Congressman TJ Cox Joins Congressional Hydrocephalus Caucus

Caucus will help families in California’s Central Valley impacted by a brain condition that has no cure This week, Congressman TJ Cox (D-CA) announced that he has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Representative Cox’s support for our community. His action reflects a welcome commitment to working with […]

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James Forrest Vedder Hydrocephalus Research Challenge

The challenge is made possible through the generosity of Ms. Leslys Vedder, in tribute to her late husband, James Forrest Vedder, PhD, a scholar, archaeologist and physicist.

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HA WALKs Help Raise Over $2 Million for Key Programs

Over 15,000 individuals and families participated in a WALK to End Hydrocephalus this year, raising over $2 million to support HA’s mission!

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The Hydrocephalus Scoop on Capitol Hill

Believe it or not, the impeachment debate isn’t the only thing happening in Washington, DC! Here’s a quick rundown.

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Changing Lives This Giving Tuesday

Giving Tuesday is on December 3rd this year! We hope you’ll stand with us this year and support the Hydrocephalus Association!

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St. Louis Event Celebrates 10th Anniversary of HA’s Research Initiative

Families and researchers from across the country came together on Nov. 3 to celebrate the 10th Anniversary of HA’s Research Initiative. The event, held in St. Louis, MO, highlighted the successes of our research investments and honored the trailblazers who started it all.

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NYC Grandmother Fights for a Cure for Leading Cause of Brain Surgery in Children

Will take part in the NYC WALK to End Hydrocephalus on Nov. 9 Dreame Saliyah Monplaisir was just 3 months old when she had her first brain surgery to treat her hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. As is often the case, Dreame’s family […]

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Caucus Briefing Educates Members of Congress About Hydrocephalus

Over 60 people attended the Hydrocephalus Caucus Briefing on 10/17. The briefing, hosted by the Hydrocephalus Association and PHF, explored how hydrocephalus impacts patients & how Congress can help.

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Medical Experts and Patients Educate New Jersey Families About Brain Disorder That Affects Over 1 Million Americans

Dementia, gait disturbance, and incontinence. Typically, when older adults have these symptoms, they’re told they have diseases like Alzheimer’s, Parkinson’s or a host of other illnesses, when in many cases they are suffering from a treatable condition called Normal Pressure Hydrocephalus (NPH). Join the Hydrocephalus Association at its first Hydrocephalus Education Day in Neptune, NJ on Nov. 9th, where medical experts and patients will discuss NPH symptoms, and share information about other forms of hydrocephalus.

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Hydrocephalus Association Scholarships

Announcing our 2019 Hydrocephalus Association Scholarship Recipients!

The Hydrocephalus Association (HA) is pleased and honored to announce our 2019 Hydrocephalus Association Scholarship Recipients.

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Hydrocephalus Action Network

URGENT: Contact your Member of Congress

We need your help getting members of Congress and their staff to a Congressional Hydrocephalus Caucus briefing on October 17th. Please take a moment to call & e-mail their offices to ask them to attend. You can learn more about the briefing by clicking here. This shouldn’t take more than 10 minutes and is very […]

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Hydrocephalus Awareness Month Resolution Introduced in Congress

The bipartisan resolution was introduced by Congressmen Chris Smith and Lloyd Doggett Today, Representatives Chris Smith (R-NJ) and Lloyd Doggett (D-TX) joined forces to introduce H. Res. 605, a bipartisan resolution supporting Hydrocephalus Awareness Month. As co-chairs of the Congressional Hydrocephalus Caucus, Doggett and Smith are leading efforts to raise awareness of the condition on […]

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