Daily Life

Hydrocephalus is a condition that can affect your everyday life. Learn how to manage the day-to-day symptoms and associated problems you might encounter. 

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Living with Hydrocephalus

Hydrocephalus can affect your life in many ways but the degree of impact can vary. It can create medical, financial, and social challenges, and might negatively alter your ability to live independently. By learning more about ongoing management you’ll feel more in control and be able to make informed decisions regarding your lifestyle and medical care.

Managing Day-to-Day Challenges

Living with a chronic neurological condition can make you feel like you face insurmountable challenges daily. A particular characteristic of hydrocephalus is that symptoms and challenges are often invisible to others, which can lead to a feeling of isolation for those living with the condition. But there is hope! We are here to support and guide you and provide trusted, high-quality resources to help lighten the burden so you can live your best life.

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Navigating Your Care

Once you receive a hydrocephalus diagnosis, choosing your doctor is one of the most important decisions you will make. We have developed resources to help you learn more about the different types of specialists who care for people with hydrocephalus. We also offer suggestions on finding the ones that are right for you.

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What Are Some Related Health Conditions?

It is not unheard of for people living with hydrocephalus to have other symptoms or comorbidities (conditions). These could have preceded the diagnosis or appeared well after. Many people have to manage additional health problems including, but not limited to, headaches, chronic pain, and epilepsy.

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Healthy Living

Staying healthy, from the inside out, is key to maintaining a good quality of life when living with hydrocephalus. Gain tips and tools to optimize your body and mind so you can live your best life!

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Stories from our Community

Hydrocephalus knows no boundaries. You can be born with it, acquire it, or develop it as part of the aging process. We experience different symptoms and we encounter various challenges and obstacles throughout our lives. Everyone has a unique story to tell. Our community is brave, resilient, and inspiring. Read stories from individuals living with hydrocephalus and their loved ones and share them with your friends and family.

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