Life with Hydro
Frank Salamone shares tips for living with normal pressure hydrocephalus (NPH).
Frank Salamone, L.C.S.W. is living with NPH and shares his story.
If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!
The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.
Living with hydrocephalus can feel overwhelming at times. That’s why building a strong support system is so important. Our team of trained professionals is here to help! Our staff will listen to your concerns and connect you with helpful resources.
By Madeleine Darowiche, HA Volunteer So, you’re considering living on your own for the first…
When choosing a career, college major, or educational program, it’s important to take the time to explore your options.
Individuals with hydrocephalus can succeed at work despite their condition. Learn how to make your work environment work for you.
If you have hydrocephalus, the hospital may be a very familiar place. Learn tips and tools on how to cope with hospitalizations.
Sending off a child to daycare is scary on its own. We have developed a checklist to help you prepare.
Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.
Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.
Have you or a loved one been newly diagnosed with hydrocephalus? We’re here to help you on this journey!
Without proper ID of a medical condition, common symptoms can be misdiagnosed and appropriate care could be jeopardized or delayed. Learn more about Medical Alert IDs.
Hydrocephalus can affect your independence and day-to-day needs, and there are additional considerations to keep in mind. Learn more about living independently and hydrocephalus.
Driving is often seen as a rite of passage into adulthood. However, it’s not uncommon for individuals with hydrocephalus to experience challenges.
Bullying. We hold on to the 1950s image of the big kid on the playground taunting, name-calling, pushing, and intimidating other children.
Even though second opinions are a common and accepted practice in medicine, many people feel uncomfortable asking for them.
People with hydrocephalus and their caregivers are highly encouraged to become active, assertive members of their treatment team.
Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.