Life with Hydrocephalus
Podcast: School Life, Growing Confidence, and Becoming More Independent: Camille’s Hydro Journey
In this Hydro Heroes Unite podcast episode, hear from Camille, a 15-year-old sharing her experience living with hydrocephalus in her own words.
Podcast: Mental Health and Hydrocephalus with Pediatric Psychologist Dr. Elizabeth McRae
In this Hydro Heroes Unite podcast episode, Dr. Elizabeth McRae discusses teen mental health, family support, and self-advocacy.
Podcast: Understanding the Adolescent Brain and Hydrocephalus with Neuropsychologist Dr. Andy Zabel
In this Hydro Heroes Unite podcast episode, Dr. Andy Zabel explores adolescence and hydrocephalus, neuropsychological evaluations, and more.
Hydrocephalus Symptoms That Fluctuate: Coping Without Panic
Hydrocephalus symptoms can fluctuate. Learn how to manage changing symptoms calmly, avoid panicking, and feel more in control of your health.
Shunt Revision Surgery: What to Expect During Surgery and Recovery
Learn what happens before, during, and after shunt revision surgery, including preparation, recovery, risks, and signs of complications.
Precocious Puberty and Hydrocephalus: Helpful Insights
Learn how precocious puberty affects children with hydrocephalus, including early signs, causes, and when to talk to your child’s doctor.
Using AI to Research Hydrocephalus Safely
Learn how to research hydrocephalus safely using AI, find accurate information, and avoid common risks.
HA CONNECT: Where I Found Life-changing Community
The National Conference on Hydrocephalus, HA CONNECT, is where Carly found real connection, understanding, and lifelong friendships, no longer feeling alone in her journey.
Government Benefits for People Living with Hydrocephalus
Learn how government benefits support people with hydrocephalus through financial assistance, medical coverage, and programs that help improve daily life.
Tips for Navigating the Holidays With Hydrocephalus
Navigating the holidays with hydrocephalus can be challenging. Learn tips for managing symptoms, reducing stress, and finding meaningful ways to celebrate.
Body Image and Scars: Living with Hydrocephalus
Scars from hydrocephalus surgery can impact body image and confidence. This article explores why scars can feel overwhelming and how to rebuild self-acceptance.
Emotional Impact of Chronic Pain: Finding Acceptance
Emotional impact of chronic pain can feel overwhelming. Explore ways to heal emotionally, embrace acceptance, and live with renewed purpose.
Hydrocephalus versus NPH: What’s the Difference?
Many people under 60 think they have NPH—but it’s almost always seen in older adults. Learn the real causes of symptoms and how to get the right diagnosis.
Growing Up with Hydrocephalus: Finding My Own Timeline
Growing up with hydrocephalus taught Jenna to let go of expectations and embrace her own pace on a path that’s uniquely hers.
Hydrocephalus in High School: Coping with Chronic Pain
Growing up with hydrocephalus in high school meant facing chronic pain, self-advocacy, and learning to trust your body when others didn’t believe you.
Podcast: The Search for the Silver Lining: Melissa & Abagail’s Hydrocephalus Story
Melissa joins the podcast to share Abagail’s hydrocephalus journey, reflecting on resilience, advocacy, and finding laughter along the way.
Podcast: Helping Children with Hydrocephalus Thrive with Neuropsychologist Dr. Jennifer Queally
In our podcast, neuropsychologist Dr. Jennifer Queally shares how hydrocephalus impacts learning and offers strategies for kids to thrive.
Podcast: Understanding Hydrocephalus: A Conversation with Pediatric Neurosurgeon Dr. Ramin Eskandari
This podcast explores hydrocephalus, treatment options, warning signs, and expert advice from Dr. Ramin Eskandari to guide patients and families.
Podcast: Faith, Family, and Fight: Crystal & Natalie’s Story of Resilience
In this podcast episode, Crystal shares her journey of faith and resilience as she navigates hydrocephalus, cerebral palsy, epilepsy, and autism with her daughter.
Podcast: We Just One-Daying It: Miya + Mila’s Hydrocephalus Story
In our first podcast episode, Miya shares her raw, powerful journey of raising a child with hydrocephalus and cerebral palsy—through crisis and beyond.