Search results for: Hydrocephalus education and support
Hydrocephalus Shunt featured on Nike’s Air Max Zero
A hydrocephalus patient of Doernbecher Children’s Hospital designs a hydrocephalus shoe in the annual Doernbecher Freestyle event with Nike.
Read MoreHydrocephalus Mom Fights to Change Pennsylvania Truancy Law
The Mantheiy family is fighting to change truancy law in Pennsylvania for chronically ill children, like their son who has hydrocephalus.
Read MoreHydrocephalus Receives National Attention
TLC aired a feature piece on hydrocephalus that featured three families – Roona in India, Lyndos in Uganda, and Parker in Oklahoma.
Read MoreMaking the Hydrocephalus Association a Part of My Legacy
At the age of 25, Haylea is thinking about how she will make a lasting impact in the hydrocephalus community through her volunteerism and estate planning.
Read MoreLooking Back…Moving Forward: Mentoring the Future Voice of Hydrocephalus
Jennifer Bechard, the Hydrocephalus Association’s Teens Take Charge mentor and Education and Support Manager, shares her views on growing up with hydrocephalus and mentoring the future voice of hydrocephalus through her work with the teen and young adult community.
Read MoreLooking Back…Moving Forward: Building Bridges Between Pediatric and Adult Hydrocephalus
As the Hydrocephalus Association continues our 30th year anniversary commemoration, Dr. Marion “Jack” Walker, pediatric neurosurgeon, Primary Children’s Medical Center, Salt Lake City, Utah, reflects on his 37 years of service to the hydrocephalus community.
Read MoreLooking Back…Moving Forward: Hydrocephalus Awareness, New York Style!
The Hydrocephalus Association continues its 30th anniversary history series with an interview with our Long Island WALK Chair, Mia Padron. Mia is determined to raise awareness for hydrocephalus, and it doesn’t stop with leading a WALK. New York celebrates Hydrocephalus Awareness Month because of this woman.
Read MoreLooking Back…Moving Forward: Fresno Says YES to Our Hydrocephalus WALK
As part of our interview series commemorating our 30th anniversary, this week Randi Corey, our National Director of Special Events and Volunteer Support, sits down with Cheryl Merrell, our Hydrocephalus Association WALK Chair in Fresno, California, to talk about volunteering for HA, starting and chairing a HA WALK, and other thoughts about the organization.
Read MoreHydrocephalus Association at 30
In 1983, a small group of parents of children with hydrocephalus living in the San Francisco Bay area came together seeking community and support. Thirty years ago could this group of determined and committed individuals have imagined that the Hydrocephalus Association would become the nation’s largest and most widely respected advocacy group dedicated to hydrocephalus?
Read MoreMaking Life Happen: Living Life with Spina Bifida and Hydrocephalus
Meet Luke Russell, a freshman at the University of Wisconsin-Whitewater who plans to major in marine biology with either a second major or a minor in psychology. He has spina bifida and hydrocephalus.
Read MoreChicago Neurosurgeon Announced as Medical Honoree of the Chicago Hydrocephalus Association WALK
Arthur DiPatri, MD, a neurosurgeon, will be honored at Chicago WALK to End Hydrocephalus.
Read MoreHydrocephalus Mom Fights to Change Pennsylvania Truancy Law
Ashley Mantheiy, who has two sons with hydrocephalus, has worked with State politicians to introduce the Student Medical Leave Act of PA 2016.
Read MoreFamilies Across the U.S. Walk to End Hydrocephalus
Individuals and families impacted by hydrocephalus will come together at a WALK to End Hydrocephalus in 44 cities across the U.S. to raise funds for a cure.
Read MoreCongressman TJ Cox Joins Congressional Hydrocephalus Caucus
Congressman TJ Cox has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus.
Read MoreAnnouncing our 2019 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2019 Hydrocephalus Association Scholarship Recipients.
Read MoreAnnouncing Our 2018 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2018 Hydrocephalus Association Scholarship Recipients.
Read MoreAnnouncing Our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
Read MoreAnnouncing Our 2016 Hydrocephalus Association Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2016 Hydrocephalus Association Scholarship Recipients.
Read MoreAnnouncing 2015 Hydrocephalus Association TTC Scholarship Recipients!
The Hydrocephalus Association (HA) is pleased and honored to announce our 2015 Hydrocephalus Association Teens Take Charge Scholarship Recipients.
Read MoreAnnouncing Our 2015 Hydrocephalus Association Scholarship Recipients!
We are pleased to announce our 2015 Hydrocephalus Association Scholarship Recipients!
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