Board of Directors and Staff

Dedication, passion and strong leadership has shaped the Hydrocephalus Association into the nation's largest and most widely respected organization dedicated to hydrocephalus.

Meet Our Board of Directors

The Hydrocephalus Association (HA) Board of Directors is charged with establishing strategic direction, ensuring necessary organizational resources and providing oversight. This passionate group of volunteers accomplishes these responsibilities through defining the organization’s mission, vision and strategic priorities, enhancing HA’s public standing and financial resources, monitoring organizational effectiveness, protecting our assets through financial oversight, and partnering closely with the President and CEO to ensure the integrity and sustainability of the organization.

HA Board of Directors

Board of Directors

Chair

Vice President of Operations for RxBenefits
Chair of HA St. Louis WALK since 2008

Board Member Since 2022

Vice Chair

Director of Development at Maret School

Board Member since 2020

Vice Chair

Executive Director, Pediatric Dermatology Research Alliance (PeDRA)
HA’s Scientific Advisory Board & Research Committee

Board Member Since 2022

Vice Chair

Principal, RVM Strategies, LLC

Board Member Since 2019

Member

EVP and US Head of Commercial Real Estate – TD Bank

Board Member Since 2018

Member

Senior Manager, Process Improvement at Sam’s Club.

Board Member since 2023

Member

Co-Founder
Team Hydro

Board Member Since 2024

Member

Director of the Adult Hydrocephalus Program, University of Calgary
Chair, Adult Hydrocephalus Clinical Research Network
Chair, Medical Advisory Board

Board Member Since 2025

Member

Partner at Donnelly & Harris, LLC

Board Member since 2024

Member

Chair, Department of Neurosurgery at Virginia Commonwealth University School of Medicine

Board Member since 2020

Member

CEO of The Ram Foundation
HA’s Support & Education Committee

Board Member Since 2022

Member

Chief Executive Officer
Moser Enterprises
St. Petersburg, Florida

Board Member Since 2017

Member

Division chief of Neurosurgery and Director of the Neuroscience Institute at Children’s Hospital of Orange county.

Board Member Since 2019

Meet Our Staff

Meet our dedicated team of professionals who work everyday to improve the lives of those living with hydrocephalus and find a cure for this condition. Our staff is small but they are passionate about achieving HA's mission!

HA Staff

Staff

President and Chief Executive Officer

As the President and CEO, Diana’s primary responsibility is the leadership and overall management of all aspects of HA’s operations — governance, administration, finance, and programs.

Chief Operations Officer

As the COO, Amanda is responsible for developing and implementing operations strategies that allow the Hydrocephalus Association (HA) to meet its strategic goals and vision.

Chief Financial Officer

As the Chief Financial Officer, Brian is responsible for managing the financial situation of the organization as well as ensuring it is all accounted for correctly according to generally accepted accounting principles.

Education Manager

As the Education Manager, Jennifer oversees the creation and dissemination of educational and support materials and programs for our community, including our selection of publications and our scholarship programs.

Donor Services & Database Specialist

As the Donor Services and Database Specialist, Amy plays a crucial role in fostering strong donor relationships and supporting fundraising efforts across the Development Department. Amy is responsible for accurately recording, processing, and acknowledging all donations at HA, while maintaining well-organized records in the donor database.

National Director of Research Programs

As the National Director of Research, Dr. Monica Chau is responsible for planning, managing, implementing, and evaluating all aspects of the research program for the Hydrocephalus Association.

Donor Relations Manager

Andrea plays a crucial role as the Donor Relations Manager at HA, contributing significantly to the organization’s fundraising success.

Director, Leadership Giving and Signature Events

As Director of Leadership Giving and Signature events, Rachel is part of the Development department and focuses on strengthening relationships across the hydrocephalus community and identifying opportunities for engagement.

Devin Edwards

Digital Marketing Manager

As the Digital Marketing Manager, Devin oversees the development, management, and implementation of all social media initiatives.

Fundraising and Event Administrative Assistant

As the Fundraising and Event Administrative Assistant, Marisa assists the WALK team with data entry, WALk centered social media, and providing support to WALK chairs.

Support Programs Manager

As Support Programs Manager, Lakisha provides direct constituent support and helps to advance the goals of the organization through the development of support programs.

Davis

Government Relations and Advocacy Manager

As the Government Relations and Advocacy Manager, Davis is responsible for overseeing the advocacy initiative and strengthening HA’s relationship with federal, state, and local lawmakers.

Research Programs Manager

As the Research Programs Manager, Samantha is responsible for administrative and programmatic aspects of the Research Programs Department, including grants administration, program planning, and fostering collaboration with physicians and scientists.

National Director of Development

As the National Director of Development, Linda is responsible for increasing funds for programs, research, and advocacy, with a specific emphasis on diversifying, increasing, and sustaining support from individuals, corporations and foundations.

WALK Administrator and Support Specialist

As WALK Administrator and Support Specialist, Phyllis is responsible for the data entry of all WALK donations and supports the WALK team by assisting Volunteer Walk Chairs with software training and management

Operation Manager and Executive Assistant

As the Operation Manager and Executive Assistant, Veronika is responsible for assisting and organizing the office. As well as completing projects and specialized tasks for the Executive team

Ines Schlegel

Marketing and Communications Manager

As the Marketing and Communications Manager, Ines develops all internal and external communications for the association and plays a critical role in promoting public awareness of hydrocephalus and educating the general public about the extent of the condition.

Support and Education Program Assistant

As the Support & Education Assistant, Sierra provides support for daily operations and helps to advance the goals of the organization through the development of educational and support programs.

Director of WALK and Community Fundraising

As the Director of WALK and Community Fundraising, Marina supports volunteer Chairs to ensure the implementation of fundraising strategies and execution of events. She has several years of experience in event management and program coordination.

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