September is Hydrocephalus Awareness Month. How much do you know about this life-threatening condition?

September 26, 2022
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Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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She Once Thought Becoming a Doctor Wasn’t Possible

September 14, 2022
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Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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Detroit Walk to End Hydrocephalus to be held at River Bends Park

September 13, 2022
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Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

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Hydrocephalus fundraiser aims to support better treatments and a cure

September 12, 2022
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Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

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HA Welcomes New Board Member Deitra Matthews, Columbia, SC

August 15, 2022
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The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA. She is CEO of The Ram Foundation and serves on HA’s Support and Education Committee.

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‘He’s never alone’: See the tattoo dad got to honor his son’s brain surgery

July 27, 2022
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Carlos Marquez has a tattoo for each of his children, but this one feels extra special as son Luke has already been through five brain surgeries.

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Medical disorder common to infants found in astronauts; doctors seek solution

July 22, 2022
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Medical disorder common to infants found in astronauts; doctors seek solution

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How science, space travel may help families living with neurological conditions

July 22, 2022
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How science, space travel may help families living with neurological conditions

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Eau Claire Woman Shares Story In Hopes of Educating Others

December 11, 2018
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After struggling with a declining interest in activities that she loved, decreasing mobility, and urinary incontinence, Dorothy Sorlie was finally diagnosed with Normal Pressure Hydrocephalus (NPH). A recent article in the Leader-Telegram detailed her journey.

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Three-Year-Old Dean “The Machine” Becomes Team Captain of First Hydrocephalus Endurance Racecar!

July 5, 2018
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HydroDad Bennett Wilson wanted a creative and fun way to raise awareness and funds for hydrocephalus research & programs, so he built a Hydrocephalus Racecar! Learn more about his racecar journey and how you can help support the Hydrocephalus Racing Team at their first race!

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Melissa Kopolow McCall Shared Hydrocephalus Patient Perspective on Capitol Hill

April 19, 2018
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McCall shared the challenges her family has faced throughout her daughter’s journey with hydrocephalus at the 9th Annual Medical Imaging Technology Showcase.

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