Isabella Advocates for Children in Congress

November 29, 2021
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Like many kids living with hydrocephalus, Isabella is a fighter. This year, she brought her fighting spirit to Congress advocating for better healthcare services for children!

scholarship, hydrocephalus

Announcing our 2021 Hydrocephalus Association Scholarship Recipients!

November 29, 2021
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The Hydrocephalus Association (HA) is pleased and honored to announce our 2021 Hydrocephalus Association Scholarship Recipients.

Fighting for Hydrocephalus Funding in Congress. October Update

November 8, 2021
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October has been a busy time for Congress, and the Hydrocephalus Association has been hard at work ensuring that we have a seat at the table. We have an exciting new bill introduced and an update on congressional funding for hydrocephalus research. 

Research 101: Generalizability

November 5, 2021
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The concept of Generalizability in research studies is especially important for individuals living with hydrocephalus because there are so many different causes.

Congressman Mike Levin Joins Congressional Hydrocephalus Caucus

October 20, 2021
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Caucus helps families impacted by a brain condition that has no cure. Rep. Mike Levin (CA-49) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Levin’s support of children and…

Congresswoman Cindy Axne Joins Congressional Hydrocephalus Caucus

October 20, 2021
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Caucus helps find solutions for the leading cause of brain surgery in children. Rep. Cindy Axne (IA-3) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Axne’s support of families…

Complications of ETV

The Importance of a Support System

October 19, 2021
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Living with hydrocephalus can feel overwhelming at times. That’s why building a strong support system is so important. Our team of trained professionals is here to help! Our staff will listen to your concerns and connect you with helpful resources.

The Hydrocephalus Scoop on Capitol Hill – Sept/Oct 2021

October 4, 2021
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The Hydrocephalus Association has been busy protecting hydrocephalus-related research dollars in Congress, and working with members Congress to recognize National Hydrocephalus Awareness Month.

Congressman Lloyd Doggett Recognizes September as Hydrocephalus Awareness Month

September 29, 2021
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Raises awareness of the leading cause of brain surgery in children. There are over 1 million Americans living with hydrocephalus, a chronic neurological condition that has no cure and can…

Local Mom on a Mission to Find a Cure for Son’s Brain Disorder

September 28, 2021
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Will take part in Cincinnati WALK to End Hydrocephalus on Oct. 3rd Chase Parker Lorenzo was just 9 months old when he was diagnosed with hydrocephalus, a life-threatening neurological condition…

Massachusetts Governor Names September Hydrocephalus Awareness Month

September 14, 2021
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Hydrocephalus is the leading cause of brain surgery in children. Every 15 minutes, a brain surgery is performed to treat hydrocephalus, a life-threatening brain disorder that affects over 1 million…

Make Some Noise for Hydrocephalus Awareness Month!

August 13, 2021
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September is Hydrocephalus Awareness Month (HAM), our chance to shine a light on hydrocephalus and how it impacts our community!