I have hydrocephalus

Sophia was born with hydrocephalus and faced lifelong health challenges. Now a fitness coach and author, she inspires others to overcome and thrive.

Born with hydrocephalus, Gaelle has faced countless surgeries and setbacks, yet continues to inspire others through her strength and optimism.

Scott’s journey with hydrocephalus is one of strength and perseverance—overcoming paralysis and finding purpose in helping others heal.

Lindsay was diagnosed with hydrocephalus before birth. After multiple surgeries and vision loss, she found purpose teaching students with visual impairments.

Lilien was diagnosed with hydrocephalus at 3 months old and has undergone 11 surgeries. Now 21, she’s thriving in her third year of medical school in Austria.

Callie refuses to let hydrocephalus or seizures stop her. This fall, she begins her journey toward a Theater Arts degree and her dream career.

Courtney shares her journey with acquired hydrocephalus after a TBI, inspiring hope and raising awareness for this lifelong condition.

Kunle was born with hydrocephalus in Nigeria. Despite barriers to care and years of hardship, he found his voice as a writer, advocate, and changemaker.

Ryan lived most of his life unaware he had hydrocephalus. After years of misdiagnoses, one neurosurgeon’s insight saved his life and changed his story.

Delrina was diagnosed with hydrocephalus at age 2. Despite multiple surgeries and daily headaches, she’s grown into a leader, advocate, and lifelong learner.

Diagnosed with hydrocephalus at 8 months, Margie defied the odds. Now 32, she climbs mountains, hosts a podcast, and proves she’s more than able.

Alia, born with hydrocephalus, endured years of complex surgeries. With faith and family by her side, she’s overcome the odds and continues to inspire.

Diagnosed with congenital hydrocephalus before birth, Jessica has had over 150 surgeries, but found strength and purpose through volunteering and advocacy.

From overcoming medical hurdles in Brazil to pursuing a degree in medicine, Marcio’s hydrocephalus journey is one of resilience, perseverance, and hope.

Diagnosed at 8, Janay has endured 200+ shunt revisions. Now, she’s advocating, supporting others, and refusing to let hydrocephalus define her.

Diagnosed with hydrocephalus at four months old, Sarah has faced surgeries and challenges. Now a mother, she embraces each day with strength and purpose.

Despite enduring 15 brain surgeries and life-threatening complications, Ayana shares her story to inspire hope and strength in others on the hydrocephalus journey.

Born in the late 1960s, Bill faced early challenges with hydrocephalus but went on to earn a master’s degree, teach, and become a parent, grateful for his stability while recognizing every journey is unique.