Life with Hydro |

Living With NPH Part 2: Tips for Living With NPH

May 30, 2023

Frank Salamone shares tips for living with normal pressure hydrocephalus (NPH).

Living With NPH Part 1: Trying to Make Peace With a “New Normal”

May 28, 2023

Frank Salamone, L.C.S.W. is living with NPH and shares his story.

What I Know Now: Tips to Prepare for Shunt Surgery

September 23, 2022

If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!

Brainy Camps and Camp Headstrong are Back This Year!

March 16, 2022

The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.

The Importance of a Support System

October 19, 2021

Living with hydrocephalus can feel overwhelming at times. That’s why building a strong support system is so important. Our team of trained professionals is here to help! Our staff will listen to your concerns and connect you with helpful resources.

Hydrocephalus and Independence

May 4, 2021

By Madeleine Darowiche, HA Volunteer So, you’re considering living on your own for the first…

Get on the Right Career Track

January 20, 2021

When choosing a career, college major, or educational program, it’s important to take the time to explore your options.

Making Your Work Environment Work For You

January 19, 2021

Individuals with hydrocephalus can succeed at work despite their condition. Learn how to make your work environment work for you.

Coping with Hospital Stays

January 12, 2021

If you have hydrocephalus, the hospital may be a very familiar place. Learn tips and tools on how to cope with hospitalizations.

Sending your Child to Daycare

January 11, 2021

Sending off a child to daycare is scary on its own. We have developed a checklist to help you prepare.

Sophia Gigante: Finding Strength from Within

July 31, 2020

Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.

Dorothy Sorlie: A Teacher’s Unbreakable Spirit

July 21, 2020

Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.

You or Your Loved One Has Just Been Diagnosed – What’s Next?

April 16, 2020

Have you or a loved one been newly diagnosed with hydrocephalus? We’re here to help you on this journey!

Medical Alert IDs and Hydrocephalus

February 24, 2020

Without proper ID of a medical condition, common symptoms can be misdiagnosed and appropriate care could be jeopardized or delayed. Learn more about Medical Alert IDs.

Living Independently

February 24, 2020

Hydrocephalus can affect your independence and day-to-day needs, and there are additional considerations to keep in mind. Learn more about living independently and hydrocephalus.