We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology and more.
Our webinar series features presentations from medical professionals, researchers and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event.
Next Webinar
Webinar topics and dates are subject to change.
ETV and ETV- CPC in Children with Hydrocephalus
February 16, 2021, 7:00 pm ET
Join Dr. Abhaya Kulkarni, principal investigator in the Hydrocephalus Clinical Research Network (HCRN), to learn about new results and ongoing studies focused on the use of endoscopic third ventriculostomy (ETV) and ETV with choroid plexus coagulation (ETV-CPC) in children with hydrocephalus. The session will cover when ETV alone and ETV-CPC are used as well as research into the use of repeat ETV and the use of ETV in children who have previously had a shunt.
Presenter:
Abhaya Kulkarni, MD, PhD, FRCSC
Suggested Audience:
This webinar is ideal for parents of children with hydrocephalus.
Upcoming Webinar
Webinar topics and dates are subject to change.
New Research on Preventing Hydrocephalus after a Brain Bleed – April 13, 2021
Join Drs. Lauren Jantzie and Shenandoah Robinson from Johns Hopkins University to learn more about her research on the prevention of posthemorrhagic hydrocephalus of prematurity (PHH) and the prevention of hydrocephalus after a traumatic brain injury (TBI). Their team is currently testing the use of clinically available drugs to enhance natural repair processes in hopes of reversing the damage caused by blood when it enters the ventricular system.
Presenters:
Shenandoah “Dody” Robinson, MD
Lauren Jantzie, PhD
Future Webinars
Webinar topics and dates are subject to change.
Role of the Ventricular Lining in the Development of Hydrocephalus and Potential Drug Targets – June 8, 2021
Shunt Obstructions – August 10, 2021
View Past Webinars
Research Update – ETV in Adults with Hydrocephalus – December 3, 2020
Research Update – Health Risks of Radiation from Medical Imaging – September 10, 2020
Suggested Audience
This webinar is ideal for parents of children with hydrocephalus.
Part 1: COVID-19 and Hydrocephalus Overview with our Experts – March 20, 2020
Part 2: COVID-19 Live Q&A with our Medical Experts – March 20, 2020
Resources on COVID-19 (Coronavirus) and Hydrocephalus.
New Results on the Genetic Causes of Congenital Hydrocephalus – March 25, 2019
Suggested Audience
This webinar is ideal for anyone who wants to learn more about how genetics can impact the development of hydrocephalus in children.
Drug Development for the Management of Hydrocephalus – November 14, 2018
Suggested Audience
This webinar is ideal for anyone who wants to learn more about early stage drug development and how the management of CSF production could benefit hydrocephalus patients.
Normal Pressure Hydrocephalus (NPH): What Your Doctors are Thinking Before and After the Shunt is Placed – December 13, 2017
This Webinar was made possible through the generosity of our industry partner Codman, a part of Integra Lifesciences who we thank for supporting this important program!
For more information on iNPH, visit LifeNPH.com.
How to Help Your Teen Find a College Where They Will Be HAPPY and SUCCESSFUL – September 27, 2017
Suggested Audience
This webinar is ideal for parents and caretakers of school aged teenagers and educators who want to learn more about college planning, preparation, and placement process as it relates to hydrocephalus. The presentation will focus on practical skills that will allow your child to be HAPPY and SUCCESSFUL in college.
Resources
Normal Pressure Hydrocephalus (NPH): Treatments and Current Research – August 9, 2017
Suggested Audience
This content is appropriate for patients and families affected by normal pressure hydrocephalus (NPH) as well as for care providers at all levels interested in learning about the history, diagnosis, and treatment of NPH and NPH research conducted by the Adult Hydrocephalus Clinical Research Network (AHCRN).
Developing an Effective IEP – October 22, 2014
Suggested Audience
This webinar is ideal for parents and caretakers of school aged children, teens, and educators who want to learn more about the IEP process as it relates to individuals with hydrocephalus.
Handouts
For more information on this topic please click here.
What if it isn’t Alzheimer’s or Parkinson’s Disease? – September 10, 2013
Suggested Audience
This webinar is ideal for individuals who have been diagnosed with NPH or may have been exhibiting the classic symptoms of the condition, caregivers of older adults, medical professionals, nursing home staff and anyone who has been treated with Parkinson’s, Alzheimer’s and dementia.