I have hydrocephalus

Joseph was diagnosed with hydrocephalus in infancy and continues to pursue his goals in education, work, and family life while navigating its challenges.

Nancy was born with hydrocephalus and spina bifida and continues to use her story to challenge stereotypes, raise awareness, and inspire others.

Zoe was diagnosed with congenital hydrocephalus in utero and uses her art, writing, and filmmaking to raise awareness and inspire others.

Hilda-Ann was diagnosed with hydrocephalus in infancy and has turned a life of challenges into a journey of resilience, advocacy, and purpose.

Laura was diagnosed with hydrocephalus caused by Dandy-Walker syndrome and has turned lifelong challenges into resilience, advocacy, and hope.

Syreniti was born with hydrocephalus and defied expectations, using her journey to fuel her passion for helping others.

Angel was diagnosed with hydrocephalus after years without answers and has spent decades living fully, finding joy in family and grandchildren

Kyle navigated hydrocephalus and constant surgeries while in medical school, transforming patient experience into a career in academic medicine.

Sophia was born with hydrocephalus and faced lifelong health challenges. Now a fitness coach and author, she inspires others to overcome and thrive.

Born with hydrocephalus, Gaelle has faced countless surgeries and setbacks, yet continues to inspire others through her strength and optimism.

Scott’s journey with hydrocephalus is one of strength and perseverance—overcoming paralysis and finding purpose in helping others heal.

Lindsay was diagnosed with hydrocephalus before birth. After multiple surgeries and vision loss, she found purpose teaching students with visual impairments.

Lilien was diagnosed with hydrocephalus at 3 months old and has undergone 11 surgeries. Now 21, she’s thriving in her third year of medical school in Austria.

Callie refuses to let hydrocephalus or seizures stop her. This fall, she begins her journey toward a Theater Arts degree and her dream career.

Courtney shares her journey with acquired hydrocephalus after a TBI, inspiring hope and raising awareness for this lifelong condition.

Kunle was born with hydrocephalus in Nigeria. Despite barriers to care and years of hardship, he found his voice as a writer, advocate, and changemaker.

Ryan lived most of his life unaware he had hydrocephalus. After years of misdiagnoses, one neurosurgeon’s insight saved his life and changed his story.

Delrina was diagnosed with hydrocephalus at age 2. Despite multiple surgeries and daily headaches, she’s grown into a leader, advocate, and lifelong learner.