A major milestone in a young adult living with hydrocephalus is the transition from pediatric to adult medical care. Planning for transition is vital, but this process can be complex and overwhelming.
Transitioning from Pediatric to Adult Care
*NOTE: We asked adults to share their experiences so that all of you can learn about the different things that you encounter through your journey.
As adolescents become young adults, they typically must leave the pediatric health care system for the adult health care system, a process called health care transition. They will have new physicians and practitioners in a setting that is very different from the pediatric system. Planning for transition is vital, but this process can be complex and overwhelming.
What You Need to Know
Timeline for a Successful Transition to Adult Care
Mapping out a path to taking over your medical care once you are of legal age and/or ready to move away from home will help you have a successful transition into the adult medical world.
Toolkit for Transitioning Medical Care
What information do you take with you from your pediatric neurosurgeon to your new adult neurosurgeon? Working with both pediatric and adult providers, we have developed a tool for you to use to help ensure a smooth transition of care.
Moving from Pediatric to Adult Care: Are you Ready?
Turning 18 is a big deal for both teens and their parents. It’s that milestone birthday where a teen becomes a legal adult and in charge of many parts of their life, including their medical care. But life out in the adult healthcare world is really different than in the pediatric world. Join Dr. Brandon Rocque and Amanda Garzon, MA to see where your family stands on the checklist to your teen taking over their medical care so teens can move on and out (of the house) with confidence. Teens, bring your parent(s) and vice versa! This is meant to be an interactive discussion.
For your Child or as an Adult with Hydrocephalus: Is your Legal House In Order?
This webinar will discuss the broad range of estate-related legal documents, including wills, revocable living trusts, supplemental needs trusts, beneficiary designations, powers of attorney for property and health care, and living wills. It will consider their use both for adult individuals with hydrocephalus and for parents and other family members of individuals with hydrocephalus, with a particular focus on desired documents when an individual reaches the age of majority and becomes an adult.
Aging Out of Pediatric Care: A Cautionary Tale
Four. That is how many different hospitals I visited trying to transition from a pediatric to an adult neurosurgery program in the midst of a shunt malfunction.
HA’s Transition Initiative: Transitioning from Pediatric to Adult Care
A major milestone in a young adult living with hydrocephalus is the transition from pediatric to adult medical care. Learn about the HA Transition Initiative.