Navigating your Care


Once you receive a hydrocephalus diagnosis choosing your doctor is one of the most important decisions you will make. We have developed resources to help you learn more about the different types of specialists who care for people with hydrocephalus. We also offer suggestions on finding the ones that are right for you.

What You Need to Know

Find a Doctor

To help you in the process of building your healthcare team, HA has developed the Physician Directory. This first-ever physician finder tool allows you to search by location, specialist, and/or age served.

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Your Healthcare Team

Hydrocephalus is a complex condition and the long-term effects and other related symptoms or conditions can vary greatly from person to person. Therefore, your doctor will tailor a treatment plan to your overall health and specific needs. Living well with hydrocephalus often requires a team of healthcare providers. Together, you’ll monitor your condition and each specialist will work to ensure you can live a full and active life.

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Questions for Your Doctor

Creating and maintaining a good relationship with qualified doctors is vital in overall healthcare planning. We have compiled lists of questions that we believe will help you discover important information and establish a good relationship.

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How to be an Assertive Member of Your Treatment Team

People with hydrocephalus and their caregivers are highly encouraged to become active, assertive members of a healthcare team. Here you will find a list of tips on how to best fill your role on such a team.

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Seeking a Second Opinion

Even though second opinions are a common and accepted practice in medicine, many people feel uncomfortable asking for them. This page is meant to empower you to do what is best for you, or your family member with hydrocephalus.

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Coping with Hospital Stays

If you have hydrocephalus, the hospital may be a very familiar place. Whether you’ve needed to visit several times or just a couple, you’ve probably learned that every hospital stay varies. We compiled some ideas and tips that we hope will help you prepare physically, mentally, and emotionally for future (or current) trips.

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