The Hydrocephalus Scoop on Capital Hill for August 2020

August 26, 2020

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

Sophia Gigante: Finding Strength from Within

July 31, 2020

Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.

Get to Know Dr. Engin Deniz: HA 2019 Innovator Award Grantee

July 27, 2020

For our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Engin Deniz, one of four scientists who received a 2019 Innovator Award. Through his research, he hopes to determine how cilia, small hair like structures that move CSF, contribute to post-traumatic hydrocephalus.

Dorothy Sorlie: A Teacher’s Unbreakable Spirit

July 21, 2020

Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.

Staying out of the Hospital: Comparing Hydrocephalus Treatments in the Pediatric Population

July 13, 2020

A new Hydrocephalus Clinical Research Network (HCRN) study examined differences in the number of subsequent surgeries a child with hydrocephalus had to undergo after their initial treatment. The study compared a shunt, an endoscopic third ventriculostomy (ETV), and an ETV with chorioid plexus cauterization (ETV-CPC).

Over 2,000 People Attend HA’s First-Ever Virtual Conference

July 10, 2020

For the first time ever, our National Conference on Hydrocephalus, HA CONNECT, was held entirely online. A record 2,000 people from over 60 countries participated in our virtual sessions and connected through our HA CONNECT mobile app!

Brainy Camps and Camp Headstrong are Back with a Twist This Year!

June 9, 2020

Camp Head Strong, the summer camp for children and teens living with hydrocephalus, will be going virtual for the first time ever!

A Conversation with Aesculap About New Valve

May 28, 2020

On May 15th, Aesculap Inc., in partnership with MIETHKE, released a new valve for hydrocephalus patients called the valve. This week, we spoke with them to learn more about their new valve and what it means for people living with hydrocephalus.

Join Our National Movement to End Hydrocephalus

May 26, 2020

This year we’re turning our WALK to End Hydrocephalus into a national movement that starts NOW wherever you are! That’s right – whether you go for family walks around your neighborhood, a short jog, or hulahoop in your backyard, help us raise awareness and funds for a cure while exercising your body and mind!

Individuals Diagnosed with Idiopathic Normal Pressure Hydrocephalus Show Improved Quality of Life after Shunting

May 18, 2020

A new study found that shunting improved quality of life for people living with Idiopathic Normal Pressure Hydrocephalus (iNPH).

A Tribute to Dr. James T. Goodrich

April 13, 2020

The Hydrocephalus Association and many in the hydrocephalus community were deeply saddened to learn of the passing of Dr. James Goodrich on March 30, 2020. Dr. Goodrich was a pediatric neurosurgeon and longtime friend and supporter of HA.

HA CONNECT 2020 Goes Virtual

April 10, 2020

After much discussion with our conference program planning committee and the leadership of the Hydrocephalus Association (HA), we have decided to change our 16th National Conference on Hydrocephalus, HA CONNECT, from an in-person event to a virtual experience.