I have hydrocephalus

Diagnosed at

Ryan

Story Written by Self

By JennBechard May 20, 2024

After a benign brain tumor diagnosis amid the COVID-19 pandemic, Jake faced an even greater challenge when a subsequent injury unveiled hydrocephalus. His emergency surgery marked a turning point, empowering him to pursue a fulfilling life despite the obstacles.

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Diagnosed at 7 Months

James

Story Written by Author/Self

By JennBechard September 12, 2023

James recounts his journey navigating academic success and personal growth while living with hydrocephalus. His story underscores resilience and the call for improved support.

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Diagnosed at 10 Months

Kyleigh

Story Written by Author/Self

By JennBechard May 15, 2023

At the age of 10 months, Kyleigh was diagnosed with obstructive hydrocephalus, also known as non-communicating hydrocephalus. She developed hydrocephalus from a tectal glioma (brain tumor).

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Diagnosed at 3 Days

Marcos

Story Written by Author/Self

By JennBechard May 2, 2023

Marcos acquired hydrocephalus at 3 days old due to a brain bleed. Growing up with hydrocephalus, he faced multiple surgeries and hospital stays. But those challenges led him to his life mission!

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Diagnosed at 16

Wesley

Story Written by Author/Self

By JennBechard March 17, 2022

In high school, football player Wesley got some shocking news. He was diagnosed with hydrocephalus and told to stop playing football. However, he didn’t let that stop him from living life to the fullest. Today, he’s an elementary and middle school teacher and an advocate for the condition.

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Morgan

Story Written by Author/Self

By JennBechard April 27, 2021

Morgan struggled for years with debilitating symptoms that no one could explain until finally being diagnosed with hydrocephalus. Now, her struggle continues to get better even after her shunt placement but she refuses to give up hope.

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Diagnosed at 6 Weeks

Elis

Story Written by Author/Self

By JennBechard January 29, 2021

Despite the headaches, vertigo and learning challenges caused by her hydrocephalus, Elis is studying to pursue her dream of becoming a lawyer and loves trying new adventures!

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Cathy

Story Written by Author/Self

By JennBechard January 29, 2021

Cathy had always experienced headaches. But in 2018 a laughing fit sent her to the emergency room, where she learned she had hydrocephalus.

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Diagnosed at Birth

Samantha

Story Written by Author/Self

By JennBechard January 29, 2021

Samantha lived her entire life with a shunt to treat her hydrocephalus until an emergency trip to the hospital at age 22 changed everything.

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Diagnosed at 23

Danielle

Story Written by Author/Self

By JennBechard January 29, 2021

Danielle spent years with debilitating symptoms that caused her to struggle in school and life. Eventually as an adult, she was treated for hydrocephalus and it changed her life.

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Diagnosed at Birth

Jacob

Story Written by Author/Self

By JennBechard January 29, 2021

Jacob grew up with learning disabilities due to his hydrocephalus. However, he eventually figured out a way to turn his challenges into a gift for himself and others as a tool for memory retrieval and later behavior management, life skills and so much more.

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Diagnosed at 8 Months

Wali

Story Written by Author/Self

By JennBechard January 29, 2021

Wali was in and out of the hospital frequently as a child due to his hydrocephalus, and then again when he was older. But that didn’t stop him from pushing hard in school. Today, he’s doing what he loves to do and is the proud owner of an IT company.

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Diagnosed at 2 Months

Tyler

Story Written by Author/Self

By JennBechard January 29, 2021

I have learned that no matter what I’m going through, I can have a positive attitude and a determination to overcome any obstacle I meet.

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Diagnosed at Birth

James

Story Written by Author/Self

By JennBechard January 29, 2021

James has always been fearless. He never let his hydrocephalus stop him from climbing mountains or volunteering to build houses in Cambodia. Even after a physical set back, he’s determined to continue living life and giving back.

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Diagnosed at 33

Brenna

Story Written by Author/Self

By JennBechard January 29, 2021

Brenna’s life was turned upside down after she developed hydrocephalus six years ago. But after undergoing brain surgery for a shunt, she refused to let her condition stop her from enjoying the outdoor adventures she always loved.

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Diagnosed at 7

Danielle

Story Written by Author/Self

By JennBechard January 29, 2021

I was diagnosed with hydrocephalus at the age of 7 years old and had my first shunt on August 14, 2007. Doctors told me I was going to live with a shunt for the rest of my life but Aug. 20th 2020 is the 10th anniversary of being shunt free!

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Diagnosed at 3 Weeks

Brianna

Story Written by Author/Self

By JennBechard January 29, 2021

Brianna grew up in and out of the hospital. That’s when she found her passion of becoming a pediatric nurse. Now she’s about to achieve her childhood dream.

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Diagnosed at Birth

Eric

Story Written by Author/Self

By JennBechard January 28, 2021

My perception of hydrocephalus has changed. I no longer view it as a limitation nor a difference to be scared of, but a unique quality that brings out my greatest strengths while nurturing my weaknesses.

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Lynn

Story Written by Author/Self

By JennBechard January 28, 2021

What happens if you wake up one morning to crippling headaches and learn that you’ve had hydrocephalus your whole life? That’s what happened to Lynn.

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Diagnosed at Birth

Michael

Story Written by Author/Self

By JennBechard January 28, 2021

“I use my #hydrocephalus fears to inspire me to live without regrets. So, I’ve done every WALK to End Hydrocephalus held in my hometown and intend to continue to raise money and awareness.”

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