HA Blog
Hydrocephalus Association Resident’s Prize Award
Hydrocephalus Association announces Resident Prize Awardee Jennifer Strahle, MD. for her research paper presented at the AANS/CNS Pediatric Section meeting.
Read MoreHCRN-HA Partnership Results in $1.8 Million Hydrocephalus Research Grant
PCORI is awarding a $1.8 million grant in support of a HCRN-proposed randomized control trial to determine the most effective entry site for placing a shunt.
Read MoreAnnouncing our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2014 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
Read MoreThrough the NOSE! Non-invasive Modulation of CSF Absorption
A proof of concept paper shows that drugs delivered through a nasal spray could one day provide a non-surgical way to manage hydrocephalus.
Read MoreBachelorette Contestant Wins our Hearts in Hershey
The Hydrocephalus Association would like to thank Brian Osborne, a season 10 Bachelorette contestant, for supporting our Hydrocephalus Association Hershey, PA WALK.
Read MoreA Sad Farewell to a Rock Legend and HA Advocate: Dick Wagner
It is with a heavy heart that we share the news of the passing of Dick Wagner from respiratory failure following a cardiac procedure two weeks earlier. He was a rock legend, a gentleman living with NPH and advocating for awareness, and a friend of HA.
Read MoreAnnouncing Our 2014 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2014 Hydrocephalus Association Scholarship Recipients.
Read MoreTo Share or Not to Share Your Condition on a First Date?
Hydrocephalus Association Teens Take Charge guest blogger Holly Senatore talks about the thrill of the first date and whether or not to bring up living with hydrocephalus.
Read MoreSolving for X
Ariel Yong, guest blogger for the Hydrocephalus Association Teens Take Charge program, shares her journey with math and her ultimate accomplishment of graduating from college with a degree in mathematics.
Read MoreIn Memoriam: Cynthia E. Solomon
The Hydrocephalus Association is saddened to share the passing of an icon in the hydrocephalus community and one of our co-founders – Cynthia E. Solomon. She dedicated her life to helping others. She will be greatly missed.
Read MoreCongratulations 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients!
The Hydrocephalus Association is so pleased to announce the 2013-2014 Brian Christopher Newcomer Reaching for Racquets Tennis Scholarship Recipients!
Read MoreMary Decker Mentorship Award Recipient Announced
The Hydrocephalus Association is proud to announce Cathy Cartwright as this year’s Mary Decker Mentorship Award recipient for her tremendous passion, caregiving, and nurturing of children with hydrocephalus
Read MoreOne Person CAN Change the World
In Megan Redfearn’s installment of her blog series, Emma Lee and Me, Megan talks about the strength of her daughter and the impact it has had on her and…well…the world!
Read MoreAARP Bulletin Features Normal Pressure Hydrocephalus
The April 2014 issue of the AARP Bulletin featured an article that highlights normal pressure hydrocephalus as a condition that mimics dementia, helping raise awareness about an often undiagnosed or misdiagnosed treatable neurological condition that affects up to 700,000 persons in the United States alone.
Read MoreNever Give Up
Ariel Yong follows up on the topic of our recent video blog by Debby Buffa about kids with hydrocephalus playing sports by talking about the lessons she learned as an athlete.
Read MoreBringing Normal Pressure Hydrocephalus Out of Obscurity
In the 1960s, a treatable form of dementia was a controversial claim. One man questioned things that others were simply content to accept, and to bring it into the real world as a clinically diagnosable and, more importantly a treatable syndrome known as Normal Pressure Hydrocephalus. Who was Dr. Salomon Hakim?
Read MoreHydro Queen
Karly Rodriguez wrote this powerful and honest poem one month prior to her ETV procedure, after being diagnosed with hydrocephalus in 2012.
Read More50th Anniversary of the Recognition of Normal Pressure Hydrocephalus
March 10, 2014, marks the 50th anniversary of the recognition of NPH as a distinct medical condition, allowing countless people access to the treatment needed to return to active lifestyles after possibly years of living with misdiagnosed dementia.
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