From the Association
The People Behind Shunts
If you or someone you love has hydrocephalus, there is a good chance that a…
The Hydrocephalus Scoop on Capitol Hill – May 2026
Congress continues to focus on health care affordability in 2026, with hearings examining insurance costs, prescription drug pricing, provider transparency, and access to care. In this month’s Hydrocephalus Scoop on Capitol Hill, learn how these ongoing policy discussions connect to the Hydrocephalus Association’s advocacy priorities, including lower out-of-pocket costs, telehealth access, and medical research funding. We also share updates on the early stages of the 2027 federal funding process and what it could mean for hydrocephalus research and support programs.
The Hydrocephalus Scoop on Capitol Hill – April 2026
From affordability and coverage to telehealth and brain health, lawmakers are weighing policies that could either strengthen access to care or leave patients facing new barriers. For the Hydrocephalus Association, the message is clear: continued advocacy is essential to ensure that patients, families, and caregivers are not left behind.
New HAPPIER Study Highlights Challenges in Accessing Care
New HAPPIER study reveals major gaps in access to care for people with hydrocephalus, including limited specialists, insurance barriers, and high costs.
Funding Tips for HA CONNECT: Grants, Aid and Savings
Discover funding options to attend HA CONNECT! Explore financial aid, grants, and creative strategies to make conference participation more affordable.
HA CONNECT: Where I Found Life-changing Community
The National Conference on Hydrocephalus, HA CONNECT, is where Carly found real connection, understanding, and lifelong friendships, no longer feeling alone in her journey.
Neuroanatomy II: Understanding the Ventricles
In our previous article, Learning the Brain: Neuroanatomy Basics for Understanding Hydrocephalus, we discussed the…
Announcing the 2025 Innovator Award Recipients
The Hydrocephalus Association is proud to announce the recipients of our 2025 Innovator Award, which…
Hydrocephalus Association Scholarship: Top Application Tips
Prepare a strong Hydrocephalus Association (HA) Scholarship application with key tips to stay organized, plan ahead, and submit your best work.
HA Receives $100,000 Gift to Advance Research on the Neuropsychological and Cognitive Impacts of Hydrocephalus
The Hydrocephalus Association (HA) is honored to recognize the extraordinary generosity of Tessa van der Willigen and Jonathan Walters, and David and Lisa Browdy, whose $100,000 commitment will fund two additional Neuropsychology and Cognition Awards over the next two years.
Announcing the 2025 Neuropsychology & Cognition Award Recipients
The Hydrocephalus Association (HA) is proud to announce the awardees of the 2025 Neuropsychology &…
Announcing the 2025 Hydrocephalus Association Accelerator Award Recipient
The Hydrocephalus Association is excited to announce the recipient of our 2025 Accelerator Award, which…
The Hydrocephalus Scoop on Capitol Hill — October 2025
We hope you’re hanging in there. It’s been a tough few weeks in D.C., and we wanted to give you a quick update on what’s happening in Congress and how it might affect our hydrocephalus community—especially when it comes to healthcare access and telehealth.
Announcing our 2025 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2025 Hydrocephalus Association Scholarship Recipients.
Hydrocephalus Association Elevates the Patient Voice on the Global Stage
HA was proud to represent the patient community at the Hydrocephalus Society World Congress in Toulouse, France, September 2025.
Exploring Emerging Technology in Focused Ultrasound
One promising innovation is focused ultrasound—a technique that uses sound waves to precisely target areas of the brain.
The Hydrocephalus Scoop on Capitol Hill — August 2025
Members of Congress have returned from August recess…and there’s a lot of work to do! Here’s where things stand.
Raising Awareness on World Hydrocephalus Day
On September 20, the global community is coming together to celebrate World Hydrocephalus Day in support of those living with this often-misunderstood condition.
Friends of General Hospital’s Leslie Charleson Turn Grief Into Advocacy for Normal Pressure Hydrocephalus
Leslie Charleson, beloved for her nearly 50-year run as Dr. Monica Quartermaine on General Hospital, passed away at 79. She lived with NPH.
Building Better Devices: The Impact of the Hydrocephalus Engineering Workshop
The Hydrocephalus Association with the generous support from the Rudi Schulte Research Institute hosted their…