HA Blog

Diana Gray Honored for Exemplary Service for the National Health Council

December 9, 2022

Diana Gray, M.A., President and CEO of the Hydrocephalus Association, was honored for her outstanding service for the National Health Council (NHC) at their annual membership meeting.

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The Phoenix Community Rallies for Hydrocephalus

December 7, 2022

President and CEO of Anuncia Medical, Inc., will join hundreds of families and medical professionals at the Phoenix WALK to End Hydrocephalus as they rally to raise awareness and critical funds for hydrocephalus.

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Why one family hopes for a ‘smarter’ device

October 26, 2022

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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Hydrocephalus Spotlight on Two Medical Drama TV Series

October 20, 2022

Hydrocephalus was highlighted with patients on two medical drama TV shows. The Good Doctor and The Resident.

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Oppenheimer Employees WALK To End Hydrocephalus

October 6, 2022

Oppenheimer’s Seattle and Bellevue offices recently participated in the Seattle WALK to end Hydrocephalus. Oppenheimer Financial Professional, Lou Conyard, and his wife Betsy, have been involved in organizing Team Oppenheimer and participating in this effort for years.

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September is Hydrocephalus Awareness Month. How much do you know about this life-threatening condition?

September 26, 2022

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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What I Know Now: Tips to Prepare for Shunt Surgery

September 23, 2022

If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!

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She Once Thought Becoming a Doctor Wasn’t Possible

September 14, 2022

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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Detroit Walk to End Hydrocephalus to be held at River Bends Park

September 13, 2022

Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

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Hydrocephalus fundraiser aims to support better treatments and a cure

September 12, 2022

Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

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Welcome New Board Member Michael Siegel, Ph.D.

August 22, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Michael (Mike) Siegel, Ph.D. He is the Executive Director of the Pediatric Dermatology Research Alliance (PeDRA) and serves on our Scientific Advisory Board & Research Committee.

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Welcome New Board Member Stephanie Vogt

August 15, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Stephanie (Buffa) Vogt, M.S. She is a Vice President of Supply Chain Strategy with Express Scripts at Cigna and has served as the chair of the St. Louis WALK to end Hydrocephalus since 2008.

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HA Welcomes New Board Member Deitra Matthews, Columbia, SC

August 15, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA. She is CEO of The Ram Foundation and serves on HA’s Support and Education Committee.

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Welcome New Board Member Deitra Matthews

August 11, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA.…

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‘He’s never alone’: See the tattoo dad got to honor his son’s brain surgery

July 27, 2022

Carlos Marquez has a tattoo for each of his children, but this one feels extra special as son Luke has already been through five brain surgeries.

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Life-changing Impact at Hydrocephalus Conference

July 25, 2022

How do you put a life-changing experience into words? The 17th National Conference on Hydrocephalus, is now in the rearview mirror for everyone in attendance from across the country and internationally, but the memories and the connections will leave a lasting impact.

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Medical disorder common to infants found in astronauts; doctors seek solution

July 22, 2022

Medical disorder common to infants found in astronauts; doctors seek solution Was this article helpful?…

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How science, space travel may help families living with neurological conditions

July 22, 2022

How science, space travel may help families living with neurological conditions Was this article helpful?…

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A Father’s Love Knows No Bounds

July 14, 2022

The Marquez Family, and other families, will be attending the National Conference on Hydrocephalus July 14-16 at the Austin Marriott Downtown and are available for interviews. They are also available for phone interviews at any time before or after conference.

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Remembering Dr. Taeun Chang

June 24, 2022

It is with great sadness that the Hydrocephalus Association announces the passing of our colleague…

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