HydroAssist® Privacy Policy

HydroAssist-Icon--webThis privacy policy governs your use of the software application HydroAssist® (“Application”) for mobile devices that was created by the Hydrocephalus Association. The Application gives a patient or legal guardian the ability to voluntarily enter and store information regarding the diagnosis and treatment of hydrocephalus on a mobile device, providing them with a historical record of their treatment by tracking their medical interventions.

What information does the Application obtain and how is it used?

User Provided Information

The Application obtains the information you enter directly into the Application when you download and install the Application from either Apple iTunes or Google Play. We do not ask for you to register in order to use the Application or to store your data.

When you use the Application, it will ask you for information specific to your hydrocephalus treatments. This includes the type of treatment, location of the treatment, shunt manufacturer and model, device settings, procedure date and location, and the name of the surgeon who performed the procedure. You also have the option of entering other personal information such as your name, medical history, your physician’s name and contact information, and other notes. This information is optional and is not required to use the Application. All information is stored locally on the device running the Application and is never transmitted via the Internet to any external servers at any time. Users are responsible for backing up their data using their preferred method of backup based on their smartphone backup procedure.

Automatically Collected Information

In addition, the Application may collect certain anonymous information automatically, including, but not limited to, the type of mobile device you use, the IP address of your mobile device, your mobile operating system, and general information about the way you use the Application.

Does the Application collect precise real time location information of the device?

This Application does not collect precise information about the location of your mobile device.

What are my opt-out rights?

You can stop all collection of information by the Application easily by uninstalling the Application. You may use the standard uninstall processes as may be available as part of your mobile device or via the mobile application marketplace or network.

Data Retention Policy, Managing Your Information

User Provided data is retained on the device for as long as you use the Application. Uninstalling the Application will detete all User Provided data from the device. Please note that some or all of the User Provided Data may be required in order for the Application to function properly.

Because the Application does not collect and/or store information on an external server or in the cloud, you are responsible for backing up the data onto your computer or through whatever backup system you use with your device.


If you are concerned about safeguarding the confidentiality of your information contained in the Application on your device, please use the security features built into your mobile device.


This Privacy Policy may be updated from time to time for any reason. You can find any changes to our Privacy Policy posted here. You are advised to consult this Privacy Policy regularly for any changes, as continued use is deemed approval of all changes.

Your Consent

By using the Application, you are consenting to our processing of your information as set forth in this Privacy Policy now and as amended by us. “Processing,” means storing data on a computer/hand held device or using or touching information in any way, including, but not limited to, collecting, storing, deleting, using, combining and disclosing information, all of which activities will take place in the United States. If you reside outside the United States your information will be transferred, processed and stored there under United States privacy standards.

Contact us

If you have any questions regarding privacy while using the Application, or have questions about our practices, please contact us via email at privacy@hydroassoc.org.

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