About Our Research

Our research is focused on improving lives now and funding the breakthrough research of tomorrow.

Advancing Research

Since 2009, we have worked diligently to build a comprehensive hydrocephalus research program. Today, our programs span basic, translational, and clinical research and funds efforts to find a cure and improve the lives of those living with the condition, from the smallest preemies to seniors with Normal Pressure Hydrocephalus.


Download Our Latest Research Report

2021-2023 Research Report


Community Research Priorities

We listened closely to the needs of our community over the last two years by conducting a formal study using the James Lind Alliance (JLA) methodology that included patients, family members, scientists, and physicians. This study has now been accepted for publication in the Journal of Neurosurgery.

With input from almost 1,500 people over the course of two surveys and a workshop we have developed our Top 20 Community Research Priorities.

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Our Research Impact: We are Building SUCCESS

The Hydrocephalus Association is focused on funding high-quality, high-impact research and building the hydrocephalus research community. Our impact can be seen far and wide throughout the hydrocephalus research field.

Since the start of our Research Initiative in 2009, HA has:

• Invested over $14M in our Research Program
• Awarded 63 Grants
• Supported 3 Research Networks
• Sponsored 11 Research Workshops

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Research Overview

Research by dedicated scientists and clinicians from a wide range of disciplines is expanding our knowledge of hydrocephalus, translating discoveries and insights into vital new treatments and clinical care practices for people living with hydrocephalus.

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Research Milestones

HA officially started the Research Initiative in 2009 but work on its development began long before. Learn about how the initiative started and the significant activities since.

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Research News

Take a look at our research blogs! The blogs cover topics from HA’s current research activities and new studies that have been published to educating yourself on how to evaluate relevant research.

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Check Out Our Sponsored Events

The Hydrocephalus Association sponsors research conferences and workshops to bring together researchers, clinicians, and academics from across multiple disciplines. These conferences are designed to enable collaboration, review the current state of hydrocephalus research, and identify promising research opportunities that bring us closer to a cure.

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