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July 14, 2022 @ 8:00 am - July 16, 2022 @ 5:00 pm EDT
- What is Hydrocephalus
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Learn about hydrocephalus, a chronic, neurological condition marked by an excess accumulation of fluid in the brain, that affects over 1 million Americans.
- About Hydrocephalus
- Entendiendo La Hidrocefalia
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Normal Pressure Hydrocephalus, also known as NPH, typically affects older adults. Learn more about NPH, its symptoms, and how to treat and live with this chronic condition.
- About Normal Pressure Hydrocephalus
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Hydrocephalus is a complex, chronic condition that can develop for a variety of reasons, sometimes as part of another condition. Learn about the different types and causes of this condition.
- Types and Causes
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Have you or a loved one recently been diagnosed with hydrocephalus? Whether you are living with hydrocephalus or are a caregiver – we’re here to help you on this journey. We developed guides and next steps tailored to specific age groups and life stages.
- Newly Diagnosed
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- Treatments
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While there is currently no known way to prevent or cure hydrocephalus, there are three life-saving treatment options that require brain surgery.
- Treatments
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The thought of having to undergo brain surgery is frightening and can be physically and emotionally taxing. We are here to help.
- Preparing for Surgery
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It is imperative to understand the signs and symptoms of a shunt or ETV failure. Things can change quickly therefore it’s critical to be prepared.
- Treatment Complications
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- Research
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Our research is focused on improving lives now and funding the breakthrough research of tomorrow.
- About Our Research
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Researchers may have the scientific expertise, but they need input from people living with hydrocephalus in order to ask the right questions and develop treatments that will benefit our entire community.
- Get Involved in Research
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By connecting basic, translational, and clinical researchers, HA is accelerating hydrocephalus research and working to fulfill our mission
- Research We Fund
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Our programs are designed to accelerate the movement of new therapies from bench to bedside. The Hydrocephalus Association will continue to push promising research forward.
- For Researchers
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- Daily Life
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Learn how to manage the day to day symptoms and associated problems you might encounter on your journey with hydrocephalus.
- Daily Life
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There are many milestones where hydrocephalus will play a role in your planning and the decisions you make. Embrace these milestones fully informed and with confidence.
- Life Transitions
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Gain the tools and resources to help you advocate for your child, make informed decisions, and manage your child’s daily needs.
- Caring for Your Child
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A diagnosis of NPH can be complex and frustrating. Here you’ll find resources that will enable you to make informed decisions and have more control of your life.
- Life with NPH
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- Help & Support
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The Hydrocephalus Association is your trusted source for information at every stage of life. We offer resources that provide life-changing support to people living with hydrocephalus and their loved ones.
- Resources
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The Hydrocephalus Association is here to help. We are eager to guide you to the support you need for your particular situation.
- Get Support
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The Hydrocephalus Association offers specialized programs and services to support anyone impacted by hydrocephalus at every stage of life.
- Programs and Services
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The Hydrocephalus Association’s Scholarship Program provides financial assistance to capable and promising young adults who live with the ongoing challenges and complexities of hydrocephalus.
- Scholarship Program
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- Get Involved
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Help us change the future of hydrocephalus by supporting the Hydrocephalus Association!
- Give
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Help support our mission by registering for a WALK to End Hydrocephalus near you, sponsoring our WALK program, or starting your own fundraiser!
- Fundraise
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Take an active role in supporting our mission and connect with others impacted by hydrocephalus. Explore the many ways you can get involved!
- Participate
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The Hydrocephalus Association is the leading voice for the hydrocephalus community on Capitol Hill. Join our advocacy efforts.
- Advocate
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