HA Blog
Explainer of the President’s FY 2026 HHS Budget Proposal
President’s FY 2026 budget proposes major NIH cuts, agency mergers, and restructures that could reduce neuroscience and hydrocephalus research funding.
Read More
The Hydrocephalus Scoop on Capitol Hill — May 2025
House passes bill with major Medicaid changes—millions could lose coverage. Learn how this impacts the hydrocephalus community and what’s next in the Senate.
Read More
Brain condition forces Billy Joel to cancel concerts: The legendary rocker is suffering from NPH, a condition that is affecting his hearing, vision and balance.
The legendary rocker is suffering from a condition that is affecting his hearing, vision and balance. CBS News New York’s Dick Brennan has more on the illness and the prognosis.
Read More
Billy Joel’s Diagnosis of Normal Pressure Hydrocephalus
The Hydrocephalus Association extends its heartfelt support to Billy Joel and his family following his recent announcement of a diagnosis of Normal Pressure Hydrocephalus (NPH). We commend Mr. Joel for his courage in sharing his health journey, which brings much-needed awareness to this often misunderstood and underdiagnosed condition.
Read More
Redefining Independence with Hydrocephalus
Discover how independence with hydrocephalus is personal. Explore resources, support, and tools to help you live on your terms.
Read More
Medicaid Impact of U.S. House Reconciliation Package on People with Hydrocephalus
Learn how proposed federal Medicaid changes could affect people with hydrocephalus, including burdensome administrative requirements, cuts to vital health services, home care, and coverage for medical equipment.
Read More
Celebrating Neuroscience Nurses: Unsung Heroes of Neuro Care
Neuroscience nurses are the heart of neuro care. During Neuroscience Nurses Week, we honor their vital role in caring for brain and spinal condition patients.
Read More
Neuropsychology 101: Understanding Cognitive Function in Hydrocephalus
Learn how neuropsychology helps identify and manage cognitive symptoms in hydrocephalus—and how research is advancing care and quality of life.
Read More
The Hydrocephalus Scoop on Capitol Hill — April 2025
Congress has returned to Capitol Hill following Easter recess and is beginning the reconciliation process for a major legislative package. Big decisions are being made — and we have everything you need to know.
Read More
Assessing Recent HHS Reductions in Force (RIF) Layoffs and Their Impact on the Hydrocephalus Community
Mass layoffs at HHS are disrupting key health agencies like the FDA, CDC, NIH, and ACL—jeopardizing research, care, and innovation for the hydrocephalus community. These cuts threaten access to treatment, delay medical device approvals, and weaken support systems for patients nationwide.
Read More
Healthy Meal Prep Tips: Plan and Prepare Nutritious Meals
Master meal prep with these tips for planning, cooking, and storing nutritious meals that save time and help you stay on track with your health goals.
Read More
Energy Boosting Foods: Stop Feeling Tired and Fuel Your Day
Stop feeling tired! Eat these power foods to boost your energy, stamina, and vitality. Discover the best meals to fuel your day and keep you energized.
Read More
Helping Teens Navigate Social Dynamics and Build Confidence
Learn strategies to help teens with hydrocephalus navigate social dynamics, build confidence, and overcome challenges like anxiety and communication barriers.
Read More
Overcoming Emotional Struggles and Building Resilience
Living with hydrocephalus presents unique challenges, but emotional health and resilience are key to not just coping, but flourishing despite them.
Read More
Dereck’s Hydrocephalus Journey: Finding the Silver Lining
Discover how Dereck finds silver linings and strength in everyday moments while living with hydrocephalus and overcoming over 500 brain surgeries.
Read More
NPH: Optimize Your Quality of Life with Key Strategies
Discover how to optimize your quality of life with NPH through exercise, support systems, and effective strategies for managing daily challenges.
Read More
Balancing Life with Hydrocephalus: Key Strategies for Success
Discover key strategies for balancing life with hydrocephalus, managing health, relationships, and work, while thriving with practical tips and expert guidance.
Read More
When We Cut Research, We Cut Hope: The Human Cost of Medical Funding Cuts
When we cut research, we do not just slow progress. We delay relief. We postpone innovation. And, for many patients and families, we delay hope.
Read More
Mastering the High School Transition with Hydrocephalus
Mastering high school transition with hydrocephalus starts with the right tools, planning, and support to help students thrive academically and socially.
Read More
A Future Without Brain Surgery? The Push for Non-Invasive Therapies for Hydrocephalus
What if treating hydrocephalus didn’t require brain surgery? The Hydrocephalus Association (HA) is working to turn this vision into reality!
Read More