Local Families Fight for a Cure for Little-Known Brain Disorder
Will take part in the Orange County WALK to End Hydrocephalus Oct. 12 in Huntington Beach Adrianna Garibaldo’s son Aiden was just 8 weeks old when he had his first brain surgery to treat his hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Like many families […]
DC Families Unite to Find a Cure for Life-Threatening Brain Disorder
Will take part in the DC WALK to End Hydrocephalus Sept. 28 at the Lincoln Memorial What if brain surgery was the only way to stay alive? For children like Khoy Blasi-Diggs, Jr, it is. Khoy has hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Hoping […]
Two Sons, Two Brain Disorders, 18 Brain Surgeries
Houston family hopes to raise money for a cure at the WALK to End Hydrocephalus on Sept. 21 at Buffalo Bayou Park Brothers Ryder and Kai Bruen not only share the same birthday, they also share the same brain disorder. The 13-year-old twins have hydrocephalus, a life-threatening neurological condition that can only be treated with […]
HydroWarrior Makes His Car Racing Dreams a Reality
Mark Dingman has been a NASCAR fan for as long as he can remember. But he never thought he would ever get to drive a race car. That all changed when he discovered the SimPossible Racing League.
Sevi: A Story of Hope and Brotherly Love
When Sevi was first diagnosed with hydrocephalus, Tiana and Pete Chavez remember feeling terrified. But their fear quickly turned into a desire to help other children in need.
Families Across the U.S. Walk to End Hydrocephalus
Walks Raise Funds to Find a Cure for Chronic Brain Disorder Today there are over 1 million Americans living with hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. In September through November, individuals and families impacted by this condition will come together at a WALK to […]
Hydro Mom Organizes Successful Golf Fundraiser for HA
On July 20, golfers in South Florida came together for an important cause – to raise funds for a cure for hydrocephalus.
Conan O’Brien to Headline Comedy Show on April 11 to Raise Funds for Incurable Brain Condition
Emmy Award-winning comedian and host Conan O’Brien will headline “In Stitches, a Night of Laughs,” an evening of comedy and cocktails to raise awareness and funds to find a cure for hydrocephalus, a chronic brain condition that affects 1 million Americans. “In Stitches, a Night of Laughs” will take place Thursday, April 11 at 6:30 […]
Chicago Family Walks to Find a Cure for Daughter’s Brain Disorder
Will join hundreds of families at Soldier Field for the Chicago WALK to End Hydrocephalus on Aug. 17 When your child lives with a chronic brain condition that has no cure, life can seem daunting at times. Candace Corner and husband Johnny Miller, whose daughter Mari June was diagnosed with hydrocephalus at three weeks old, […]
The Hydrocephalus Scoop on Capitol Hill
Hydrocephalus-related policy issues have been on the move in Congress. We thought we’d give you a quick rundown on what’s going on and how it impacts our community.
HA Volunteer Educates Senior Citizens About NPH
NPH continues to be relatively unknown among the general public and even in the medical community. In April, Trish Bogucki, a longtime HA volunteer, led a presentation on NPH and cognitive therapy for senior citizens in Midland Park, NJ.
Technology Update: Moving Towards a Self-Sensing Shunt
We recently submitted a letter of support for Senseer’s grant application to the National Science Foundation to develop their “smart shunt”. Learn about this device and what it could mean for patients.