Advocate With Us

The Hydrocephalus Action Network (HAN) is a grassroots network of volunteers “at the ready” who are willing to take action to help the Hydrocephalus Association advocate on behalf of all those affected by hydrocephalus. The best advocates are individuals living with the condition, family members, medical providers, and others who are directly affected by hydrocephalus. Why? Because we are voters and our votes matter. WE NEED YOU!

By joining the Hydrocephalus Action Network, you will receive:

  • Monthly Advocacy Newsletter that provides updates from Capitol Hill
  • Action alerts about legislation that affects the hydrocephalus community
  • Information on events like Congressional Advocacy Days, Hydrocephalus Caucus Briefings, advocacy webinars, and trainings
  • Invitations to our bi-monthly Action Network Zoom meetings with HA’s Advocacy Team

Tools For Advocates

We provide you with resources to educate yourself and to share with your legislators on the issues that matter the most to our community. The Advocacy Toolkit contains our congressional summary sheets of the issues we are currently advocating for in the U.S. House of Representatives and Senate, the state sheets that break down hydrocephalus research funding in each state, and hydrocephalus fast facts. Print these out to leave with an office after a meeting or attach to an email. You also have access to our Action Center where you can take action directly from our website to have letters sent to your member of Congress.


Please contact the Hydrocephalus Association by telephone at (888) 598-3789 or via email at advocacy@hydroassoc.org.

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