Search results for: Hydrocephalus education and support
Celebrating the 40th Anniversary of the Hydrocephalus Association
The year 2023 marks the 40th Anniversary of the Hydrocephalus Association (HA). Throughout the year, we will honor our legacy with all of our community by celebrating our milestones and exploring what has been accomplished over the past four decades.
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Announcing our 2022 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2022 Hydrocephalus Association Scholarship Recipients.
Read MoreWALK to End Hydrocephalus® Participant Privacy Policy
This privacy policy governs your use of the software application WALK to End Hydrocephalus® for mobile devices.
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Statement by Hydrocephalus Association President and CEO Diana Gray on Washington Post Article About Chloe Kral
The Washington Post recently published a story about Chloe Kral, who suffered for years and was told she had severe mental illness before discovering later that she had hydrocephalus. Here’s a statement from HA’s President & CEO Diana Gray about Chloe’s remarkable story.
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2021 WALK to End Hydrocephalus Raises over $1.6 Million
Our WALK to End Hydrocephalus program had a successful year, raising over $1.6 million for HA’s research, support, education and advocacy efforts.
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Announcing our 2021 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2021 Hydrocephalus Association Scholarship Recipients.
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The Hydrocephalus Scoop on Capital Hill for August 2020
Things in Washington, DC are both quiet and chaotic at the same time. Apparently, it’s a thing with the political world. Here’s the scoop on what’s happening on hydrocephalus issues.
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New Ask the Expert Video Series for Adults Living with Hydrocephalus
Check out our latest Ask the Expert Video Series developed specifically for adults living with hydrocephalus. The series answers some of the most common questions we receive to our support line.
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WALKs to End Hydrocephalus Help Raise Nearly $2 Million
The 2018 WALK to End Hydrocephalus season is in the books! And what a year it was. Thanks to the Hydrocephalus Association’s wonderful volunteers, 43 WALKS were held across the U.S., with more than 14,000 participants representing over 1,200 teams.
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The Vision to End Hydrocephalus after a Brain Bleed
The Hydrocephalus Association’s annual Vision Dinner highlights the advances in research that aims to prevent or minimize the development of hydrocephalus after a brain bleed.
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Student Spotlight: Jamie Wright Advocates For Hydrocephalus Awareness
Imagine having a neurological condition that most people have never heard of. Jamie Wright is on a mission to educate others about hydrocephalus.
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Hydrocephalus Shunt featured on Nike’s Air Max Zero
A hydrocephalus patient of Doernbecher Children’s Hospital designs a hydrocephalus shoe in the annual Doernbecher Freestyle event with Nike.
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Hydrocephalus Mom Fights to Change Pennsylvania Truancy Law
The Mantheiy family is fighting to change truancy law in Pennsylvania for chronically ill children, like their son who has hydrocephalus.
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Hydrocephalus Receives National Attention
TLC aired a feature piece on hydrocephalus that featured three families – Roona in India, Lyndos in Uganda, and Parker in Oklahoma.
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Making the Hydrocephalus Association a Part of My Legacy
At the age of 25, Haylea is thinking about how she will make a lasting impact in the hydrocephalus community through her volunteerism and estate planning.
Read MoreLooking Back…Moving Forward: Mentoring the Future Voice of Hydrocephalus
Jennifer Bechard, the Hydrocephalus Association’s Teens Take Charge mentor and Education and Support Manager, shares her views on growing up with hydrocephalus and mentoring the future voice of hydrocephalus through her work with the teen and young adult community.
Read MoreLooking Back…Moving Forward: Building Bridges Between Pediatric and Adult Hydrocephalus
As the Hydrocephalus Association continues our 30th year anniversary commemoration, Dr. Marion “Jack” Walker, pediatric neurosurgeon, Primary Children’s Medical Center, Salt Lake City, Utah, reflects on his 37 years of service to the hydrocephalus community.
Read MoreLooking Back…Moving Forward: Hydrocephalus Awareness, New York Style!
The Hydrocephalus Association continues its 30th anniversary history series with an interview with our Long Island WALK Chair, Mia Padron. Mia is determined to raise awareness for hydrocephalus, and it doesn’t stop with leading a WALK. New York celebrates Hydrocephalus Awareness Month because of this woman.
Read MoreLooking Back…Moving Forward: Fresno Says YES to Our Hydrocephalus WALK
As part of our interview series commemorating our 30th anniversary, this week Randi Corey, our National Director of Special Events and Volunteer Support, sits down with Cheryl Merrell, our Hydrocephalus Association WALK Chair in Fresno, California, to talk about volunteering for HA, starting and chairing a HA WALK, and other thoughts about the organization.
Read MoreHydrocephalus Association at 30
In 1983, a small group of parents of children with hydrocephalus living in the San Francisco Bay area came together seeking community and support. Thirty years ago could this group of determined and committed individuals have imagined that the Hydrocephalus Association would become the nation’s largest and most widely respected advocacy group dedicated to hydrocephalus?
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