Brainy Camps and Camp Headstrong are Back with a Twist This Year!

By Natalia Martinez Duncan / June 9, 2020

Camp Head Strong, the summer camp for children and teens living with hydrocephalus, will be going virtual for the first time ever!

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A Conversation with Aesculap About New M.blue Valve

By Natalia Martinez Duncan / May 28, 2020

On May 15th, Aesculap Inc., in partnership with MIETHKE, released a new valve for hydrocephalus patients called the M.blue valve. This week, we spoke with them to learn more about their new valve and what it means for people living with hydrocephalus.

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Join Our National Movement to End Hydrocephalus

By Natalia Martinez Duncan / May 26, 2020

This year we’re turning our WALK to End Hydrocephalus into a national movement that starts NOW wherever you are! That’s right – whether you go for family walks around your neighborhood, a short jog, or hulahoop in your backyard, help us raise awareness and funds for a cure while exercising your body and mind!

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Individuals Diagnosed with Idiopathic Normal Pressure Hydrocephalus Show Improved Quality of Life after Shunting

By Natalia Martinez Duncan / May 18, 2020

A new study found that shunting improved quality of life for people living with Idiopathic Normal Pressure Hydrocephalus (iNPH).

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A Tribute to Dr. James T. Goodrich

By Natalia Martinez Duncan / April 13, 2020

The Hydrocephalus Association and many in the hydrocephalus community were deeply saddened to learn of the passing of Dr. James Goodrich on March 30, 2020. Dr. Goodrich was a pediatric neurosurgeon and longtime friend and supporter of HA.

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HA CONNECT 2020 Goes Virtual

By Natalia Martinez Duncan / April 10, 2020

After much discussion with our conference program planning committee and the leadership of the Hydrocephalus Association (HA), we have decided to change our 16th National Conference on Hydrocephalus, HA CONNECT, from an in-person event to a virtual experience.

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New Resources to Help You Stay Resilient

By Natalia Martinez Duncan / April 7, 2020

Our hydrocephalus community KNOWS resiliency! To help you stay resilient throughout the COVID-19 crisis, we launched a new series on social media called #WeAreResilient.

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Get to Know Dr. Joel Geerling: HA 2019 Innovator Award Grantee

By Natalia Martinez Duncan / March 25, 2020

In the 3rd installment of our Meet the Innovator Awardees Blog Series, we interviewed Dr. Joel Geerling, one of four scientists who received our 2019 Innovator Award, and Maggie Tish, who works in Dr. Geerling’s lab. They delve deeper into their fascinating research on Normal Pressure Hydrocephalus (NPH).

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Update and Information for the Hydrocephalus Community Regarding COVID-19

By Amanda Garzon / March 16, 2020

Many in our community have asked if hydrocephalus is considered a risk factor for severe disease with COVID-19. As a follow up to our previous post, Dr. Michael A. Williams, Chair of HA’s Medical Advisory Board, has reviewed published medical research and found that hydrocephalus has not been mentioned as a specific risk factor in adults or children.

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UPDATE: Hydrocephalus Association Statement on COVID-19

By Natalia Martinez Duncan / March 10, 2020

Several people in the hydrocephalus community have expressed their concern about the novel coronavirus. After consulting with our Medical Advisory Board, read our statement and recommendations.

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Get to Know Dr. Brandon Miller: HA 2019 Innovator Award Grantee

By Natalia Martinez Duncan / February 26, 2020

In the second installment of our Meet the Innovator Awardees Blog Series, we interviewed Dr. Brandon A. Miller, one of four scientists who received an Innovator Award grant.

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New Paper Addresses Challenges of Health Care Transition for Youth with Hydrocephalus

By Natalia Martinez Duncan / February 24, 2020

A new paper published in World Neurosurgery explores the challenges faced by youth during the transition process and the steps necessary to ensure young adults with hydrocephalus receive the longitudinal care they need to lead healthy and supported lives.

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Scout O’Donnell: Using Fashion to Help Others Heal

By Natalia Martinez Duncan / February 14, 2020

After being diagnosed with hydrocephalus at 18, Scout O’Donnell found a way to combine her two passions — fashion and finding a cure for hydrocephalus.

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Get to Know Dr. Bernadette Holdener: HA 2019 Innovator Award Grantee

By Natalia Martinez Duncan / February 10, 2020

In our first installment of our Meet the Innovator Awardees Blog Series, we interview Dr. Bernadette Holdener, one of four scientists who received a Hydrocephalus Association 2019 Innovator Award.

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Add Your Voice to the My PaTH Story Booth Project

By Natalia Martinez Duncan / February 4, 2020

Add your hydrocephalus story to the MyPaTH Story Booth Project to help researchers better understand the hydrocephalus patient experience.

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Four Scientists Awarded HA Grants to Deepen Our Understanding about Hydrocephalus

By Natalia Martinez Duncan / January 27, 2020

There is a lot we do not know about how hydrocephalus develops and how to best treat the condition across our many communities. Our 2019 Innovator Award recipients are looking to change that.

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Study Finds CERTAS™ Plus Programmable Valve Safe from Everyday Magnets

By Natalia Martinez Duncan / January 14, 2020

Can everyday magnets affect programmable shunt valves? A new study found that the CERTAS™ Plus Programmable Valve resisted interference from common household magnets, even at close proximity.

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New Ask the Expert Video Series for Adults Living with Hydrocephalus

By Natalia Martinez Duncan / January 2, 2020

Check out our latest Ask the Expert Video Series developed specifically for adults living with hydrocephalus. The series answers some of the most common questions we receive to our support line.

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High School Student Educates Others about Hydrocephalus

By Natalia Martinez Duncan / January 2, 2020

Mauryce Thomas organized an event in Mobile, AL to educate his community about hydrocephalus. The event raised awareness and $1,320 to support HA’s mission!

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Advocacy Wins for the Hydrocephalus Community

By Natalia Martinez Duncan / January 2, 2020

While impeachment still occupies the headlines, it’s not the only thing that happened this past December in Washington, DC. Amidst all the end-of-year chaos, Congress handed the hydrocephalus community a number of big wins!

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