Get Support
The Hydrocephalus Association is here to help. We are eager to guide you to the support you need for your particular situation.
We are eager to support you
The Hydrocephalus Association is here to help. We are eager to guide you to the support you need for your particular situation. Our staff shares knowledge that comes from personal experience with hydrocephalus and from talking with people who live with the condition. Expect a listening ear from staff and access to informed and current resources to help you understand and deal with the complexities of hydrocephalus.
Helpline
It’s not uncommon to feel overwhelmed when dealing with a chronic medical condition, and we want you to know there are resources available to you. In addition to educational resources and programs, the Hydrocephalus Association offers a toll-free helpline to provide support when you need it most. Through the helpline, we answer your questions and refer you to helpful educational resources and support programs.
HydrocephalusCONNECT Peer Support
Hydrocephalus affects everyone differently, that’s why it’s important to have someone you can count on to support you in the way that you need. HydrocephalusCONNECT provides you with access to trained volunteers, via phone or email, who have been coping with the complexities of hydrocephalus.
Find a Community Network
It’s important to know that you’re not alone as you deal with hydrocephalus. The Hydrocephalus Association’s Community Network provides localized support, education, and empowerment through community. Our network hosts educational events, support group meetings, and other gatherings that enable individuals and families to connect.