HA Blog
The Exclusive Hydrocephalus Scoop on the Hill | Key Updates for November 2024
Washington, D.C. is buzzing as Congress pushes key legislation and the Hydrocephalus Association partners with advocates to drive priorities forward. With government funding set to expire on December 20th, a short-term resolution is likely. The new presidential administration and Congress will bring major changes, especially in the first 100 days. Stay tuned!
Read More
The Power of a Second Opinion: Advocating for Your Health
Even though second opinions are a common and accepted practice in medicine, many people feel uncomfortable asking for them.
Read More
Announcing the 2024 Hydrocephalus Association Innovator Award Recipients
The Innovator Awards fund groundbreaking projects advancing hydrocephalus research, driving innovation, and improving outcomes for those impacted worldwide.
Read More
Breaking Myths About Hydrocephalus: What’s Fact and What’s Fiction?
Hydrocephalus is often misunderstood, with myths overshadowing the realities of this invisible condition. This blog breaks down common misconceptions, highlights the facts, and sheds light on the challenges faced by those living with hydrocephalus, proving that what you see on the outside doesn’t always reflect the struggles within.
Read More
Understanding Cerebral/Cortical Visual Impairment (CVI) and Hydrocephalus: How Vision Can Be Affected
Cerebral Visual Impairment (CVI) affects how the brain processes visual information. This article highlights the link between CVI and hydrocephalus, its impact on vision, and ways to support those affected.
Read More
Strategies for Coping with Memory Issues and Forgetfulness
Memory challenges can impact daily life in many ways, whether they’re related to managing medical conditions like hydrocephalus or are part of the natural aging process. Here are some practical strategies, tools, and resources to help manage forgetfulness and enhance your memory.
Read More
Announcing our 2024 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2024 Hydrocephalus Association Scholarship Recipients.
Read More
Traumatic Brain Injuries Delegated as Chronic Condition by Medicare
In a monumental step for Americans living with traumatic brain injury (TBI), the Centers for Medicare and Medicaid (CMS) recently added TBI as a qualifying condition for Medicare Advantage Chronic Special Needs Plans (C-SNP).
Read More
What Hydrocephalus Patients Should Know for Medicare Open Enrollment
As Medicare beneficiaries navigate through the open enrollment period, it is crucial for them to understand the surplus of 2025 changes as they choose a new Medicare insurance plan. The Medicare Open Enrollment Period began on October 15 and will close on December 7th.
Read More
Get the Exclusive Hydrocephalus Scoop on Capitol Hill for October 2024
As healthcare advocates race to secure passage of critical bills before the end of the 118th Congress, the Hydrocephalus Association (HA) is joining forces on Capitol Hill, advocating for vital legislation to support Medicare coverage for breakthrough devices, strengthen the medical workforce, ensure fair billing practices, fund brain research, and raise hydrocephalus awareness.
Read More
Scientists Uncover Emerging Insights on Fluid Systems in the Brain at the iNPH Research Workshop
In October 2024, the Hydrocephalus Association and RSRI hosted a workshop with over 70 experts to discuss cerebrospinal fluid (CSF) movement, a key factor in understanding idiopathic normal pressure hydrocephalus (iNPH).
Read More
Researchers Convene in Washington D.C. to Address a Neurological Condition Commonly Mistaken for Parkinson’s or Alzheimer’s Disease
We are excited to announce the upcoming Research Workshop on idiopathic normal pressure hydrocephalus (iNPH), hosted by the Hydrocephalus Association and the Rudi Schulte Research Institute on October 15-16. iNPH, often misdiagnosed as Parkinson’s or Alzheimer’s, affects an estimated 800,000 U.S. seniors. Experts will present cutting-edge advancements in diagnosis, including how AI and machine learning could improve early detection and treatment tracking.
Read More
Natasha Buchanan said her inspiration behind the walk is her 7-year-old son Zander Buchanan. He’s an active child, and by looking at him, you’d never know he has hydrocephalus.
Natasha Buchanan said her inspiration behind the walk is her 7-year-old son Zander Buchanan. He’s an active child, and by looking at him, you’d never know he has hydrocephalus.
Read More
HA Innovator Awardees Garner Multi-Million Dollar NIH Grants for Hydrocephalus Research
Hydrocephalus Association (HA) is thrilled to highlight the continued success of two of our Innovator Award recipients, Dr. Brandon Miller and Dr. Sheng Chih (Peter) Jin who have recently secured substantial multi-million dollar grants from the National Institutes of Health (NIH).
Read More
‘Society’ of Ryans saves infant Ryan’s life by raising enough money for hydrocephalus treatment in under an hour.
Was this resource helpful? Yes No Submit Cancel Thanks for your feedback!
Read More
You or Your Loved One Has Just Been Diagnosed – What’s Next?
Have you or a loved one been newly diagnosed with hydrocephalus? We’re here to help you on this journey!
Read More
WALK to end Hydrocephalus in Omaha co-chairs joined KETV in studio to discuss this year’s walk
The Omaha Walk to End Hydrocephalus is one of 40 walks across the country. The Co-Chairs of the Omaha walk Karin Donner and Hailee Schmit joined KETV in the studio to discuss this year’s walk.
Read More
Get the Exclusive Hydrocephalus Scoop on Capitol Hill for September 2024
Stay informed with the latest updates on hydrocephalus advocacy from Capitol Hill as we highlight key legislative efforts and community engagement for September 2024.
Read More
Research 101: Generalizability
The concept of Generalizability in research studies is especially important for individuals living with hydrocephalus because there are so many different causes.
Read More
World Hydrocephalus Day is September 20: Join Us in Raising Awareness and Support
Today is World Hydrocephalus Day and we’re joining forces globally to highlight the urgent need for greater awareness, research, and support for those living with this complex condition.
Read More