HA Blog
Podcast: Understanding Hydrocephalus: A Conversation with Pediatric Neurosurgeon Dr. Ramin Eskandari
This podcast explores hydrocephalus, treatment options, warning signs, and expert advice from Dr. Ramin Eskandari to guide patients and families.
Podcast: Faith, Family, and Fight: Crystal & Natalie’s Story of Resilience
In this podcast episode, Crystal shares her journey of faith and resilience as she navigates hydrocephalus, cerebral palsy, epilepsy, and autism with her daughter.
Podcast: We Just One-Daying It: Miya + Mila’s Hydrocephalus Story
In our first podcast episode, Miya shares her raw, powerful journey of raising a child with hydrocephalus and cerebral palsy—through crisis and beyond.
Podcast: When the Whole Family’s Admitted: NICU Care & Hope with Dr. Hallie Morris
Hydro Heroes Unite explores NICU life with Dr. Hallie Morris, sharing how hydrocephalus is diagnosed and how families find hope and support.
Friends of General Hospital’s Leslie Charleson Turn Grief Into Advocacy for Normal Pressure Hydrocephalus
Leslie Charleson, beloved for her nearly 50-year run as Dr. Monica Quartermaine on General Hospital, passed away at 79. She lived with NPH.
Building Better Devices: The Impact of the Hydrocephalus Engineering Workshop
The Hydrocephalus Association with the generous support from the Rudi Schulte Research Institute hosted their…
The HAPPIER Registry Paper Is Now Published
We’re thrilled to announce that our HAPPIER registry has been published in a scientific journal—a major step toward ensuring the voices of people with hydrocephalus and their caregivers are reflected in research.
Running For A Cure: Spreading Hope for Hydrocephalus
Running for her son and others with hydrocephalus, Caroline turns awareness into action—one step, one story, one mile at a time.
Celebrating Impact. Fueling Hope. Moving Forward Together
Welcome to the first edition of HA’s Development Round-Up—your inside look at how donor support is driving life-changing hydrocephalus research, expanding education and awareness, and strengthening our community programs.
The Hydrocephalus Scoop on Capitol Hill — July 2025
Congress passed the One Big Beautiful Bill, cutting $1B+ from Medicaid and risking healthcare for 11.8M, including many with chronic conditions like hydrocephalus.
Issue Brief: Expenses Crucial for Biomedical Research – Indirect Costs
While indirect research costs are integral to the long-term sustainability of biomedical research institutions across…
Speaking Up for Kids: Bella Ferris Shares Her Story at UCLA Children’s Hill Day
Bella Ferris and her mother, Gloria, had the privilege to attend the Children’s Hospital Association Speak Now for Kids Family Advocacy Day in Washington, D.C. She represented patients at the UCLA Mattel Children’s Hospital while meeting with congressional leaders and staff.
Hydrocephalus Association Statement on Reconciliation Bill Passage
The Hydrocephalus Association is deeply concerned about the bill’s sweeping cuts and changes to Medicaid. This will have severe impacts on healthcare access and coverage for individuals with chronic conditions and disabilities.
The Hydrocephalus Scoop on Capitol Hill — June 2025
June updates on Medicaid cuts, CDMRP research funding, and telehealth bills impacting the hydrocephalus community. Make your voice heard on the Hill!
Hydrocephalus Association Applauds Introduction of the Medical Research for Our Troops Act
Reps. Carson and Levin introduced the Medical Research for Our Troops Act to restore funding for vital DoD medical research. The Hydrocephalus Association supports the bill to protect research impacting veterans and those with hydrocephalus.
Central Sensitization in Hydrocephalus: Pain Amplification
Learn how central sensitization amplifies pain in hydrocephalus, intensifying chronic symptoms, and discover effective strategies for pain management.
Learning the Brain: Neuroanatomy Basics for Understanding Hydrocephalus
Neuroanatomy Basics for Understanding Hydrocephalus: A simple guide to neuroanatomy and hydrocephalus.
Explainer of the President’s FY 2026 HHS Budget Proposal
President’s FY 2026 budget proposes major NIH cuts, agency mergers, and restructures that could reduce neuroscience and hydrocephalus research funding.
The Hydrocephalus Scoop on Capitol Hill — May 2025
House passes bill with major Medicaid changes—millions could lose coverage. Learn how this impacts the hydrocephalus community and what’s next in the Senate.
Brain condition forces Billy Joel to cancel concerts: The legendary rocker is suffering from NPH, a condition that is affecting his hearing, vision and balance.
The legendary rocker is suffering from a condition that is affecting his hearing, vision and balance. CBS News New York’s Dick Brennan has more on the illness and the prognosis.