HA funds high-impact research, provides support and educational resources for patients and caregivers, and advocates on behalf of the hydrocephalus community on key policies and legislation.
Since 2009, HA has invested over $16 million in cutting-edge research, making us the largest non-profit, non-governmental funder of hydrocephalus research in the United States.
Our Mission
HA's mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.
Our Vision
Our vision is a world without hydrocephalus.
Learn About Our Approach and Strategy
View our 2023-2025 strategic plan.
Board of Directors and Staff
HA’s Board of Directors and staff work together to advance our mission and create meaningful change for the hydrocephalus community. The Board provides strategic direction and guidance, while our dedicated staff brings expertise, compassion, and a commitment to serving those affected by hydrocephalus. Together, they provide invaluable support to our programs, advocacy efforts, and community outreach.
Medical & Scientific Advisory Boards
The Hydrocephalus Association’s advisory boards provide expert guidance to the staff and Board of Directors, helping to inform strategic planning and organizational priorities. Members are selected for their deep expertise and experience, offering valuable insights that support research, clinical care, and the needs of individuals and families affected by hydrocephalus.
Our Printed Newsletters
Our printed newsletter includes our latest initiatives, events taking place, and information about the latest hydrocephalus research, education, and support efforts.
Our Annual Reports and Financials
We aim to be transparent in the use of the funds we receive. View our Annual Reports from the past 10 years, as well as our financials.
BLOG
The Hydrocephalus Scoop on Capitol Hill – May 2026
Congress continues to focus on health care affordability in 2026, with hearings examining insurance costs, prescription drug pricing, provider transparency, and access to care. In this month’s Hydrocephalus Scoop on Capitol Hill, learn how these ongoing policy discussions connect to the Hydrocephalus Association’s advocacy priorities, including lower out-of-pocket costs, telehealth access, and medical research funding. We also share updates on the early stages of the 2027 federal funding process and what it could mean for hydrocephalus research and support programs.
The Hydrocephalus Scoop on Capitol Hill – April 2026
From affordability and coverage to telehealth and brain health, lawmakers are weighing policies that could either strengthen access to care or leave patients facing new barriers. For the Hydrocephalus Association, the message is clear: continued advocacy is essential to ensure that patients, families, and caregivers are not left behind.
New HAPPIER Study Highlights Challenges in Accessing Care
New HAPPIER study reveals major gaps in access to care for people with hydrocephalus, including limited specialists, insurance barriers, and high costs.