From the Association

Neuroscience Nurses

Celebrating Neuroscience Nurses: Unsung Heroes of Neuro Care

May 9, 2025

Neuroscience nurses are the heart of neuro care. During Neuroscience Nurses Week, we honor their vital role in caring for brain and spinal condition patients.

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Understanding Neuropsychology

Neuropsychology 101: Understanding Cognitive Function in Hydrocephalus

April 30, 2025

Learn how neuropsychology helps identify and manage cognitive symptoms in hydrocephalus—and how research is advancing care and quality of life.

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Capitol Hill, April

The Hydrocephalus Scoop on Capitol Hill — April 2025

April 28, 2025

Congress has returned to Capitol Hill following Easter recess and is beginning the reconciliation process for a major legislative package. Big decisions are being made — and we have everything you need to know.

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HHS, CDC, NIH

Assessing Recent HHS Reductions in Force (RIF) Layoffs and Their Impact on the Hydrocephalus Community

April 15, 2025

Mass layoffs at HHS are disrupting key health agencies like the FDA, CDC, NIH, and ACL—jeopardizing research, care, and innovation for the hydrocephalus community. These cuts threaten access to treatment, delay medical device approvals, and weaken support systems for patients nationwide.

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Bradley E. Weprin, Healthcare

When We Cut Research, We Cut Hope: The Human Cost of Medical Funding Cuts

April 4, 2025

When we cut research, we do not just slow progress. We delay relief. We postpone innovation. And, for many patients and families, we delay hope.

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Brain Surgery, Therapies

A Future Without Brain Surgery? The Push for Non-Invasive Therapies for Hydrocephalus

April 1, 2025

What if treating hydrocephalus didn’t require brain surgery? The Hydrocephalus Association (HA) is working to turn this vision into reality!

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The Scoop from Capitol Hill

The Scoop from Capitol Hill – March 2025

April 1, 2025

Get the latest federal updates on hydrocephalus research, advocacy, and policy changes. Learn how you can take action to protect critical funding and healthcare access!

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The Latest Research on Shunt Occlusion

March 13, 2025

Understanding the cause of occluded catheters is key to improving shunt systems and brings hope that future designs will offer more reliable treatments, improving the quality of life for individuals with hydrocephalus and reducing the need for frequent surgeries.

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Advocacy, The scoop

The Scoop from Capitol Hill – February 2025

March 3, 2025

House and Senate Republicans have been focused on passing the Administration’s priorities. The Senate approved a billion-dollar budget framework focusing on defense and border enforcement funding. On the other side of the Capitol, the House recently passed its own budget framework. This package is wider in scope and costs.

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Funding, HA CONNECT

Funding Tips for HA CONNECT: Grants, Aid and Savings

February 26, 2025

Discover funding options to attend HA CONNECT! Explore financial aid, grants, and creative strategies to make conference participation more affordable.

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Medicaid coverage

Medicaid Coverage is a Lifeline for Many Hydrocephalus Patients

February 25, 2025

Affordable healthcare insurance is a crucial asset for the hydrocephalus community. As most patients in the community understand; not having affordable access to care can be life-threatening.

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Hydrocephalus Association Medical and Scientific Advisory Boards Statement on Cuts to NIH Funding

Hydrocephalus Association Medical Advisory Board And Scientific Advisory Board Issue Response to Cuts to NIH Indirect Cost Payments

February 15, 2025

The Hydrocephalus Association Medical Advisory Board and Scientific Advisory Board urge the Administration to rescind the directive for the National Institutes of Health (NIH) to cap indirect costs for research funding at 15%.

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Hydrocephalus Community Advocates for Change on Capitol Hill

February 10, 2025

The Hydrocephalus Association brought over 50 key leaders from the hydrocephalus community to advocate for change by meeting with their congressional representatives on Capitol Hill.

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January, Advocacy, Hydrocephalus

The January Hydrocephalus Scoop on the Hill

February 5, 2025

The 119th Congress is in full swing. Republican leadership is zoned in on crafting a large legislative package that includes key priorities around tax, immigration, and budgetary issues. The package will likely go through a process called reconciliation, which allows certain budget-related bills to bypass the 60-vote filibuster in the Senate.

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Smart Shunt, emerging technology

Exploring Emerging Technology in Smart Shunts

January 30, 2025

To address the challenges of traditional shunt systems, scientists are developing innovative devices known as “smart shunts”. These emerging technologies aim to make hydrocephalus management easier.

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Executive Orders, trump

Hydrocephalus Association Expresses Concern Over Executive Orders That Could Affect Hydrocephalus Research

January 28, 2025

The Trump Administration recently issued Executive Orders that could have long-term consequences for hydrocephalus research, potentially impacting the health of hydrocephalus patients, particularly children.

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Research Priorities, neuropsychology

Hydrocephalus Association Publishes Key Neuropsychology and Cognitive Research Priorities

January 17, 2025

The Hydrocephalus Association (HA) is excited to announce the publication of our Research Priorities in Neuropsychology and Cognition in the Journal of Fluids and Barriers of the CNS.

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Hydrocephalus Community, 2024

Looking Back at Key Accomplishments in 2024

December 23, 2024

2024 was a year full of legislative accomplishments for the Hydrocephalus Association and the broader hydrocephalus community. Our successes could not have been achieved without the hard work of advocates from across the country. Partners in Congress were some of the strongest contributors for our mission as well.

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Hydrocephalus Challenges

U.S. House Foreign Affairs Committee Holds Hearing on the Challenges Affecting Global Hydrocephalus Patients

December 19, 2024

The House Foreign Affairs Subcommittee’s November 20th hearing discussed global brain health challenges, focusing on hydrocephalus in developing countries. Experts, including Dr. Benjamin Warf of NeuroKids, highlighted the need for better care and training to support patients, particularly in low-resource regions. The hearing also addressed the lack of USAID programs for brain health and the importance of international aid for hydrocephalus treatment.

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Announcing the 2024 Hydrocephalus Association Innovator Award Recipients

December 5, 2024

The Hydrocephalus Association (HA) is proud to announce the recipients of the 2024 Hydrocephalus Association Innovator Awards. These awards provide critical seed funding to researchers pushing the boundaries of hydrocephalus research and treatment.

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