About Us

The mission of the Hydrocephalus Association is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.

About the Hydrocephalus Association

Founded in 1983 by the parents of children with hydrocephalus, the Hydrocephalus Association (HA) is the nation’s largest and most widely respected organization dedicated to hydrocephalus. We fund high-impact research, provide support and educational resources for patients and caregivers, and advocate on behalf of the hydrocephalus community on key policies and legislation.

Since 2009, HA has invested over $12 million in cutting-edge research, making us the largest non-profit, non-governmental funder of hydrocephalus research in the United States.

Our Mission

HA's mission is to find a cure for hydrocephalus and improve the lives of those impacted by the condition.

Our Vision

Our vision is a world without hydrocephalus.

Learn About Our Approach and Strategy

View Our 2019-2021 Strategic Plan


Our Leadership and Staff
We accomplish our mission with support from our Board of Directors and our dedicated staff.

Meet the Staff and Board of Directors >


Medical Advisory Board
The Medical Advisory Board (MAB) of the Hydrocephalus Association was established to provide advice and guidance to the staff and Board of Directors. MAB members are selected for their medical knowledge and expertise in the diagnosis and treatment of hydrocephalus, as well as for their compassion and sensitivity to the needs of patients and their families.

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Corporate Partners
The Hydrocephalus Association is fortunate to count on the support of several companies from a variety of industries. We are proud to partner with these industry leaders to find a cure for hydrocephalus and improve the lives of those impacted by the condition.

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Our Annual Reports and Financials
We aim to be transparent in the use of the funds we receive. View our Annual Reports from the past 10 years, as well as our financials.

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Newsroom
The media play an important role in helping to raise awareness about hydrocephalus. Visit our Newsroom to view our news releases and other helpful resources.

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See Our Charity Ratings

We are extremely careful with the dollars you have entrusted to us, earning us high marks from charity watchdog groups for our program efficiency, public accountability and cost effectiveness. In fact, we are proud to say that 79% of our total expenses in 2020 were used to support our mission of finding a cure and improving the lives of those impacted by hydrocephalus.