Local Mom Living with Brain Disorder Fights for a Cure

Hopes to raise funds for a cure at the New Orleans WALK to End Hydrocephalus Oct. 3 Imagine living your entire life with headaches and then finding out that they were due to an incurable brain disorder that can only be treated with brain surgery? That’s what happened to Lori Logan, a local mom who […]

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A Poem for HydroWarriors

Amanda Harrinauth is a poet, author, life coach and Special Olympics athlete living with hydrocephalus, vision impairment and autism. For Hydrocephalus Awareness Month, she wrote a poem to inspire others. 

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HA Welcomes New National Director of Development

Linda Riley has joined the Hydrocephalus Association as the new National Director of Development. Linda brings more than 20 years of fundraising experience to this position.

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Baltimore Mom on a Mission to Find a Cure for Son’s Brain Disorder

Organized virtual walk in Baltimore to raise money for research. Jacob Heston was just four weeks old when he was diagnosed with hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Now at 4 years old, Jacob has endured six brain surgeries to treat his condition. That’s […]

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Bergen County Board of Commissioners Issues Resolution Naming September Hydrocephalus Awareness Month

Hydrocephalus is the leading cause of brain surgery in children. Today there are over 1 million Americans living with hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. To raise awareness of this condition, the Bergen County Board of Commissioners adopted a resolution naming September Hydrocephalus Awareness […]

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Study Explores Quality of Life of Children with Hydrocephalus and Caregivers

A new study published in the Journal of Neurosurgery: Pediatrics assessed quality of life and mental wellbeing of both children with hydrocephalus and their caregivers.

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Let’s Get Loud for Hydrocephalus Awareness Month!

September is Hydrocephalus Awareness Month – our chance to bring national attention to the over one million Americans living with hydrocephalus. Let’s make some noise on social media by showing what YOU would do to end hydrocephalus. 

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The Hydrocephalus Scoop on Capital Hill for August 2020

Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.

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Sophia Gigante: Finding Strength from Within

Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.

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Get to Know Dr. Engin Deniz: HA 2019 Innovator Award Grantee

For our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Engin Deniz, one of four scientists who received a 2019 Innovator Award. Through his research, he hopes to determine how cilia, small hair like structures that move CSF, contribute to post-traumatic hydrocephalus.

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Dorothy Sorlie: A Teacher’s Unbreakable Spirit

Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.

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Staying out of the Hospital: Comparing Hydrocephalus Treatments in the Pediatric Population

A new Hydrocephalus Clinical Research Network (HCRN) study examined differences in the number of subsequent surgeries a child with hydrocephalus had to undergo after their initial treatment. The study compared a shunt, an endoscopic third ventriculostomy (ETV), and an ETV with chorioid plexus cauterization (ETV-CPC).

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