HA Blog

Announcing our 2022 Hydrocephalus Association Scholarship Recipients!

December 12, 2022

The Hydrocephalus Association (HA) is pleased and honored to announce our 2022 Hydrocephalus Association Scholarship Recipients.

Read More

Diana Gray Honored for Exemplary Service for the National Health Council

December 9, 2022

Diana Gray, M.A., President and CEO of the Hydrocephalus Association, was honored for her outstanding service for the National Health Council (NHC) at their annual membership meeting.

Read More

The Phoenix Community Rallies for Hydrocephalus

December 7, 2022

President and CEO of Anuncia Medical, Inc., will join hundreds of families and medical professionals at the Phoenix WALK to End Hydrocephalus as they rally to raise awareness and critical funds for hydrocephalus.

Read More

Why one family hopes for a ‘smarter’ device

October 26, 2022

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

Read More

Hydrocephalus Spotlight on Two Medical Drama TV Series

October 20, 2022

Hydrocephalus was highlighted with patients on two medical drama TV shows. The Good Doctor and The Resident.

Read More

Oppenheimer Employees WALK To End Hydrocephalus

October 6, 2022

Oppenheimer’s Seattle and Bellevue offices recently participated in the Seattle WALK to end Hydrocephalus. Oppenheimer Financial Professional, Lou Conyard, and his wife Betsy, have been involved in organizing Team Oppenheimer and participating in this effort for years.

Read More

September is Hydrocephalus Awareness Month. How much do you know about this life-threatening condition?

September 26, 2022

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

Read More

What I Know Now: Tips to Prepare for Shunt Surgery

September 23, 2022

If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!

Read More

She Once Thought Becoming a Doctor Wasn’t Possible

September 14, 2022

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

Read More

Detroit Walk to End Hydrocephalus to be held at River Bends Park

September 13, 2022

Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

Read More

Hydrocephalus fundraiser aims to support better treatments and a cure

September 12, 2022

Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

Read More

The Burlington Community Rallies for Hydrocephalus With the Hydrowarrior Ride

September 6, 2022

“We are so excited to be hosting this charity ride and benefit for the fifth year,” said Cathi Roberts, local event lead whose 19 year old daughter has hydrocephalus, “The event has been doubling in size each year. Last year we raised approximately $15k for critical hydroecephalus research and awareness.”

Read More

Welcome New Board Member Michael Siegel, Ph.D.

August 22, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Michael (Mike) Siegel, Ph.D. He is the Executive Director of the Pediatric Dermatology Research Alliance (PeDRA) and serves on our Scientific Advisory Board & Research Committee.

Read More

Welcome New Board Member Stephanie Vogt

August 15, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Stephanie (Buffa) Vogt, M.S. She is a Vice President of Supply Chain Strategy with Express Scripts at Cigna and has served as the chair of the St. Louis WALK to end Hydrocephalus since 2008.

Read More

HA Welcomes New Board Member Deitra Matthews, Columbia, SC

August 15, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA. She is CEO of The Ram Foundation and serves on HA’s Support and Education Committee.

Read More

Welcome New Board Member Deitra Matthews

August 11, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA.…

Read More

‘He’s never alone’: See the tattoo dad got to honor his son’s brain surgery

July 27, 2022

Carlos Marquez has a tattoo for each of his children, but this one feels extra special as son Luke has already been through five brain surgeries.

Read More

Life-changing Impact at Hydrocephalus Conference

July 25, 2022

How do you put a life-changing experience into words? The 17th National Conference on Hydrocephalus, is now in the rearview mirror for everyone in attendance from across the country and internationally, but the memories and the connections will leave a lasting impact.

Read More

Medical disorder common to infants found in astronauts; doctors seek solution

July 22, 2022

Medical disorder common to infants found in astronauts; doctors seek solution Was this article helpful?…

Read More

How science, space travel may help families living with neurological conditions

July 22, 2022

How science, space travel may help families living with neurological conditions Was this article helpful?…

Read More