Our Leadership and Staff

Dedication, passion and strong leadership has shaped the Hydrocephalus Association into the nation's largest and most widely respected organization dedicated to hydrocephalus.

Meet Our Board of Directors

The Hydrocephalus Association Board of Directors is charged with establishing strategic direction, ensuring necessary organizational resources and providing oversight. This passionate group of volunteers accomplishes these responsibilities through defining the organization’s mission, vision and strategic priorities, enhancing HA’s public standing and financial resources, monitoring organizational effectiveness, protecting our assets through financial oversight, and partnering closely with the President and CEO to ensure the integrity and sustainability of the organization.

HA Board of Directors

Member

Chief Strategy and Communications Officer
Mid-Atlantic Permanente Medical Group of Kaiser Permanente
Rockville, Maryland

Board Member Since 2014

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Member

Director of the Adult Hydrocephalus Program
University of Calgary
Chair, Adult Hydrocephalus Clinical Research Network

Board Member Since 2014

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Member

Chief of Pediatric Neurosurgery, St. Louis Children’s Hospital
Vice Chair of Neurological Surgery, Washington University School of Medicine

Board Member since 2020

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Member

Division chief of Neurosurgery and Director of the Neuroscience Institute at Children’s Hospital of Orange county.

Board Member Since 2019

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Member

Senior Director for Community Relations
Kings Care Foundation, Los Angeles Kings
Los Angeles, California

Board Member Since 2014

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Member

Registered Nurse
Coral Ridge Outpatient Center
Post Anesthesia Care Unit
Ft. Lauderdale, Florida

Board Member Since 2014

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Member

Professor of Neurology and Neurological Surgery
Director of Adult and Transitional Hydrocephalus and CSF Disorders
University of Washington School of Medicine
Seattle, Washington

Board Member Since 2014

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Meet Our Staff

Meet our dedicated team of professionals who work everyday to improve the lives of those living with hydrocephalus and find a cure for this condition. Our staff is small but they are passionate about achieving HA's mission!

HA Staff

President and Chief Executive Officer

As the President and CEO, Diana’s primary responsibility is the leadership and overall management of all aspects of HA’s operations — governance, administration, finance, and programs.

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Chief Operations Officer

As the COO, Amanda is responsible for developing and implementing operations strategies that allow the Hydrocephalus Association (HA) to meet its strategic goals and vision.

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Chief Financial Officer

As the Chief Financial Officer, Brian is responsible for managing the financial situation of the organization as well as ensuring it is all accounted for correctly according to generally accepted accounting principles. 

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Education Manager

As the Education Manager, Jennifer oversees the creation and dissemination of educational and support materials and programs for our community, including our selection of publications and our scholarship programs.

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National Director of Special Events

As the National Director of Special Events, Randi is responsible for recruiting, training and providing ongoing support for HA’s volunteer WALK Chairs as well as working with volunteers coordinating a wide variety of other fundraising events across the United States.

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Support and Education Assistant

As the Support and Education Assistant, Lena helps with the mailings of educational publications and materials that the Hydrocephalus Association provides to individuals, families, and medical professionals.

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Support Programs Manager

As Support Programs Manager, Lakisha provides direct constituent support and helps to advance the goals of the organization through the development of support programs.

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Operations Manager

As the operations manager Kenise provides front-line office support responsible for the management, administration, and implementation of all aspects of daily office operations for the Hydrocephalus Association.

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Research Programs Administrator

As the Research Programs Administrator, Noriana aids the National Director of Research Programs in a variety of tasks relating to HA’s research programs.

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National Director of Research Programs

As the National Director of Research Programs, Jenna is responsible for planning, managing, implementing, and evaluating all aspects of a research program for the Hydrocephalus Association.

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Associate Director of Communications and Marketing

As the Associate Director of Communications and Marketing, Natalia is responsible for developing and implementing the association’s communications, public relations, and marketing strategies and tactics.

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Database Manager

As Donor Services and Database Manager, Carrie is responsible for overseeing the management and the implementation of the donor database as well as working closely with the Development staff in collaboration of correspondence with constituents.

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National Director of Development

As the National Director of Development, Linda is responsible for increasing funds for programs, research, and advocacy, with a specific emphasis on diversifying, increasing, and sustaining support from individuals, corporations and foundations.

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Development Manager

As the Development Manager, Gina serves as part of HA’s talented fundraising team. She specializes in targeted prospect research to drive relationships and revenue.

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WALK Administrator and Support Specialist

As WALK Administrator and Support Specialist, Phyllis is responsible for the data entry of all WALK donations and supports the WALK team by assisting Volunteer Walk Chairs with software training and management

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Communications and Social Media Manager

As the Communications and Social Media Manager, Ines oversees all Social Media and outbound Communications from the association and plays a critical role in promoting public awareness of hydrocephalus and educating the general public about the extent of the condition.

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Special Events Manager

As a Special Events Manager for the WALKS & Special Events program, Marina supports volunteer Chairs to ensure the
implementation of fundraising strategies and execution of events. She has several years of experience in event management and program coordination.

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