Hydrocephalus Blog & Resources

Why one family hopes for a ‘smarter’ device

October 26, 2022

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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Hydrocephalus Spotlight on Two Medical Drama TV Series

October 20, 2022

Hydrocephalus was highlighted with patients on two medical drama TV shows. The Good Doctor and The Resident.

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Oppenheimer Employees WALK To End Hydrocephalus

October 6, 2022

Oppenheimer’s Seattle and Bellevue offices recently participated in the Seattle WALK to end Hydrocephalus. Oppenheimer Financial Professional, Lou Conyard, and his wife Betsy, have been involved in organizing Team Oppenheimer and participating in this effort for years.

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September is Hydrocephalus Awareness Month. How much do you know about this life-threatening condition?

September 26, 2022

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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What I Know Now: Tips to Prepare for Shunt Surgery

September 23, 2022

If you are an adult with NPH heading into your first shunt surgery or revision Frank Salamone has some tips for you!

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She Once Thought Becoming a Doctor Wasn’t Possible

September 14, 2022

Dr. Jamie Wright, diagnosed with hydrocephalus as an infant, begins her second year as a UW Medicine neurology resident.

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Detroit Walk to End Hydrocephalus to be held at River Bends Park

September 13, 2022

Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

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Hydrocephalus fundraiser aims to support better treatments and a cure

September 12, 2022

Joshua is a twin and a week after he and his brother Jacob were born, Emily and her husband, Jimmy Sajor, were told Joshua has hydrocephalus and would never crawl, walk or speak!

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The Burlington Community Rallies for Hydrocephalus With the Hydrowarrior Ride

September 6, 2022

“We are so excited to be hosting this charity ride and benefit for the fifth year,” said Cathi Roberts, local event lead whose 19 year old daughter has hydrocephalus, “The event has been doubling in size each year. Last year we raised approximately $15k for critical hydroecephalus research and awareness.”

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Welcome New Board Member Michael Siegel, Ph.D.

August 22, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Michael (Mike) Siegel, Ph.D. He is the Executive Director of the Pediatric Dermatology Research Alliance (PeDRA) and serves on our Scientific Advisory Board & Research Committee.

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Welcome New Board Member Stephanie Vogt

August 15, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Stephanie (Buffa) Vogt, M.S. She is a Vice President of Supply Chain Strategy with Express Scripts at Cigna and has served as the chair of the St. Louis WALK to end Hydrocephalus since 2008.

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HA Welcomes New Board Member Deitra Matthews, Columbia, SC

August 15, 2022

The Hydrocephalus Association (HA) would like to warmly welcome new board member Deitra Matthews, MPA. She is CEO of The Ram Foundation and serves on HA’s Support and Education Committee.

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