We are pleased to offer educational webinars to help you stay informed and current on the latest news surrounding hydrocephalus. These interactive, free webinars are designed to educate our community on a variety of topics which include normal pressure hydrocephalus (NPH), research, shunt technology and more.
Our webinar series features presentations from medical professionals, researchers and others with a direct connection to hydrocephalus. Each webinar is moderated by HA’s Support and Education Staff and are archived and accessible following the event.
Next Webinar
New Results on the Genetic Causes of Congenital Hydrocephalus
March 25, 2019, 5:00 pm ET
Please join the Hydrocephalus Association and Dr. Kristopher Kahle, Assistant Professor of Neurosurgery and Pediatrics at Yale School of Medicine, to learn about the new results from his research on genetic causes of congenital (developmental) hydrocephalus. Many in our community are already part of this important research! Learn more about the study and its potential impact on our understanding of hydrocephalus. https://www.hydroassoc.org/yale-university-study/
Presenter
Kristopher T. Kahle, M.D., Ph.D., is an Assistant Professor of Neurosurgery and Pediatrics at Yale School of Medicine, and Director of Neonatal and Congenital Anomaly Neurosurgery in the Division of Pediatric Neurosurgery. He completed his MD/PhD at the Yale School of Medicine under the mentorship of Richard Lifton, and neurosurgical residency at the Massachusetts General Hospital. After residency, Dr. Kahle completed his pediatric neurosurgery fellowship at Boston Children’s Hospital and was Instructor at Harvard Medical School. Dr. Kahle performed a postdoctoral research fellowship with Stephen Elledge and David Clapham at Harvard University.
Suggested Audience
This webinar is ideal for anyone who wants to learn more about how genetics can impact the development of hydrocephalus in children.
Future Webinars
Please stay tuned for more information regarding our future webinars. Webinar topics and dates are subject to change.
View Past Webinars
Drug Development for the Management of Hydrocephalus – November 14, 2018
Suggested Audience
This webinar is ideal for anyone who wants to learn more about early stage drug development and how the management of CSF production could benefit hydrocephalus patients.
Normal Pressure Hydrocephalus (NPH): What Your Doctors are Thinking Before and After the Shunt is Placed – December 13, 2017
This Webinar was made possible through the generosity of our industry partner Codman, a part of Integra Lifesciences who we thank for supporting this important program!
For more information on iNPH, visit LifeNPH.com.
How to Help Your Teen Find a College Where They Will Be HAPPY and SUCCESSFUL – September 27, 2017
Suggested Audience
This webinar is ideal for parents and caretakers of school aged teenagers and educators who want to learn more about college planning, preparation, and placement process as it relates to hydrocephalus. The presentation will focus on practical skills that will allow your child to be HAPPY and SUCCESSFUL in college.
Resources
Normal Pressure Hydrocephalus (NPH): Treatments and Current Research – August 9, 2017
Suggested Audience
This content is appropriate for patients and families affected by normal pressure hydrocephalus (NPH) as well as for care providers at all levels interested in learning about the history, diagnosis, and treatment of NPH and NPH research conducted by the Adult Hydrocephalus Clinical Research Network (AHCRN).
Go.Be.Mobile. How Technology is Empowering Hydrocephalus Patients – July 25, 2017
Suggested Audience
This content is appropriate for patients and families affected by hydrocephalus as well as for care providers at all levels interested in learning about a new tool for personalized data tracking of hydrocephalus treatments and how this can affect outcomes as well as enhance knowledge and empower patients.
Advocacy for Teenagers and Young Adults – May 16, 2017
Suggested Audience
This webinar is ideal for teenagers and young adults (between the ages of 12-25) who are enthusiastic and interested in becoming hydrocephalus advocates.
Genetic Causes of Congenital Hydrocephalus – March 14, 2017
Suggested Audience
This webinar is ideal for anyone who wants to learn more about how genetics can impact the development of hydrocephalus in children.
Resources
Participate in this study:
Learn more about Genetics and Hydrocephalus:
- Genetic Mutations and their Role in Congenital Hydrocephalus
- Neural Tube Defects (NTD)
- Finding Our Way with L1CAM
Participate in other Clinical Research Studies:
Learn more about the Research HA is Funding:
Health Insurance Exchanges: The Patient Experience – November 4, 2015
Suggested Audience
This webinar is ideal for anyone touched by hydrocephalus who wants to gain a better understanding on how to select an exchange plan and enroll in the coverage that best matches their needs. We welcome patients, caregivers, and their families living to join us.
Adult Hydrocephalus Clinical Research Network Update – October, 5, 2015
Suggested Audience
This webinar is ideal for anyone who wants to know more about work of the Adult Hydrocephalus Clinical Research Network (AHCRN.org). The AHCRN is a multi-center network focused on conducting research to improve the lives of adults with hydrocephalus.
The Next Generation of Hydrocephalus Researchers Part II – June, 16, 2015
Suggested Audience
This webinar is ideal for anyone who wants to meet a former HA-sponsored Mentored Young Investigator and learn more about the latest in hydrocephalus research.
Speak Up: Owning Your Condition – April 30, 2015
Suggested Audience
This webinar is ideal for teens and young adults who are enthusiastic and want to learn how to speak about hydrocephalus and become advocates for themselves and others.
The Next Generation of Hydrocephalus Researchers – April 14, 2015
Suggested Audience
This webinar is ideal for anyone who wants to meet a former HA-sponsored Mentored Young Investigator and learn more about the latest in hydrocephalus research.
Hydrocephalus Treatment Part I: Past, Present, Future of Endoscopic Third Ventriculostomy (ETV) and Endoscopic Third Ventriculostomy with Choroid Plexus Cauterization (ETV/CPC) – March 4, 2015
Suggested Audience
This webinar is ideal for anyone who wants to learn more about the latest on hydrocephalus treatment, including ETV and ETV/CPC.
Resources
- Hydrocephalus Clinical Research Network (HCRN)
- Adult Hydrocephalus Clinical Research Network (AHCRN)
- ETV Fact Sheet
- Complications of ETV and ETV/CPC
- Signs and Symptoms of a Complication
Finding Your Voice: Advocacy Training for Youth Impacted by Hydrocephalus – January 7, 2015
Suggested Audience
This webinar is ideal for teens and young adults who are enthusiastic and interested in becoming hydrocephalus advocates.
Handouts and resources:
- Advocacy and Social Media
- Congressional Meetings Debriefing Form
- Advocacy Toolkit
- Hydrocephalus Action Network
Hope in Progress: Research Update – December 11, 2014
Suggested Audience
This webinar is ideal for anyone who wants to learn more about hydrocephalus research, the Adult Hydrocephalus Clinical Research Network, and HA funded research. We welcome patients, their families, health professionals and researchers to tune in to hear the latest on hydrocephalus research.
Developing an Effective IEP – October 22, 2014
Suggested Audience
This webinar is ideal for parents and caretakers of school aged children, teens, and educators who want to learn more about the IEP process as it relates to individuals with hydrocephalus.
Handouts
For more information on this topic please click here.
What if it isn’t Alzheimer’s or Parkinson’s Disease? – September 10, 2013
Suggested Audience
This webinar is ideal for individuals who have been diagnosed with NPH or may have been exhibiting the classic symptoms of the condition, caregivers of older adults, medical professionals, nursing home staff and anyone who has been treated with Parkinson’s, Alzheimer’s and dementia.
