engaging conversation! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the hydrocephalus journey do.

    When:
    4th Sunday of the month
    Contact: Jessica Coffaro
    Teens Hang-Out
    Come meet other teens with the condition! We’ll hang-out, maybe play an icebreaker game, talk, and hopefully make some new friends.

    When:
    1st Sunday of the month
    Contact: Olivia Maccoux and Tomas Rodriguez
    Young Adults in their 20s Meet-Up
    Come hang out with us and meet other young adults in their 20s living with hydrocephalus. We will have fun intros, icebreakers, and conversation. Let’s get to know each other!

    When:
    Every Saturday
    Contact: info@hydroassoc.org
    Dallas NPH Meet-Up
    Join us for an NPH Community Network get together! We all need to see old friends, new faces, and have some fun with a community that knows us in a way that only those living the NPH journey do. We welcome all those living with NPH in the State of Texas and surrounding states!

    When:
    3rd Wednesday of the month
    Contact: Gary Chaffee
    Parents Supporting Parents of Adult Children with IDD
    OPEN TO all parents of adults living with hydrocephalus and intellectual and developmental disabilities. Our community is diverse in the many ways and degrees that hydrocephalus impacts our loved ones. For those of us supporting children who are adults with intellectual disability (ID), physical disability, and/or learning challenges (LD), the road can be challenging and lonely. Questions of managing their care, self-advocacy, independent living, and finding success in the workforce all loom large. Join other parents on a similar journey for connection and great discussion.

    When:
    4th Wednesday of the month
    Contact: Jackie Mullock
    Flourishing in Mid-Life: Group for Women Age 40- 59!
    Hydrocephalus is a complex and unpredictable condition that requires lifelong management. For women in particular, middle-age can impact us emotionally, socially, physically, relationally, and professionally in combination with managing the day to day challenges of living with a chronic condition. Do you have questions about how hydrocephalus impacts you as you age? Join us for a chance to connect with other women who share similar experiences. This group will be a place to learn, share, and support other women ages 40- 59 navigating the journey of hydrocephalus and mid-life.

    When:
    4th Thursday of the month
    Contact: info@hydroassoc.org

    Local Community Networks

    We encourage you to explore the resources available in your area. Be informed and stay connected!

    Online Network State City/Market Category Contact
    AK Anchorage Online info@hydroassoc.org
    AL Birmingham Online info@hydroassoc.org
    AR Northwest All Ages Kipp Coco
    AZ Phoenix All Ages Chanda McRoberts
    CA Los Angeles Online info@hydroassoc.org
    Ventura All Ages Tony and Lauren Napoli
    CO Denver Online info@hydroassoc.org
    Facebook CT Hartford All Ages Tracy Taback
    Facebook DC Washington All Ages Amanda Garzon & Susan Fiorella
    Facebook DE Middletown All Ages Darlene Turner
    Facebook FL South All Ages Tiffany Everett
    Central Online info@hydroassoc.org
    Miami All Ages Suany Ortiz
    Facebook GA Atlanta Online info@hydroassoc.org
    Facebook  IL Chicago All Ages Felicity Gorham
    Facebook IN Indianapolis All Ages Sarah McClellan
    Facebook IA Online info@hydroassoc.org
    Facebook KS Online info@hydroassoc.org
    Facebook KY Online info@hydroassoc.org
    Facebook LA Online info@hydroassoc.org
    Facebook MA Boston All Ages Jennifer Miles & Sue Wiegers
    Facebook MD Baltimore All Ages Sara Curran-Kellogg
    Facebook ME Portland All Ages Kristen Melanson
    Facebook MI Detroit Online  info@hydroassoc.org
    Facebook MN Minneapolis Pediatric & Adolescent Jennifer Bulthuis
    Facebook MO St. Louis Online info@hydroassoc.org
    Facebook NC Charlotte All Ages Margaret Marshall
    Facebook ND Fargo (& Moorhead, MN) All Ages Briana Scearcy
    NE Omaha All Ages Crystal McLaughlin
    Facebook NJ Jersey Shore All Ages Carly Weisman, Dana Weisman, Kristin Huston, and Dorothy Walsh-Calabro
    Facebook North New Jersey NPH Trish Bogucki
    Facebook NY Western All Ages Toddie Rogers
    Long Island All Ages Mia Padron & Jackie Davidson
    Facebook New York City All Ages Elana Schwartz & Sarah Delahousse
    Facebook OH Cleveland Online  info@hydroassoc.org
    Facebook OK Oklahoma City All Ages Amy Hendrix and Jessica Walton
    Facebook OR Portland (& Vancouver, WA) Online info@hydroassoc.org
    Facebook PA Pittsburgh Online info@hydroassoc.org
    Facebook Eastern All Ages Sierra Smith & Jackie Mullock
    Facebook RI Providence Online Jessica Young
    Facebook SC Columbia All Ages info@hydroassoc.org
    Charleston All Ages Laci Robinson & Lisa Robinson
    Facebook SD Sioux Falls Online info@hydroassoc.org
    Facebook TN Chattanooga Online info@hydroassoc.org
    Memphis Online info@hydroassoc.org
    Facebook TX Dallas All Ages Drew Null
    Dallas NPH Gary Chaffee
    Houston Pediatric/Adolescent Kelly Bruen
    Facebook UT Salt Lake City All Ages Kelly Varga
    Facebook VA Richmond All Ages Kelly Brandenburg-Westcott
    Facebook  WA Seattle Online info@hydroassoc.org
    Eastern WA Online info@hydroassoc.org
    Facebook  WI Milwaukee Online info@hydroassoc.org
    La Crosse Online Toni Travline
    Facebook U.S. Military Members & Family Online Deborah Norris
    Facebook Red de Apoyo Para la Hidrocefalia Online Sukanty Oliva
    Facebook National Young Adults (Age 20s) Online Lauren Eng, Suany Ortiz, Genesis Espaillat
    Facebook Flourishing in Mid-Life: Women Age 40- 59 Hydrocephalus Association Group Online Felicity Gorham & Elana Schwartz (Group Lead: Patricia Jillson)
    NIGERIA Lagos Children & Families with Hydrocephalus & Spina Bifida Afolabi Fajemilo Festus Fajemilo Foundation