Life with Hydro
Medical Alert IDs and Hydrocephalus
Without proper ID of a medical condition, common symptoms can be misdiagnosed and appropriate care could be jeopardized or delayed. Learn more about Medical Alert IDs.
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Living With NPH Part 2: Tips for Living With NPH
Frank Salamone shares tips for living with normal pressure hydrocephalus (NPH).
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Living With NPH Part 1: Trying to Make Peace With a “New Normal”
Frank Salamone, L.C.S.W. is living with NPH and shares his story.
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What I Know Now: Tips to Prepare for Shunt Surgery
If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!
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Brainy Camps and Camp Headstrong are Back This Year!
The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.
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The Importance of a Support System
Living with hydrocephalus can feel overwhelming at times. That’s why building a strong support system is so important. Our team of trained professionals is here to help! Our staff will listen to your concerns and connect you with helpful resources.
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Hydrocephalus and Independence
By Madeleine Darowiche, HA Volunteer So, you’re considering living on your own for the first…
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Get on the Right Career Track
When choosing a career, college major, or educational program, it’s important to take the time to explore your options.
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Making Your Work Environment Work For You
Individuals with hydrocephalus can succeed at work despite their condition. Learn how to make your work environment work for you.
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Coping with Hospital Stays
If you have hydrocephalus, the hospital may be a very familiar place. Learn tips and tools on how to cope with hospitalizations.
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Sending your Child to Daycare
Sending off a child to daycare is scary on its own. We have developed a checklist to help you prepare.
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Sophia Gigante: Finding Strength from Within
Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.
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Dorothy Sorlie: A Teacher’s Unbreakable Spirit
Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.
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You or Your Loved One Has Just Been Diagnosed – What’s Next?
Have you or a loved one been newly diagnosed with hydrocephalus? We’re here to help you on this journey!
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Living Independently
Hydrocephalus can affect your independence and day-to-day needs, and there are additional considerations to keep in mind. Learn more about living independently and hydrocephalus.
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Driving and Hydrocephalus
Driving is often seen as a rite of passage into adulthood. However, it’s not uncommon for individuals with hydrocephalus to experience challenges.
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Bullying and Hydrocephalus
Bullying. We hold on to the 1950s image of the big kid on the playground taunting, name-calling, pushing, and intimidating other children.
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Seeking a Second Opinion
Even though second opinions are a common and accepted practice in medicine, many people feel uncomfortable asking for them.
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How to be an Assertive Member of the Treatment Team
People with hydrocephalus and their caregivers are highly encouraged to become active, assertive members of their treatment team.
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What to Ask Your Doctor about NPH
Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions.
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