The Benefits of Informing Your Child’s School about Their Hydrocephalus

By JennBechard / January 20, 2021

Informing your child’s school about hydrocephalus is important. Read these tips to ensure that you’re prepared when talking to the school about your child’s condition.

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Get on the Right Career Track

By JennBechard / January 20, 2021

When choosing a career, college major, or educational program, it’s important to take the time to explore your options.

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Making Your Work Environment Work For You 

By JennBechard / January 19, 2021

Individuals with hydrocephalus can succeed at work despite their condition. Learn how to make your work environment work for you.

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The Hydrocephalus Scoop on Capitol Hill December 2020

By Natalia Martinez Duncan / December 17, 2020

October and November have been a super busy time for all three branches of government (Executive, Legislative and Judicial). Here’s our latest summary of what’s been happening on Capitol Hill.

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The Use of Lumboperitoneal Shunts in iNPH Patients

By Natalia Martinez Duncan / December 15, 2020

In the United States, the standard treatment for idiopathic Normal Pressure Hydrocephalus (iNPH) patients is a ventriculoperitoneal shunt (VPS). But a new study explores the effectiveness of lumboperitoneal shunts (LPS), which have also been shown to improve iNPH symptoms and are widely used in Japan.

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Diana Gray Named Chair of National Health Council Board

By Natalia Martinez Duncan / December 8, 2020

Diana Gray, HA President and CEO, was named Chairperson of the National Health Council (NHC) Board of Directors for 2021. She was elected to the role at the NHC’s annual membership meeting this week.

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Rhaeos CEO Shares Details About Wearable FlowSense Device

By Natalia Martinez Duncan / December 7, 2020

Earlier this year, Rhaeos won MedTech Innovator’s 2020 Global Competition. In a recent conversation with Rhaeos CEO Anna Lisa Somera, Somera discussed the significance of the award and how FlowSense can improve the way hydrocephalus is managed.

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Changing Treatments: Converting from a Shunt to an ETV for the Treatment of Hydrocephalus

By Natalia Martinez Duncan / December 7, 2020

A recent study published in Neurosurgery looked at the success rate of converting from a shunt to an endoscopic third ventriculostomy (ETV) in pediatric and young adult patients. The study, with lead author Dr. David S. Hersh, retrospectively reviewed patient data from three children’s hospitals in the United States.

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Announcing our 2020 Hydrocephalus Association Scholarship Recipients!

By JennBechard / October 12, 2020

We’re pleased to announce the 2020 Hydrocephalus Association Scholarship Award Recipients. HA’s scholarship program was established in 1994 to provide financial assistance to capable and promising teens, young adults, and adults who live with the ongoing challenges and complexities of hydrocephalus.

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The Hydrocephalus Scoop on Capitol Hill for September-October 2020

By Natalia Martinez Duncan / October 6, 2020

In addition to celebrating Hydrocephalus Awareness month, the Hydrocephalus Association has been tracking the ins and outs of what’s happening on Capitol Hill. Read our latest advocacy update!

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A Poem for HydroWarriors

By Natalia Martinez Duncan / September 25, 2020

Amanda Harrinauth is a poet, author, life coach and Special Olympics athlete living with hydrocephalus, vision impairment and autism. For Hydrocephalus Awareness Month, she wrote a poem to inspire others. 

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HA Welcomes New National Director of Development

By Natalia Martinez Duncan / September 22, 2020

Linda Riley has joined the Hydrocephalus Association as the new National Director of Development. Linda brings more than 20 years of fundraising experience to this position.

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Study Explores Quality of Life of Children with Hydrocephalus and Caregivers

By Natalia Martinez Duncan / September 2, 2020

A new study published in the Journal of Neurosurgery: Pediatrics assessed quality of life and mental wellbeing of both children with hydrocephalus and their caregivers.

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Let’s Get Loud for Hydrocephalus Awareness Month!

By Natalia Martinez Duncan / August 31, 2020

September is Hydrocephalus Awareness Month – our chance to bring national attention to the over one million Americans living with hydrocephalus. Let’s make some noise on social media by showing what YOU would do to end hydrocephalus. 

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The Hydrocephalus Scoop on Capital Hill for August 2020

By Amanda Garzon / August 26, 2020

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Sophia Gigante: Finding Strength from Within

By Natalia Martinez Duncan / July 31, 2020

Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.

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Get to Know Dr. Engin Deniz: HA 2019 Innovator Award Grantee

By Natalia Martinez Duncan / July 27, 2020

For our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Engin Deniz, one of four scientists who received a 2019 Innovator Award. Through his research, he hopes to determine how cilia, small hair like structures that move CSF, contribute to post-traumatic hydrocephalus.

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Dorothy Sorlie: A Teacher’s Unbreakable Spirit

By Natalia Martinez Duncan / July 21, 2020

Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.

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Staying out of the Hospital: Comparing Hydrocephalus Treatments in the Pediatric Population

By Natalia Martinez Duncan / July 13, 2020

A new Hydrocephalus Clinical Research Network (HCRN) study examined differences in the number of subsequent surgeries a child with hydrocephalus had to undergo after their initial treatment. The study compared a shunt, an endoscopic third ventriculostomy (ETV), and an ETV with chorioid plexus cauterization (ETV-CPC).

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Over 2,000 People Attend HA’s First-Ever Virtual Conference

By Natalia Martinez Duncan / July 10, 2020

For the first time ever, our National Conference on Hydrocephalus, HA CONNECT, was held entirely online. A record 2,000 people from over 60 countries participated in our virtual sessions and connected through our HA CONNECT mobile app!

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