From the Association

Medicaid Unwinding: What Medicaid Recipients Need to Know

By Judy Froehlich | June 1, 2023 |

Starting April 1, 2023, your state Medicaid office began the process of redetermining your eligibility for health coverage under Medicaid.

The Evolving Landscape of Market Research and Decision-Making

By Judy Froehlich | May 23, 2023 |

Recently, there has been an increase in the solicitation of individuals to participate in projects as key opinion leaders (KOLs) for a specific cause or area of involvement.

40th Anniversary Logo

Celebrating the 40th Anniversary of the Hydrocephalus Association

By Judy Froehlich | January 10, 2023 |

The year 2023 marks the 40th Anniversary of the Hydrocephalus Association (HA). Throughout the year, we will honor our legacy with all of our community by celebrating our milestones and exploring what has been accomplished over the past four decades.

Announcing our 2022 Hydrocephalus Association Scholarship Recipients!

By JennBechard | December 12, 2022 |

The Hydrocephalus Association (HA) is pleased and honored to announce our 2022 Hydrocephalus Association Scholarship Recipients.

Diana Gray Honored for Exemplary Service for the National Health Council

By Ines Schlegel | December 9, 2022 |

Diana Gray, M.A., President and CEO of the Hydrocephalus Association, was honored for her outstanding service for the National Health Council (NHC) at their annual membership meeting.

Welcome New Board Member Michael Siegel, Ph.D.

By Judy Froehlich | August 22, 2022 |

The Hydrocephalus Association (HA) would like to warmly welcome new board member Michael (Mike) Siegel, Ph.D. He is the Executive Director of the Pediatric Dermatology Research Alliance (PeDRA) and serves on our Scientific Advisory Board & Research Committee.

Welcome New Board Member Stephanie Vogt

By Judy Froehlich | August 15, 2022 |

The Hydrocephalus Association (HA) would like to warmly welcome new board member Stephanie (Buffa) Vogt, M.S. She is a Vice President of Supply Chain Strategy with Express Scripts at Cigna and has served as the chair of the St. Louis WALK to end Hydrocephalus since 2008.

Welcome New Board Member Deitra Matthews

By Judy Froehlich | August 11, 2022 |

The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA.…

Life-changing Impact at Hydrocephalus Conference

By Ines Schlegel | July 25, 2022 |

How do you put a life-changing experience into words? The 17th National Conference on Hydrocephalus, is now in the rearview mirror for everyone in attendance from across the country and internationally, but the memories and the connections will leave a lasting impact.

Remembering Dr. Taeun Chang

By Ines Schlegel | June 24, 2022 |

It is with great sadness that the Hydrocephalus Association announces the passing of our colleague…

The Hydrocephalus Scoop on Capitol Hill: Jan/Feb 2022 Update

By JennBechard | February 7, 2022 |

It’s been a busy time in Congress. Find out what we’ve been up to on Capitol Hill!

HA’s Medical Advisory Board Issues New Statements Regarding COVID-19

By JennBechard | January 20, 2022 |

The Hydrocephalus Association (HA)’s Medical Advisory Board (MAB) recently issued two new consensus statements regarding COVID-19 for people living with hydrocephalus.

Celebrating the Life of Dr. Shirley McBay

By JennBechard | December 16, 2021 |

The Hydrocephalus Association celebrates the life of Dr. Shirley McBay, who passed away in late November. Dr. McBay was the first Black person to receive a doctorate from the University of Georgia and was a pioneer in advocating for diversity in science and math education. She was diagnosed with diabetes and Normal Pressure Hydrocephalus.

2021 WALK to End Hydrocephalus Raises over $1.6 Million

By JennBechard | December 6, 2021 |

Our WALK to End Hydrocephalus program had a successful year, raising over $1.6 million for HA’s research, support, education and advocacy efforts.

Isabella Advocates for Children in Congress

By Ines Schlegel | November 29, 2021 |

Like many kids living with hydrocephalus, Isabella is a fighter. This year, she brought her fighting spirit to Congress advocating for better healthcare services for children!

scholarship, hydrocephalus

Announcing our 2021 Hydrocephalus Association Scholarship Recipients!

By JennBechard | November 29, 2021 |

The Hydrocephalus Association (HA) is pleased and honored to announce our 2021 Hydrocephalus Association Scholarship Recipients.

The Hydrocephalus Scoop on Capitol Hill – Sept/Oct 2021

By JennBechard | October 4, 2021 |

The Hydrocephalus Association has been busy protecting hydrocephalus-related research dollars in Congress, and working with members Congress to recognize National Hydrocephalus Awareness Month.

Make Some Noise for Hydrocephalus Awareness Month!

By Ines Schlegel | August 13, 2021 |

September is Hydrocephalus Awareness Month (HAM), our chance to shine a light on hydrocephalus and how it impacts our community!

The Hydrocephalus Scoop on Capitol Hill March 2021

By JennBechard | April 1, 2021 |

The cherry blossoms are blooming in Washington, DC, which is a sure sign that the new Congressional session is well underway. Let’s get you up to speed on what’s been happening on hydrocephalus policy issues so far.

Diana Gray Named Chair of National Health Council Board

By JennBechard | December 8, 2020 |

Diana Gray, HA President and CEO, was named Chairperson of the National Health Council (NHC) Board of Directors for 2021. She was elected to the role at the NHC’s annual membership meeting this week.