Life with Hydro

Living With NPH Part 2: Tips for Living With NPH

By Judy Froehlich | May 30, 2023 |

Frank Salamone shares tips for living with normal pressure hydrocephalus (NPH).

Living With NPH Part 1: Trying to Make Peace With a “New Normal”

By Judy Froehlich | May 28, 2023 |

Frank Salamone, L.C.S.W. is living with NPH and shares his story.

What I Know Now: Tips to Prepare for Shunt Surgery

By Judy Froehlich | September 23, 2022 |

If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!

Brainy Camps and Camp Headstrong are Back This Year!

By JennBechard | March 16, 2022 |

The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.

Complications of ETV

The Importance of a Support System

By Ines Schlegel | October 19, 2021 |

Living with hydrocephalus can feel overwhelming at times. That’s why building a strong support system is so important. Our team of trained professionals is here to help! Our staff will listen to your concerns and connect you with helpful resources.

Hydrocephalus and Independence

By JennBechard | May 4, 2021 |

By Madeleine Darowiche, HA Volunteer So, you’re considering living on your own for the first…

Get on the Right Career Track

By JennBechard | January 20, 2021 |

When choosing a career, college major, or educational program, it’s important to take the time to explore your options.

Making Your Work Environment Work For You 

By JennBechard | January 19, 2021 |

Individuals with hydrocephalus can succeed at work despite their condition. Learn how to make your work environment work for you.

Coping with Hospital Stays

By JennBechard | January 12, 2021 |

If you have hydrocephalus, the hospital may be a very familiar place. Learn tips and tools on how to cope with hospitalizations.

Sending your Child to Daycare

By JennBechard | January 11, 2021 |

Sending off a child to daycare is scary on its own. We have developed a checklist to help you prepare.

Sophia Gigante: Finding Strength from Within

By JennBechard | July 31, 2020 |

Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.

Dorothy Sorlie: A Teacher’s Unbreakable Spirit

By JennBechard | July 21, 2020 |

Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.

You or Your Loved One Has Just Been Diagnosed – What’s Next?

By JennBechard | April 16, 2020 |

Have you or a loved one been newly diagnosed with hydrocephalus? We’re here to help you on this journey!

Medical Alert IDs and Hydrocephalus

By Jennifer | February 24, 2020 |

Without proper ID of a medical condition, common symptoms can be misdiagnosed and appropriate care could be jeopardized or delayed. Learn more about Medical Alert IDs.

Living Independently

By Jennifer | February 24, 2020 |

Hydrocephalus can affect your independence and day-to-day needs, and there are additional considerations to keep in mind. Learn more about living independently and hydrocephalus.

Driving and Hydrocephalus

By Jennifer | February 23, 2020 |

Driving is often seen as a rite of passage into adulthood. However, it’s not uncommon for individuals with hydrocephalus to experience challenges.

Bullying and Hydrocephalus

By Jennifer | February 23, 2020 |

Bullying. We hold on to the 1950s image of the big kid on the playground taunting, name-calling, pushing, and intimidating other children.

Seeking a Second Opinion

By Jennifer | February 23, 2020 |

Even though second opinions are a common and accepted practice in medicine, many people feel uncomfortable asking for them.

How to be an Assertive Member of the Treatment Team

By Jennifer | February 23, 2020 |

People with hydrocephalus and their caregivers are highly encouraged to become active, assertive members of their treatment team.

What to Ask Your Doctor about NPH

By Jennifer | February 23, 2020 |

Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.