Find a Community Network
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It’s important to know that you’re not alone as you deal with hydrocephalus. The Hydrocephalus Association’s Community Network provides localized support, education, and empowerment through the community. Our network hosts educational events, support group meetings and other gatherings that enable individuals and families to connect.
We encourage you to explore the resources available in your area. Be informed and stay connected!
Our Community Network is vital to the continued strength of the Association. If there’s not a Community Network in your area, and you’re interested in learning more please contact info@hydroassoc.org
| Online Network | State | City/Market | Category | Contact | |||||
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AK | Anchorage | All Ages | Kendra Chavez | |||||
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AL | Birmingham | Online | info@hydroassoc.org | |||||
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AR | Northwest | All Ages | Kipp Coco | |||||
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AZ | Phoenix | All Ages | Chanda McRoberts | |||||
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CA | Los Angeles | Online | info@hydroassoc.org | |||||
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Ventura | All Ages | Tony and Lauren Napoli | ||||||
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CO | Denver | Online | info@hydroassoc.org | |||||
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CT | Hartford | All Ages | Tracy Taback | |||||
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DC | Washington | All Ages | Amanda Garzon | |||||
| Susan Fiorella | |||||||||
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DE | Middletown | All Ages | Darlene Turner | |||||
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FL | South | All Ages | Tiffany Everett | |||||
| Central | Online | info@hydroassoc.org | |||||||
| Miami | All Ages | Suany Ortiz | |||||||
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GA | Atlanta | All Ages | Larissa Olivieri | |||||
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IL | Chicago | All Ages | Felicity Gorham | |||||
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IN | Indianapolis | All Ages | Sarah McClellan | |||||
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IA | Online | info@hydroassoc.org | ||||||
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KS | Online | info@hydroassoc.org | ||||||
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KY | Online | info@hydroassoc.org | ||||||
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LA | Online | info@hydroassoc.org | ||||||
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MA | Boston | All Ages | Jennifer Miles & Sue Wiegers | |||||
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MD | Baltimore | All Ages | Sara Curran-Kellogg | |||||
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ME | Portland | All Ages | Kristen Melanson | |||||
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MI | Detroit | All Ages | Dan Naragon | |||||
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MN | Minneapolis | Pediatric & Adolescent | Jennifer Bulthuis | |||||
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MO | St. Louis | All Ages | Edde Morgan | |||||
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NC | Charlotte | All Ages | Jennifer Acheson & Margaret Marshall | |||||
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ND | Fargo (& Moorhead, MN) | All Ages | Briana Scearcy | |||||
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NJ | Jersey Shore | All Ages | Carly Weisman, Dana Weisman, Kristin Huston, and Dorothy Walsh-Calabro | |||||
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North New Jersey | NPH | Trish Bogucki | ||||||
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NY | Western | All Ages | Toddie Rogers | |||||
| Long Island | All Ages | Mia Padron & Jackie Davidson | |||||||
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New York City | All Ages | Elana Schwartz & Sarah Delahousse | ||||||
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OH | Cleveland | All Ages | Amber Frost | |||||
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OK | Oklahoma City | All Ages | Amy Hendrix and Jessica Walton | |||||
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OR | Portland (& Vancouver, WA) | Online | info@hydroassoc.org | |||||
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PA | Pittsburgh | Online | info@hydroassoc.org | |||||
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Eastern | All Ages | Sierra Smith | ||||||
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RI | Providence | Online | Jessica Young | |||||
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SC | Columbia | All Ages | info@hydroassoc.org | |||||
| Charleston | All Ages | Laci Robinson & Lisa Robinson | |||||||
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SD | Sioux Falls | Online | info@hydroassoc.org | |||||
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TN | Chattanooga | All Ages | Chara McLaughen | |||||
| Memphis | Online | info@hydroassoc.org | |||||||
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TX | Dallas | All Ages | Drew Null | |||||
| Houston | Pediatric/Adolescent | Jamie Wright | |||||||
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UT | Salt Lake City | All Ages | Kelly Varga | |||||
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VA | Richmond | All Ages | Kelly Brandenburg-Westcott | |||||
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WA | Seattle | Pediatric | Lori Poliski Seattle Support Group Website |
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Eastern WA | All Ages | Katie Reich | ||||||
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WI | Milwaukee | Online | info@hydroassoc.org | |||||
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La Crosse | Online | Toni Travline | ||||||
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U.S. Military Members & Family | Online | Deborah Norris | ||||||
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Red de Apoyo Para la Hidrocefalia | Online | Sukanty Oliva | ||||||
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National Young Adults (Age 20s) | Online | Lauren Eng, Suany Ortiz, Genesis Espaillat | ||||||
| NIGERIA | Lagos | Children & Families with Hydrocephalus & Spina Bifida | Afolabi Fajemilo Festus Fajemilo Foundation | ||||||