What I Know Now: Tips to Prepare for Shunt Surgery

September 23, 2022
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If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!

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Brainy Camps and Camp Headstrong are Back This Year!

March 16, 2022
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The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.

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Complications of ETV

The Importance of a Support System

October 19, 2021
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Living with hydrocephalus can feel overwhelming at times. That’s why building a strong support system is so important. Our team of trained professionals is here to help! Our staff will listen to your concerns and connect you with helpful resources.

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Hydrocephalus and Independence

May 4, 2021
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By Madeleine Darowiche, HA Volunteer So, you’re considering living on your own for the first…

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Get on the Right Career Track

January 20, 2021
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When choosing a career, college major, or educational program, it’s important to take the time to explore your options.

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Making Your Work Environment Work For You 

January 19, 2021
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Individuals with hydrocephalus can succeed at work despite their condition. Learn how to make your work environment work for you.

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Coping with Hospital Stays

January 12, 2021
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If you have hydrocephalus, the hospital may be a very familiar place. Learn tips and tools on how to cope with hospitalizations.

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Sending your Child to Daycare

January 11, 2021
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Sending off a child to daycare is scary on its own. We have developed a checklist to help you prepare.

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Sophia Gigante: Finding Strength from Within

July 31, 2020
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Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.

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Dorothy Sorlie: A Teacher’s Unbreakable Spirit

July 21, 2020
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Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.

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You or Your Loved One Has Just Been Diagnosed – What’s Next?

April 16, 2020
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Have you or a loved one been newly diagnosed with hydrocephalus? We’re here to help you on this journey!

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Medical Alert IDs and Hydrocephalus

February 24, 2020
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Without proper ID of a medical condition, common symptoms can be misdiagnosed and appropriate care could be jeopardized or delayed. Learn more about Medical Alert IDs.

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Living Independently

February 24, 2020
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Hydrocephalus can affect your independence and day-to-day needs, and there are additional considerations to keep in mind. Learn more about living independently and hydrocephalus.

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Driving and Hydrocephalus

February 23, 2020
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Driving is often seen as a rite of passage into adulthood. However, it’s not uncommon for individuals with hydrocephalus to experience challenges.

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Bullying and Hydrocephalus

February 23, 2020
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Bullying. We hold on to the 1950s image of the big kid on the playground taunting, name-calling, pushing, and intimidating other children.

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Seeking a Second Opinion

February 23, 2020
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Even though second opinions are a common and accepted practice in medicine, many people feel uncomfortable asking for them.

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How to be an Assertive Member of the Treatment Team

February 23, 2020
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People with hydrocephalus and their caregivers are highly encouraged to become active, assertive members of their treatment team.

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What to Ask Your Doctor about NPH

February 23, 2020
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Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

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What to Ask Your Doctor about Young and Middle-Age Adults with Hydrocephalus

February 23, 2020
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Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

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What to Ask Your Doctor about Teens with Hydrocephalus

February 23, 2020
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Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.

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