Life with Hydrocephalus
Dereck’s Hydrocephalus Journey: Finding the Silver Lining
Discover how Dereck finds silver linings and strength in everyday moments while living with hydrocephalus and overcoming over 500 brain surgeries.
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Traveling with Hydrocephalus and Spina Bifida: Must-Know Tips
Traveling with hydrocephalus and spina bifida takes planning! Here are my tips for navigating air and train travel, accessibility, and accommodations.
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The Power of a Second Opinion: Advocating for Your Health
Even though second opinions are a common and accepted practice in medicine, many people feel uncomfortable asking for them.
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Breaking Myths About Hydrocephalus: What’s Fact and What’s Fiction?
Hydrocephalus is often misunderstood, with myths overshadowing the realities of this invisible condition. This blog breaks down common misconceptions, highlights the facts, and sheds light on the challenges faced by those living with hydrocephalus, proving that what you see on the outside doesn’t always reflect the struggles within.
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Understanding Cerebral/Cortical Visual Impairment (CVI) and Hydrocephalus: How Vision Can Be Affected
Cerebral Visual Impairment (CVI) affects how the brain processes visual information. This article highlights the link between CVI and hydrocephalus, its impact on vision, and ways to support those affected.
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Strategies for Coping with Memory Issues and Forgetfulness
Memory challenges can impact daily life in many ways, whether they’re related to managing medical conditions like hydrocephalus or are part of the natural aging process. Here are some practical strategies, tools, and resources to help manage forgetfulness and enhance your memory.
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You or Your Loved One Has Just Been Diagnosed – What’s Next?
Have you or a loved one been newly diagnosed with hydrocephalus? We’re here to help you on this journey!
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What to Ask Your Doctor about NPH
Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.
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What to Ask Your Doctor about Young and Middle-Age Adults with Hydrocephalus
Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.
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What to Ask Your Doctor about Teens with Hydrocephalus
Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.
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What to Ask Your Doctor About Infants and Children with Hydrocephalus
Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.
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Coping with Hospital Stays
If you have hydrocephalus, the hospital may be a very familiar place. Learn tips and tools on how to cope with hospitalizations.
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Medical Alert IDs and Hydrocephalus
Without proper ID of a medical condition, common symptoms can be misdiagnosed and appropriate care could be jeopardized or delayed. Learn more about Medical Alert IDs.
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How to be an Assertive Member of the Treatment Team
People with hydrocephalus and their caregivers are highly encouraged to become active, assertive members of their treatment team.
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Sending your Child to Daycare
Sending off a child to daycare is scary on its own. We have developed a checklist to help you prepare.
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Bullying and Hydrocephalus
Bullying. We hold on to the 1950s image of the big kid on the playground taunting, name-calling, pushing, and intimidating other children.
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Driving and Hydrocephalus
Driving is often seen as a rite of passage into adulthood. However, it’s not uncommon for individuals with hydrocephalus to experience challenges.
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Post-surgical Depression
There’s one surgical complication that is seldom if ever, mentioned before or after surgery, post-surgical depression. Learn more.
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Living With NPH Part 2: Tips for Living With NPH
Frank Salamone shares tips for living with normal pressure hydrocephalus (NPH).
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Living With NPH Part 1: Trying to Make Peace With a “New Normal”
Frank Salamone, L.C.S.W. is living with NPH and shares his story.
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