HA Welcomes New National Director of Development
Linda Riley has joined the Hydrocephalus Association as the new National Director of Development. Linda brings more than 20 years of fundraising experience to this position.
Study Explores Quality of Life of Children with Hydrocephalus and Caregivers
A new study published in the Journal of Neurosurgery: Pediatrics assessed quality of life and mental wellbeing of both children with hydrocephalus and their caregivers.
Let’s Get Loud for Hydrocephalus Awareness Month!
September is Hydrocephalus Awareness Month – our chance to bring national attention to the over one million Americans living with hydrocephalus. Let’s make some noise on social media by showing what YOU would do to end hydrocephalus.
The Hydrocephalus Scoop on Capital Hill for August 2020
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
Sophia Gigante: Finding Strength from Within
Born with hydrocephalus and later developing hypotonia, Sophia Gigante was tired of hearing doctors tell her no. But at age 16, a trip to the gym changed everything and she soon realized there wasn’t much she couldn’t do.
Get to Know Dr. Engin Deniz: HA 2019 Innovator Award Grantee
For our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Engin Deniz, one of four scientists who received a 2019 Innovator Award. Through his research, he hopes to determine how cilia, small hair like structures that move CSF, contribute to post-traumatic hydrocephalus.
Dorothy Sorlie: A Teacher’s Unbreakable Spirit
Dorothy Sorlie spent months suffering with debilitating symptoms until finally being diagnosed with NPH. Now she educates others about this little-known condition.
Staying out of the Hospital: Comparing Hydrocephalus Treatments in the Pediatric Population
A new Hydrocephalus Clinical Research Network (HCRN) study examined differences in the number of subsequent surgeries a child with hydrocephalus had to undergo after their initial treatment. The study compared a shunt, an endoscopic third ventriculostomy (ETV), and an ETV with chorioid plexus cauterization (ETV-CPC).
Over 2,000 People Attend HA’s First-Ever Virtual Conference
For the first time ever, our National Conference on Hydrocephalus, HA CONNECT, was held entirely online. A record 2,000 people from over 60 countries participated in our virtual sessions and connected through our HA CONNECT mobile app!
Brainy Camps and Camp Headstrong are Back with a Twist This Year!
Camp Head Strong, the summer camp for children and teens living with hydrocephalus, will be going virtual for the first time ever!
A Conversation with Aesculap About New M.blue Valve
On May 15th, Aesculap Inc., in partnership with MIETHKE, released a new valve for hydrocephalus patients called the M.blue valve. This week, we spoke with them to learn more about their new valve and what it means for people living with hydrocephalus.
Join Our National Movement to End Hydrocephalus
This year we’re turning our WALK to End Hydrocephalus into a national movement that starts NOW wherever you are! That’s right – whether you go for family walks around your neighborhood, a short jog, or hulahoop in your backyard, help us raise awareness and funds for a cure while exercising your body and mind!