Our Leadership and Staff

Dedication, passion and strong leadership has shaped the Hydrocephalus Association into the nation's largest and most widely respected organization dedicated to hydrocephalus.

Meet Our Board of Directors

The Hydrocephalus Association Board of Directors is charged with establishing strategic direction, ensuring necessary organizational resources and providing oversight. This passionate group of volunteers accomplishes these responsibilities through defining the organization’s mission, vision and strategic priorities, enhancing HA’s public standing and financial resources, monitoring organizational effectiveness, protecting our assets through financial oversight, and partnering closely with the President and CEO to ensure the integrity and sustainability of the organization.

HA Board of Directors

Board of Directors

Chair

Co-Founder
Dent the Future

Board Member Since 2015

Immediate Past Chair

General Manager for TBS, TNT and truTV

Board Member Since 2016

Vice Chair

Business Strategy Advisor and Professional Coach
Washington, D.C.

Board Member Since 2015

Vice Chair

Chief Executive Officer
Moser Enterprises
St. Petersburg, Florida

Board Member Since 2017

Vice Chair

Principal, RVM Strategies, LLC

Board Member Since 2019

Vice Chair

Visiting Scholar
Georgetown University

Board Member Since 2015

Member

SVP & CRE South Division Head – TD Bank

Board Member Since 2018

Member

Community Volunteer

Board Member Since 2015

Member

Director of Development at Maret School

Board Member since 2020

Member

Chair
Team Hydro

Board Member Since 2015

Member

Chief Strategy and Communications Officer
Mid-Atlantic Permanente Medical Group of Kaiser Permanente
Rockville, Maryland

Board Member Since 2014

Member

Director of the Adult Hydrocephalus Program
University of Calgary
Chair, Adult Hydrocephalus Clinical Research Network

Board Member Since 2014

Member

Chief of Pediatric Neurosurgery, St. Louis Children’s Hospital
Vice Chair of Neurological Surgery, Washington University School of Medicine

Board Member since 2020

Member

CEO of The Ram Foundation
HA’s Support & Education Committee

Board Member Since 2022

Member

Division chief of Neurosurgery and Director of the Neuroscience Institute at Children’s Hospital of Orange county.

Board Member Since 2019

Member

Senior Director for Community Relations
Kings Care Foundation, Los Angeles Kings
Los Angeles, California

Board Member Since 2014

Member

Registered Nurse
Coral Ridge Outpatient Center
Post Anesthesia Care Unit
Ft. Lauderdale, Florida

Board Member Since 2014

Member

Senior Counsel, Clyde & Co US LLP

Board Member Since 2019

Member

Executive Director, Pediatric Dermatology Research Alliance (PeDRA)
HA’s Scientific Advisory Board & Research Committee

Board Member Since 2022

Member

Founder & CEO, Locust Cider

Board Member Since 2023

Member

Vice President of Supply Chain Strategy with Express Scripts at Cigna
Chair of HA St. Louis WALK since 2008

Board Member Since 2022

Member

Professor of Neurology and Neurological Surgery
Director of Adult and Transitional Hydrocephalus and CSF Disorders
University of Washington School of Medicine
Seattle, Washington

Board Member Since 2014

Meet Our Staff

Meet our dedicated team of professionals who work everyday to improve the lives of those living with hydrocephalus and find a cure for this condition. Our staff is small but they are passionate about achieving HA's mission!

HA Staff

Staff

President and Chief Executive Officer

As the President and CEO, Diana’s primary responsibility is the leadership and overall management of all aspects of HA’s operations — governance, administration, finance, and programs.

Chief Operations Officer

As the COO, Amanda is responsible for developing and implementing operations strategies that allow the Hydrocephalus Association (HA) to meet its strategic goals and vision.

Chief Financial Officer

As the Chief Financial Officer, Brian is responsible for managing the financial situation of the organization as well as ensuring it is all accounted for correctly according to generally accepted accounting principles.

Education Manager

As the Education Manager, Jennifer oversees the creation and dissemination of educational and support materials and programs for our community, including our selection of publications and our scholarship programs.

National Director of Research Programs

As the National Director of Research, Dr. Monica Chau is responsible for planning, managing, implementing, and evaluating all aspects of the research program for the Hydrocephalus Association.

Director, Leadership Giving and Signature Events

As Director of Leadership Giving and Signature events, Rachel is part of the Development department and focuses on strengthening relationships across the hydrocephalus community and identifying opportunities for engagement.

Fundraising and Event Administrative Assistant

As the Fundraising and Event Administrative Assistant, Marisa assists the WALK team with data entry, WALk centered social media, and providing support to WALK chairs.

National Director of Marketing and Communications

As the National Director of Marketing and Communications, Judy is responsible for developing and implementing the association’s communications, public relations, and marketing strategies and tactics.

Support Programs Manager

As Support Programs Manager, Lakisha provides direct constituent support and helps to advance the goals of the organization through the development of support programs.

Research Programs Administrator

As the Research Programs Administrator, Noriana aids the National Director of Research Programs in a variety of tasks relating to HA’s research programs.

Advocacy Engagement Manager

As the Advocacy Engagement Manager, Davis is responsible for overseeing the advocacy initiative and strengthening HA’s relationship with federal, state, and local lawmakers.

Database Manager

As Donor Services and Database Manager, Carrie is responsible for overseeing the management and the implementation of the donor database as well as working closely with the Development staff in collaboration of correspondence with constituents.

National Director of Development

As the National Director of Development, Linda is responsible for increasing funds for programs, research, and advocacy, with a specific emphasis on diversifying, increasing, and sustaining support from individuals, corporations and foundations.

Development Manager

As the Development Manager, Gina serves as part of HA’s talented fundraising team. She specializes in targeted prospect research to drive relationships and revenue.

WALK Administrator and Support Specialist

As WALK Administrator and Support Specialist, Phyllis is responsible for the data entry of all WALK donations and supports the WALK team by assisting Volunteer Walk Chairs with software training and management

Operation Manager and Executive Assistant

As the Operation Manager and Executive Assistant, Veronika is responsible for assisting and organizing the office. As well as completing projects and specialized tasks for the Executive team

Marketing and Communications Manager

As the Marketing and Communications Manager, Ines develops all internal and external communications for the association and plays a critical role in promoting public awareness of hydrocephalus and educating the general public about the extent of the condition.

Support & Education Program Assistant

As the Support & Education Assistant, Sierra provides support for daily operations and helps to advance the goals of the organization through the development of educational and support programs.

Director of WALK and Community Fundraising

As the Director of WALK and Community Fundraising, Marina supports volunteer Chairs to ensure the implementation of fundraising strategies and execution of events. She has several years of experience in event management and program coordination.

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