HA Blog

OpEd: Term ‘Water Head’ Causes Hydrocephalus Community to Take Notice

February 2, 2016

On January 23rd, during the Weekend Update segment on NBC’s Saturday Night Live, Michael Che used the terms “window-licking water heads” to describe followers of Donald Trump. It caused our hydrocephalus community to take notice.

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Hydrocephalus Advocate Joins Scientific Peer Review of Research Applications for the Department of Defense Peer Reviewed Medical Research Program

January 21, 2016

Peer review advocate Barrett O’Connor participated in the evaluation of research applications submitted to the PRMRP sponsored by the Department of Defense.

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Health System Takes Steps to Educate Medical Professionals on Often Misdiagnosed Brain Condition

January 13, 2016

The Greenville Health System (GHS) Neurological Institute will host a symposium on normal pressure hydrocephalus (NPH).

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Health System Takes Steps to Educate Medical Professionals on Often Misdiagnosed Brain Condition

January 13, 2016

The Greenville Health System hosts a symposium on Normal Pressure Hydrocephalus with the support of…

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Announcing the 2015 Innovator Award Grantees

January 7, 2016

2015 Awardees focused on research to better understand why hydrocephalus develops and to identify therapies to prevent or reverse hydrocephalus.

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Mixed Emotions: Heartbreak

December 26, 2015

Jamie Wright, Houston Community Network leader, went to Haiti with a pediatric neurosurgery team from Children’s Memorial Hermann Hospital. This is her experience.

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Hydrocephalus Association 2015 Resident’s Prize Award

December 20, 2015

One way the Hydrocephalus Association promotes research and leadership in hydrocephalus is through our annual…

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Dr. William Whitehead Extolls Virtues of Patient Centeredness in Research

December 18, 2015

Dr. Whitehead shows the benefits of patient involvement in the research planning and information dissemination of the CSF Shunt Entry Site trail.

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Mixed Emotions: Joy

December 16, 2015

Jamie Wright, Houston Community Network leader, went to Haiti with a pediatric neurosurgery team from Children’s Memorial Hermann Hospital. This is her experience.

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Vision Dinner Aims to Accelerate Hydrocephalus Research

December 9, 2015

The Third Annual Vision Dinner successfully raised $500K to launch the Hydrocephalus Association Network for Discovery Science (HANDS).

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Building Our Life Together

November 10, 2015

In a heartwarming blog, Gayle openly shares the thoughts and emotions she experienced as she learned about the reality of loving a man with hydrocephalus .

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Hydrocephalus Community Loses a Trailblazer

November 10, 2015

It is with deep sadness we announce the passing of Noel Tulipan, MD, renowned neurosurgeon and trailblazer in fetal surgery repair for spina bifida.

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Diana Gray Announced as the New Chief Executive Officer

November 9, 2015

The Hydrocephalus Association (HA) is pleased to announce the appointment of Diana Gray as the new Chief Executive Officer (CEO).

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scholarship, hydrocephalus

Announcing 2015 Hydrocephalus Association TTC Scholarship Recipients!

October 28, 2015

The Hydrocephalus Association (HA) is pleased and honored to announce our 2015 Hydrocephalus Association Teens Take Charge Scholarship Recipients.

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College Bound? Tips on the College Application Process

October 26, 2015

Dara Tannariello offers advice on how to tackle the college application process and shares insight from her personal experience.

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Partnering with Government to Shape Disease Research

September 11, 2015

HA played a key role at the annual NINDS Nonprofit Forum, which provides an opportunity for nonprofit leaders to engage in dialogue with NINDS staff.

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New Discovery Makes Researchers Rethink CSF Absorption

September 3, 2015

The discovery of lymphatic vessels in the brain creates a new focus for researchers looking for non-invasive treatments for hydrocephalus.

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scholarship, hydrocephalus

Announcing Our 2015 Hydrocephalus Association Scholarship Recipients!

August 26, 2015

We are pleased to announce our 2015 Hydrocephalus Association Scholarship Recipients!

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The Miami Herald Raises Awareness of Normal Pressure Hydrocephalus

August 26, 2015

When our traditional notions of aging can cloud our ability to ask questions early and often for our loved ones…

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Finding Our Way with L1CAM

August 20, 2015

The causes of hydrocephalus are varied, but one with a clear genetic linkage is X-linked hydrocephalus, a genetic disorder that occurs in about 1 of 30,000 births.

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