In the News

Hydrocephalus on Emergency nyc

Hydrocephalus Spotlight on Emergency NYC – Episode 5

By Judy Froehlich | April 6, 2023 |

Hydrocephalus was highlighted with patients on two medical drama TV shows. The Good Doctor and The Resident.

WashU Scientist Gets Grant to Further Research on Hydrocephalus

By Judy Froehlich | March 6, 2023 |

Two researchers at WashU received grants to help better understand hydrocephalus. Dr. Gabriel Haller is one of them and his research is focusing on finding out what leads to this build-up, largely in pre-mature babies.

Zach Roloff hydrocephalus shunt surgery

‘Little People, Big World’ Star Zach Roloff Has Emergency Brain Surgery

By Judy Froehlich | February 11, 2023 |

A few days ago, Zach Roloff, one of the stars of the TLC reality series…

Seattle Sips: Locust releasing new cold brew cider

By Judy Froehlich | February 10, 2023 |

Why one family hopes for a ‘smarter’ device

By Ines Schlegel | October 26, 2022 |

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

Hydrocephalus Spotlight on Two Medical Drama TV Series

By Ines Schlegel | October 20, 2022 |

Hydrocephalus was highlighted with patients on two medical drama TV shows. The Good Doctor and The Resident.

Oppenheimer Employees WALK To End Hydrocephalus

By Judy Froehlich | October 6, 2022 |

Oppenheimer’s Seattle and Bellevue offices recently participated in the Seattle WALK to end Hydrocephalus. Oppenheimer Financial Professional, Lou Conyard, and his wife Betsy, have been involved in organizing Team Oppenheimer and participating in this effort for years.

September is Hydrocephalus Awareness Month. How much do you know about this life-threatening condition?

By Ines Schlegel | September 26, 2022 |

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

She Once Thought Becoming a Doctor Wasn’t Possible

By Ines Schlegel | September 14, 2022 |

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

Detroit Walk to End Hydrocephalus to be held at River Bends Park

By Judy Froehlich | September 13, 2022 |

Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

Hydrocephalus fundraiser aims to support better treatments and a cure

By Judy Froehlich | September 12, 2022 |

Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

HA Welcomes New Board Member Deitra Matthews, Columbia, SC

By Ines Schlegel | August 15, 2022 |

The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA. She is CEO of The Ram Foundation and serves on HA’s Support and Education Committee.

‘He’s never alone’: See the tattoo dad got to honor his son’s brain surgery

By Ines Schlegel | July 27, 2022 |

Carlos Marquez has a tattoo for each of his children, but this one feels extra special as son Luke has already been through five brain surgeries.

Medical disorder common to infants found in astronauts; doctors seek solution

By Jennifer | July 22, 2022 |

Medical disorder common to infants found in astronauts; doctors seek solution

How science, space travel may help families living with neurological conditions

By Jennifer | July 22, 2022 |

How science, space travel may help families living with neurological conditions

Eau Claire Woman Shares Story In Hopes of Educating Others

By JennBechard | December 11, 2018 |

After struggling with a declining interest in activities that she loved, decreasing mobility, and urinary incontinence, Dorothy Sorlie was finally diagnosed with Normal Pressure Hydrocephalus (NPH). A recent article in the Leader-Telegram detailed her journey.

Three-Year-Old Dean “The Machine” Becomes Team Captain of First Hydrocephalus Endurance Racecar!

By JennBechard | July 5, 2018 |

HydroDad Bennett Wilson wanted a creative and fun way to raise awareness and funds for hydrocephalus research & programs, so he built a Hydrocephalus Racecar! Learn more about his racecar journey and how you can help support the Hydrocephalus Racing Team at their first race!

Melissa Kopolow McCall Shared Hydrocephalus Patient Perspective on Capitol Hill

By Ines Schlegel | April 19, 2018 |

McCall shared the challenges her family has faced throughout her daughter’s journey with hydrocephalus at the 9th Annual Medical Imaging Technology Showcase.