HA Blog
Announcement About Anuncia ReFlowTM System Mini
Earlier this year, Anuncia Inc., a medical device company focused on the development of treatment devices for hydrocephalus and other cerebrospinal fluid (CSF) disorders, announced that the ReFlowTM System Mini received the U.S Food and Drug Administration (FDA) Breakthrough Device Designation. The ReFlowTM System Mini is the next generation version of the commercial ReFlowTM Ventricular System.
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In the NICU: Preparing Families for Life with Hydrocephalus
A recent study explored how neonatal intensive care units (NICUs) can better prepare families that receive a diagnosis of posthemorrhagic hydrocephalus of prematurity (PHHP).
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9 Foods to Nourish Brain Health
After having brain surgery, eating nutrient-dense foods that support your brain can promote healing. Learn more about the 9 foods that can help nourish brain health.
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Hydrocephalus and Independence
By Madeleine Darowiche, HA Volunteer So, you’re considering living on your own for the first…
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How to Reconnect and Trust your Body
In this blog, Bethany Holmes, Certified Integrative Health Coach, and Reiki Practitioner discusses how to reconnect, trust, love, and heal your body after trauma.
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Congressmen Lloyd Doggett and Chris Smith Join Forces to Raise Awareness About Hydrocephalus
Representatives Lloyd Doggett (D-TX) and Chris Smith (R-NJ) have joined forces to champion two critical…
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A Mystery Disease: One Woman’s Struggle to Get Diagnosed with NPH
Merlin Bott woke up one morning in October 2013 with a severe case of vertigo. It quickly got worse and soon, she became so dehydrated that she had to be hospitalized. Finally after 29 harrowing days in the hospital, she was told she needed brain surgery.
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Innovator Award Series: Get to Know Dr. Aditya S. Pandey
In this installment of our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Aditya S. Pandey, one of four scientists who received a 2020 Innovator Award. Dr. Pandey’s team is testing the use of acetazolamide (Diamox) directly into the ventricles to determine if it can prevent hydrocephalus.
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The Hydrocephalus Scoop on Capitol Hill March 2021
The cherry blossoms are blooming in Washington, DC, which is a sure sign that the new Congressional session is well underway. Let’s get you up to speed on what’s been happening on hydrocephalus policy issues so far.
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Teacher’s Guide: Late Elementary (Grades 3-5)
Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.
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Teacher’s Guide: Early Elementary (K-2nd)
Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.
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Teacher’s Guide to Hydrocephalus: High School
Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.
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Teachers’ Guide: Middle School (6th-8th)
Our Teachers’ Guides address common learning challenges faced by many children with hydrocephalus as well as their needs in mainstream classrooms.
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Health Challenges and School
Hydrocephalus, as well as the other medical conditions that can accompany it, can have an impact on a child’s ability to participate fully in school.
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Great.com Interviews Hydrocephalus Association About the Promising Search for New Treatments
Spirit Rosenberg from Great.com interviewed the Hydrocephalus Association as part of their ‘Great.com Talks With…’…
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My Thoughts for Teachers
Sarah Kell, an adult living with hydrocephalus, offers thoughts for teachers when working with a child with hydrocephalus.
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Child with X-Linked Hydrocephalus Defies the Odds
Imagine being told that your newborn child may never eat on his own. That’s what happened to Madeline Hopkins and her fiance Sean just a few days after their son was born when they learned he had a rare disease known as L1 Syndrome or X-Linked Hydrocephalus.
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Technology Update: Neurallys developing Bluetooth enabled ICP monitor
French startup Neurallys is developing an implantable intracranial pressure (ICP) monitor for hydrocephalus. The device continuously measures, records and sends ICP data to a patient’s smartphone via a Bluetooth connection.
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Michigan Writer Pens Children’s Books Inspired by HydroWarrior
After seeing the way his friend’s son Josh bravely dealt with his hydrocephalus, Joseph Gray was inspired to write two children’s books featuring the adventures and abilities of children. He hopes the books will raise awareness about hydrocephalus and foster acceptance of all kids.
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