Get to Know Dr. Bernadette Holdener: HA 2019 Innovator Award Grantee
In our first installment of our Meet the Innovator Awardees Blog Series, we interview Dr. Bernadette Holdener, one of four scientists who received a Hydrocephalus Association 2019 Innovator Award.
Add Your Voice to the My PaTH Story Booth Project
Add your hydrocephalus story to the MyPaTH Story Booth Project to help researchers better understand the hydrocephalus patient experience.
Four Scientists Awarded HA Grants to Deepen Our Understanding about Hydrocephalus
There is a lot we do not know about how hydrocephalus develops and how to best treat the condition across our many communities. Our 2019 Innovator Award recipients are looking to change that.
Local Mom on a Mission to Find a Cure for Son’s Brain Disorder
Will organize new WALK to End Hydrocephalus in Decatur Lucky McMahon was just one day old when he had his first brain surgery to treat his hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Now, at five years old, Lucky has endured five brain surgeries and […]
Study Finds CERTAS™ Plus Programmable Valve Safe from Everyday Magnets
Can everyday magnets affect programmable shunt valves? A new study found that the CERTAS™ Plus Programmable Valve resisted interference from common household magnets, even at close proximity.
An Easy Way to Shop on AmazonSmile!
Your Amazon mobile app is not able to support HA when your purchase from your phone. But we have a great hack for you…
Advocacy Wins for the Hydrocephalus Community
While impeachment still occupies the headlines, it’s not the only thing that happened this past December in Washington, DC. Amidst all the end-of-year chaos, Congress handed the hydrocephalus community a number of big wins!
High School Student Educates Others about Hydrocephalus
Mauryce Thomas organized an event in Mobile, AL to educate his community about hydrocephalus. The event raised awareness and $1,320 to support HA’s mission!
New Ask the Expert Video Series for Adults Living with Hydrocephalus
Check out our latest Ask the Expert Video Series developed specifically for adults living with hydrocephalus. The series answers some of the most common questions we receive to our support line.
Congressman TJ Cox Joins Congressional Hydrocephalus Caucus
Caucus will help families in California’s Central Valley impacted by a brain condition that has no cure This week, Congressman TJ Cox (D-CA) announced that he has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Representative Cox’s support for our community. His action reflects a welcome commitment to working with […]
James Forrest Vedder Hydrocephalus Research Challenge
The challenge is made possible through the generosity of Ms. Leslys Vedder, in tribute to her late husband, James Forrest Vedder, PhD, a scholar, archaeologist and physicist.
HA WALKs Help Raise Over $2 Million for Key Programs
Over 15,000 individuals and families participated in a WALK to End Hydrocephalus this year, raising over $2 million to support HA’s mission!