The Hydrocephalus Scoop on Capitol Hill
Believe it or not, the impeachment debate isn’t the only thing happening in Washington, DC! Here’s a quick rundown.
Changing Lives This Giving Tuesday
Giving Tuesday is on December 3rd this year! We hope you’ll stand with us this year and support the Hydrocephalus Association!
St. Louis Event Celebrates 10th Anniversary of HA’s Research Initiative
Families and researchers from across the country came together on Nov. 3 to celebrate the 10th Anniversary of HA’s Research Initiative. The event, held in St. Louis, MO, highlighted the successes of our research investments and honored the trailblazers who started it all.
NYC Grandmother Fights for a Cure for Leading Cause of Brain Surgery in Children
Will take part in the NYC WALK to End Hydrocephalus on Nov. 9 Dreame Saliyah Monplaisir was just 3 months old when she had her first brain surgery to treat her hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. As is often the case, Dreame’s family […]
Caucus Briefing Educates Members of Congress About Hydrocephalus
Over 60 people attended the Hydrocephalus Caucus Briefing on 10/17. The briefing, hosted by the Hydrocephalus Association and PHF, explored how hydrocephalus impacts patients & how Congress can help.
Medical Experts and Patients Educate New Jersey Families About Brain Disorder That Affects Over 1 Million Americans
Dementia, gait disturbance, and incontinence. Typically, when older adults have these symptoms, they’re told they have diseases like Alzheimer’s, Parkinson’s or a host of other illnesses, when in many cases they are suffering from a treatable condition called Normal Pressure Hydrocephalus (NPH). Join the Hydrocephalus Association at its first Hydrocephalus Education Day in Neptune, NJ on Nov. 9th, where medical experts and patients will discuss NPH symptoms, and share information about other forms of hydrocephalus.
Announcing our 2019 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2019 Hydrocephalus Association Scholarship Recipients.
URGENT: Contact your Member of Congress
We need your help getting members of Congress and their staff to a Congressional Hydrocephalus Caucus briefing on October 17th. Please take a moment to call & e-mail their offices to ask them to attend. You can learn more about the briefing by clicking here. This shouldn’t take more than 10 minutes and is very […]
Hydrocephalus Awareness Month Resolution Introduced in Congress
The bipartisan resolution was introduced by Congressmen Chris Smith and Lloyd Doggett Today, Representatives Chris Smith (R-NJ) and Lloyd Doggett (D-TX) joined forces to introduce H. Res. 605, a bipartisan resolution supporting Hydrocephalus Awareness Month. As co-chairs of the Congressional Hydrocephalus Caucus, Doggett and Smith are leading efforts to raise awareness of the condition on […]
Local Families Fight for a Cure for Little-Known Brain Disorder
Will take part in the Orange County WALK to End Hydrocephalus Oct. 12 in Huntington Beach Adrianna Garibaldo’s son Aiden was just 8 weeks old when he had his first brain surgery to treat his hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Like many families […]
DC Families Unite to Find a Cure for Life-Threatening Brain Disorder
Will take part in the DC WALK to End Hydrocephalus Sept. 28 at the Lincoln Memorial What if brain surgery was the only way to stay alive? For children like Khoy Blasi-Diggs, Jr, it is. Khoy has hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Hoping […]
Two Sons, Two Brain Disorders, 18 Brain Surgeries
Houston family hopes to raise money for a cure at the WALK to End Hydrocephalus on Sept. 21 at Buffalo Bayou Park Brothers Ryder and Kai Bruen not only share the same birthday, they also share the same brain disorder. The 13-year-old twins have hydrocephalus, a life-threatening neurological condition that can only be treated with […]