HA funds high-impact research, provides support and educational resources for patients and caregivers, and advocates on behalf of the hydrocephalus community on key policies and legislation.
Since 2009, HA has invested over $16 million in cutting-edge research, making us the largest non-profit, non-governmental funder of hydrocephalus research in the United States.
Our Mission
HA's mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.
Our Vision
Our vision is a world without hydrocephalus.
Learn About Our Approach and Strategy
View our 2023-2025 strategic plan.
Board of Directors and Staff
HA’s Board of Directors and staff work together to advance our mission and create meaningful change for the hydrocephalus community. The Board provides strategic direction and guidance, while our dedicated staff brings expertise, compassion, and a commitment to serving those affected by hydrocephalus. Together, they provide invaluable support to our programs, advocacy efforts, and community outreach.
Medical Advisory Board
HA's Medical Advisory Board (MAB) was established to provide advice and guidance to the staff and Board of Directors. MAB members are selected for their medical knowledge and expertise in the diagnosis and treatment of hydrocephalus, as well as for their compassion and sensitivity to the needs of patients and their families.
Our Printed Newsletters
Our printed newsletter includes our latest initiatives, events taking place, and information about the latest hydrocephalus research, education, and support efforts.
Our Annual Reports and Financials
We aim to be transparent in the use of the funds we receive. View our Annual Reports from the past 10 years, as well as our financials.
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The Latest Research on Shunt Occlusion
Understanding the cause of occluded catheters is key to improving shunt systems and brings hope that future designs will offer more reliable treatments, improving the quality of life for individuals with hydrocephalus and reducing the need for frequent surgeries.
The Scoop from Capitol Hill – February 2025
House and Senate Republicans have been focused on passing the Administration’s priorities. The Senate approved a billion-dollar budget framework focusing on defense and border enforcement funding. On the other side of the Capitol, the House recently passed its own budget framework. This package is wider in scope and costs.
Funding Tips for HA CONNECT: Grants, Aid and Savings
Discover funding options to attend HA CONNECT! Explore financial aid, grants, and creative strategies to make conference participation more affordable.