HA Blog

HA Welcomes New Board Member Deitra Matthews, Columbia, SC

August 15, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA. She is CEO of The Ram Foundation and serves on HA’s Support and Education Committee.

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Welcome New Board Member Deitra Matthews

August 11, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA.…

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‘He’s never alone’: See the tattoo dad got to honor his son’s brain surgery

July 27, 2022

Carlos Marquez has a tattoo for each of his children, but this one feels extra special as son Luke has already been through five brain surgeries.

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Life-changing Impact at Hydrocephalus Conference

July 25, 2022

How do you put a life-changing experience into words? The 17th National Conference on Hydrocephalus, is now in the rearview mirror for everyone in attendance from across the country and internationally, but the memories and the connections will leave a lasting impact.

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Medical disorder common to infants found in astronauts; doctors seek solution

July 22, 2022

Medical disorder common to infants found in astronauts; doctors seek solution Was this article helpful?…

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How science, space travel may help families living with neurological conditions

July 22, 2022

How science, space travel may help families living with neurological conditions Was this article helpful?…

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A Father’s Love Knows No Bounds

July 14, 2022

The Marquez Family, and other families, will be attending the National Conference on Hydrocephalus July 14-16 at the Austin Marriott Downtown and are available for interviews. They are also available for phone interviews at any time before or after conference.

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Remembering Dr. Taeun Chang

June 24, 2022

It is with great sadness that the Hydrocephalus Association announces the passing of our colleague…

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Brainy Camps and Camp Headstrong are Back This Year!

March 16, 2022

The camp’s mission is to help campers form friendships, become responsible leaders, and develop independence and self-reliance.

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Statement by Hydrocephalus Association President and CEO Diana Gray on Washington Post Article About Chloe Kral

February 15, 2022

The Washington Post recently published a story about Chloe Kral, who suffered for years and was told she had severe mental illness before discovering later that she had hydrocephalus. Here’s a statement from HA’s President & CEO Diana Gray about Chloe’s remarkable story.

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The Hydrocephalus Scoop on Capitol Hill: Jan/Feb 2022 Update

February 7, 2022

It’s been a busy time in Congress. Find out what we’ve been up to on Capitol Hill!

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Five Scientists Awarded HA Grants for Their Bold and Innovative Work

January 24, 2022

Announcing our 2021 Innovator Award recipients! These brilliant scientists are exploring new ideas about why hydrocephalus develops and testing new treatments to improve long term outcomes.

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HA’s Medical Advisory Board Issues New Statements Regarding COVID-19

January 20, 2022

The Hydrocephalus Association (HA)’s Medical Advisory Board (MAB) recently issued two new consensus statements regarding COVID-19 for people living with hydrocephalus.

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Image scan of Grey Matter Injury

Grey Matter Brain Damage

January 15, 2022

This blog explains the difference between white and grey matter injuries and their effects on the brain.

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Celebrating the Life of Dr. Shirley McBay

December 16, 2021

The Hydrocephalus Association celebrates the life of Dr. Shirley McBay, who passed away in late November. Dr. McBay was the first Black person to receive a doctorate from the University of Georgia and was a pioneer in advocating for diversity in science and math education. She was diagnosed with diabetes and Normal Pressure Hydrocephalus.

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The Benefits of Boxing

December 14, 2021

As a health and fitness professional, Sophia tells us that boxing is not about fighting, she believes that with the proper guidance and precautions, boxing can be an empowering and beneficial form of exercise for people living with chronic conditions like hydrocephalus.

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Transitioning to College: Healthcare Management

December 13, 2021

For many young adults living with hydrocephalus, college is the first time they are managing their medical condition(s) on their own, particularly if the individual has moved away from home to live on campus. For this reason, it is important to put into place a plan for local care, particularly in the event of a medical emergency.

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Transitioning to College: Academics

December 13, 2021

There are a lot of moving parts once a student with hydrocephalus commits to a college and moves on to requesting accommodations (for those that need them), honing their self-advocacy skills, and preparing to navigate their health and wellness needs independently.

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Choosing the Right College

December 13, 2021

Alongside the typical comparisons for choosing a college, like cost, distance from home, academic major, etc., students with hydrocephalus should consider proximity to a medical center with neurosurgical care as well as compare the services and supports that the school offers.

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College Status and Leave Policies

December 13, 2021

Students with hydrocephalus may require more flexibility in their college experience, due to unpredictable hospitalization, medical procedures, and illness. It’s important for students and families to understand the policies on full- and part-time student status as well as leaves of absence before committing to a school.

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