New Resources to Help You Stay Resilient

Our hydrocephalus community KNOWS resiliency! To help you stay resilient throughout the COVID-19 crisis, we launched a new series on social media called #WeAreResilient.

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Get to Know Dr. Joel Geerling: HA 2019 Innovator Award Grantee

In the 3rd installment of our Meet the Innovator Awardees Blog Series, we interviewed Dr. Joel Geerling, one of four scientists who received our 2019 Innovator Award, and Maggie Tish, who works in Dr. Geerling’s lab. They delve deeper into their fascinating research on Normal Pressure Hydrocephalus (NPH).

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Update and Information for the Hydrocephalus Community Regarding COVID-19

Many in our community have asked if hydrocephalus is considered a risk factor for severe disease with COVID-19. As a follow up to our previous post, Dr. Michael A. Williams, Chair of HA’s Medical Advisory Board, has reviewed published medical research and found that hydrocephalus has not been mentioned as a specific risk factor in adults or children.

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UPDATE: Hydrocephalus Association Statement on COVID-19

Several people in the hydrocephalus community have expressed their concern about the novel coronavirus. After consulting with our Medical Advisory Board, read our statement and recommendations.

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Get to Know Dr. Brandon Miller: HA 2019 Innovator Award Grantee

In the second installment of our Meet the Innovator Awardees Blog Series, we interviewed Dr. Brandon A. Miller, one of four scientists who received an Innovator Award grant.

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New Paper Addresses Challenges of Health Care Transition for Youth with Hydrocephalus

A new paper published in World Neurosurgery explores the challenges faced by youth during the transition process and the steps necessary to ensure young adults with hydrocephalus receive the longitudinal care they need to lead healthy and supported lives.

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Scout O’Donnell: Using Fashion to Help Others Heal

After being diagnosed with hydrocephalus at 18, Scout O’Donnell found a way to combine her two passions — fashion and finding a cure for hydrocephalus.

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Get to Know Dr. Bernadette Holdener: HA 2019 Innovator Award Grantee

In our first installment of our Meet the Innovator Awardees Blog Series, we interview Dr. Bernadette Holdener, one of four scientists who received a Hydrocephalus Association 2019 Innovator Award.

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Add Your Voice to the My PaTH Story Booth Project

Add your hydrocephalus story to the MyPaTH Story Booth Project to help researchers better understand the hydrocephalus patient experience.

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Four Scientists Awarded HA Grants to Deepen Our Understanding about Hydrocephalus

There is a lot we do not know about how hydrocephalus develops and how to best treat the condition across our many communities. Our 2019 Innovator Award recipients are looking to change that.

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Local Mom on a Mission to Find a Cure for Son’s Brain Disorder

Will organize new WALK to End Hydrocephalus in Decatur Lucky McMahon was just one day old when he had his first brain surgery to treat his hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Now, at five years old, Lucky has endured five brain surgeries and […]

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Study Finds CERTAS™ Plus Programmable Valve Safe from Everyday Magnets

Can everyday magnets affect programmable shunt valves? A new study found that the CERTAS™ Plus Programmable Valve resisted interference from common household magnets, even at close proximity.

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