HA Blog |

Grey’s Anatomy Highlights Misdiagnosis of Normal Pressure Hydrocephalus

March 24, 2015

On Thursday, March 19, 2015, Grey’s Anatomy aired an episode which highlighted Normal Pressure Hydrocephalus and raised awareness of a “treatable dementia.”

My 4-H Speech about Hydrocephalus

March 22, 2015

India is a 5th grade school “buddy” to a Kindergartner who has hydrocephalus. India used her 4-H competition to educate the public and share her friendship.

Making the Hydrocephalus Association a Part of My Legacy

March 18, 2015

At the age of 25, Haylea is thinking about how she will make a lasting impact in the hydrocephalus community through her volunteerism and estate planning.

Predicting the Need for a Shunt after a Brain Bleed

March 5, 2015

Diagnosing the need for a shunt early after someone has had a brain bleed could prevent additional neurological deterioration, study finds.

The ABLE Act Offers Tax Benefits for Hydrocephalus Families

March 3, 2015

The ABLE Act allows families with children with disabilities to save for college and other expenses in tax-deferred accounts. A must read with tax season upon us!

Research 101: An Explanation of Clinical Trials Design

February 25, 2015

Dr. Koschnitzky continues our Science Facts blog series with an explanation of the various clinical trial designs we find in hydrocephalus research.

Research 101: Levels of Evidence in Hydrocephalus Clinical Research Studies

February 19, 2015

Clinical studies are often reported in the news, but how do you know if the study is strong? Dr. Koschnitzky describes how to interpret the results of a study.

A Sad Farewell to a Friend of our Community: Jerome Kersey

February 19, 2015

It is with deep sadness that we share the news of the passing of retired NBA player Jerome Kersey, a keynote speaker at our 2014 Hydrocephalus Conference.

Endoscopic Third Ventriculostomy (ETV) in Children: Prospective, Multicenter Results from the Hydrocephalus Clinical Research Network (HCRN)

February 12, 2015

What determines the success of an ETV for treating hydrocephalus? Dr. Kulkarni shares their initial findings gathered from across HCRN centers.

One Big Family

February 6, 2015

Life at 14 can be tough, but Jillian’s determined to live FULLY and overcome any challenge presented to her by hydrocephalus or just being a teen.

Research UPDATE: Using the Newest Technology to Understand Hydrocephalus

February 5, 2015

How do the cells of an infant’s developing brain react to the pressures of hydrocephalus? Our former MYI recipient, Dr. Eskandari’s, goal is to find out.

From 0 to 60: Driving and Hydrocephalus

January 28, 2015

For teenagers, learning to drive and getting a license is an important rite of passage. Having hydrocephalus adds a layer of complexity to the learning process.

Grey is the new White? Not in the brain!

January 22, 2015

This Science Facts blog explains the difference between white and grey matter in the brain. Helping you untangle complex concepts and language in research studies!

Neurons – a brain superhighway!

January 15, 2015

This month’s Science Facts blog focuses on the neuron and it’s role in basic brain function. Helping you untangle complex concepts and language in research studies!

Hydrocephalus Association Resident’s Prize Award

December 20, 2014

Announcing the Hydrocephalus Association’s 2014 Resident’s Prize Awardee.

Is Your Doctor In Our Physician Directory?

December 4, 2014

Do you have a neurosurgeon, neurologist, or neuropsychologist that you LOVE? Invite your doctor to join the Hydrocephalus Association’s Physician Directory!

Dr. Marion “Jack” Walker Honored for his Contributions to Pediatric Neurosurgery

December 4, 2014

The AANS/CNS Section on Pediatric Neurosurgery awards Dr. Marion L. Walker the 2014 Franc D. Ingraham Award for Distinguished Service and Achievement.

Mary Decker Mentorship Award: Call for Nominations

December 3, 2014

Nominate a dedicated Neuroscience Nurse with demonstrated excellence in neurosurgery, specifically with hydrocephalus, for the Mary Decker Mentorship Award!

Pediatric Hydrocephalus Guidelines on Treatment and Management

November 26, 2014

Guidelines on the treatment and management of pediatric hydrocephalus have been published, with input from HA and members of our Medical Advisory Board.