Life with Hydrocephalus: Stories, Insights, and Support

Government Benefits for People Living with Hydrocephalus

December 5, 2025

Learn how government benefits support people with hydrocephalus through financial assistance, medical coverage, and programs that help improve daily life.

Tips for Navigating the Holidays With Hydrocephalus

December 3, 2025

Navigating the holidays with hydrocephalus can be challenging. Learn tips for managing symptoms, reducing stress, and finding meaningful ways to celebrate.

Body Image and Scars: Living with Hydrocephalus

December 2, 2025

Scars from hydrocephalus surgery can impact body image and confidence. This article explores why scars can feel overwhelming and how to rebuild self-acceptance.

Emotional Impact of Chronic Pain, Acceptance

Emotional Impact of Chronic Pain: Finding Acceptance

November 6, 2025

Emotional impact of chronic pain can feel overwhelming. Explore ways to heal emotionally, embrace acceptance, and live with renewed purpose.

Hydrocephalus versus NPH: What’s the Difference?

November 3, 2025

Many people under 60 think they have NPH—but it’s almost always seen in older adults. Learn the real causes of symptoms and how to get the right diagnosis.

Growing Up with Hydrocephalus: Finding My Own Timeline

October 23, 2025

Growing up with hydrocephalus taught Jenna to let go of expectations and embrace her own pace on a path that’s uniquely hers.

Hydrocephalus in High School: Coping with Chronic Pain

October 8, 2025

Growing up with hydrocephalus in high school meant facing chronic pain, self-advocacy, and learning to trust your body when others didn’t believe you.

Podcast: The Search for the Silver Lining: Melissa & Abagail’s Hydrocephalus Story

October 1, 2025

Melissa joins the podcast to share Abagail’s hydrocephalus journey, reflecting on resilience, advocacy, and finding laughter along the way.

Podcast: Helping Children with Hydrocephalus Thrive with Neuropsychologist Dr. Jennifer Queally

September 18, 2025

In our podcast, neuropsychologist Dr. Jennifer Queally shares how hydrocephalus impacts learning and offers strategies for kids to thrive.

Podcast: Understanding Hydrocephalus: A Conversation with Pediatric Neurosurgeon Dr. Ramin Eskandari

September 3, 2025

This podcast explores hydrocephalus, treatment options, warning signs, and expert advice from Dr. Ramin Eskandari to guide patients and families.

Podcast: Faith, Family, and Fight: Crystal & Natalie’s Story of Resilience

August 25, 2025

In this podcast episode, Crystal shares her journey of faith and resilience as she navigates hydrocephalus, cerebral palsy, epilepsy, and autism with her daughter.

Podcast: We Just One-Daying It: Miya + Mila’s Hydrocephalus Story

August 25, 2025

In our first podcast episode, Miya shares her raw, powerful journey of raising a child with hydrocephalus and cerebral palsy—through crisis and beyond.

Podcast: When the Whole Family’s Admitted: NICU Care & Hope with Dr. Hallie Morris

August 25, 2025

Hydro Heroes Unite explores NICU life with Dr. Hallie Morris, sharing how hydrocephalus is diagnosed and how families find hope and support.

Independence, Hydrocephalus, Redefining Independence

Redefining Independence with Hydrocephalus

May 22, 2025

Discover how independence with hydrocephalus is personal. Explore resources, support, and tools to help you live on your terms.

Dereck’s Hydrocephalus Journey: Finding the Silver Lining

April 11, 2025

Discover how Dereck finds silver linings and strength in everyday moments while living with hydrocephalus and overcoming over 500 brain surgeries.

NPH: Optimize Your Quality of Life with Key Strategies

April 11, 2025

Discover how to optimize your quality of life with NPH through exercise, support systems, and effective strategies for managing daily challenges.

Balancing Life with Hydrocephalus: Key Strategies for Success

April 7, 2025

Discover key strategies for balancing life with hydrocephalus, managing health, relationships, and work, while thriving with practical tips and expert guidance.

Traveling with Hydrocephalus and Spina Bifida: Must-Know Tips

March 21, 2025

Traveling with hydrocephalus and spina bifida takes planning! Here are my tips for navigating air and train travel, accessibility, and accommodations.