School

For many young adults living with hydrocephalus, college is the first time they are managing their medical condition(s) on their own, particularly if the individual has moved away from home to live on campus. For this reason, it is important to put into place a plan for local care, particularly in the event of a medical emergency.

There are a lot of moving parts once a student with hydrocephalus commits to a college and moves on to requesting accommodations (for those that need them), honing their self-advocacy skills, and preparing to navigate their health and wellness needs independently.

Alongside the typical comparisons for choosing a college, like cost, distance from home, academic major, etc., students with hydrocephalus should consider proximity to a medical center with neurosurgical care as well as compare the services and supports that the school offers.

Students with hydrocephalus may require more flexibility in their college experience, due to unpredictable hospitalization, medical procedures, and illness. It’s important for students and families to understand the policies on full- and part-time student status as well as leaves of absence before committing to a school.

Academic support varies across colleges, from peer tutoring and writing centers to specialized programs to schools completely built around educating students with learning disabilities. Additionally, some schools are well known for their inclusive approach to physical accessibility.

It is important for students and families to understand that the services, supports, and accommodations that a student received in high school may not be available in the college setting. The responsibility for requesting and managing accommodations also rests fully on the student, unless a FERPA waiver is on file with the school.

There is a lot to consider when thinking about transitioning to college with hydrocephalus. Beyond the typical considerations around academic fit and cost, you will also need to think about your medical needs and what accommodations and support are available on campus.

Learning disabilities (difficulties) are not uncommon in kids with hydrocephalus. Parents must be prepared to act early to give their child the best chance for success.

Guidance for parents so they can learn how to develop and maintain good communication between with school personnel.