Hydrocephalus Blog & Resources

Strategies for Coping with Memory Issues and Forgetfulness, stress reduction

Strategies for Coping with Memory Issues and Forgetfulness

November 19, 2024

Memory challenges can impact daily life in many ways, whether they’re related to managing medical conditions like hydrocephalus or are part of the natural aging process. Here are some practical strategies, tools, and resources to help manage forgetfulness and enhance your memory.

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Announcing our 2024 Hydrocephalus Association Scholarship Recipients!

November 18, 2024

The Hydrocephalus Association (HA) is pleased and honored to announce our 2024 Hydrocephalus Association Scholarship Recipients.

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Traumatic Brain Injuries Delegated as Chronic Condition by Medicare

November 13, 2024

In a monumental step for Americans living with traumatic brain injury (TBI), the Centers for Medicare and Medicaid (CMS) recently added TBI as a qualifying condition for Medicare Advantage Chronic Special Needs Plans (C-SNP).

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open enrollment

What Hydrocephalus Patients Should Know for Medicare Open Enrollment

November 13, 2024

As Medicare beneficiaries navigate through the open enrollment period, it is crucial for them to understand the surplus of 2025 changes as they choose a new Medicare insurance plan. The Medicare Open Enrollment Period began on October 15 and will close on December 7th. 

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Hydrocephalus Scoop Capitol Hill October

Get the Exclusive Hydrocephalus Scoop on Capitol Hill for October 2024

October 28, 2024

As healthcare advocates race to secure passage of critical bills before the end of the 118th Congress, the Hydrocephalus Association (HA) is joining forces on Capitol Hill, advocating for vital legislation to support Medicare coverage for breakthrough devices, strengthen the medical workforce, ensure fair billing practices, fund brain research, and raise hydrocephalus awareness.

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iNPH Research Workshop

Scientists Uncover Emerging Insights on Fluid Systems in the Brain at the iNPH Research Workshop

October 24, 2024

In October 2024, the Hydrocephalus Association and RSRI hosted a workshop with over 70 experts to discuss cerebrospinal fluid (CSF) movement, a key factor in understanding idiopathic normal pressure hydrocephalus (iNPH).

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Press Release, Press Releases

Researchers Convene in Washington D.C. to Address a Neurological Condition Commonly Mistaken for Parkinson’s or Alzheimer’s Disease

October 14, 2024

We are excited to announce the upcoming Research Workshop on idiopathic normal pressure hydrocephalus (iNPH), hosted by the Hydrocephalus Association and the Rudi Schulte Research Institute on October 15-16. iNPH, often misdiagnosed as Parkinson’s or Alzheimer’s, affects an estimated 800,000 U.S. seniors. Experts will present cutting-edge advancements in diagnosis, including how AI and machine learning could improve early detection and treatment tracking.

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Inspiring Hydrocephalus Journey

Natasha Buchanan said her inspiration behind the walk is her 7-year-old son Zander Buchanan. He’s an active child, and by looking at him, you’d never know he has hydrocephalus.

October 14, 2024

Natasha Buchanan said her inspiration behind the walk is her 7-year-old son Zander Buchanan. He’s an active child, and by looking at him, you’d never know he has hydrocephalus.

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HA Innovator Awardees Garner Multi-Million Dollar NIH Grants for Hydrocephalus Research

October 7, 2024

Hydrocephalus Association (HA) is thrilled to highlight the continued success of two of our Innovator Award recipients, Dr. Brandon Miller and Dr. Sheng Chih (Peter) Jin who have recently secured substantial multi-million dollar grants from the National Institutes of Health (NIH).

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‘Society’ of Ryans saves infant Ryan’s life by raising enough money for hydrocephalus treatment in under an hour.

October 3, 2024

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You or Your Loved One Has Just Been Diagnosed – What’s Next?

October 2, 2024

Have you or a loved one been newly diagnosed with hydrocephalus? We’re here to help you on this journey!

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WALK to end Hydrocephalus in Omaha co-chairs joined KETV in studio to discuss this year’s walk

September 30, 2024

The Omaha Walk to End Hydrocephalus is one of 40 walks across the country. The Co-Chairs of the Omaha walk Karin Donner and Hailee Schmit joined KETV in the studio to discuss this year’s walk.

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