Statement by Hydrocephalus Association President and CEO Diana Gray on Washington Post Article About Chloe Kral
The Washington Post recently published a story about Chloe Kral, who suffered for years and was told she had severe mental illness before discovering later that she had hydrocephalus. Here’s a statement from HA’s President & CEO Diana Gray about Chloe’s remarkable story.
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AHCRN Awarded $14 Million NINDS Grant to Study Effectiveness of Shunt Treatment for idiopathic Normal Pressure Hydrocephalus
The AHCRN, one of three research networks HA funds, was awarded a $14 million federal grant to study the effectiveness of shunt treatment for NPH.
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Fighting for Hydrocephalus Funding in Congress. October Update
October has been a busy time for Congress, and the Hydrocephalus Association has been hard at work ensuring that we have a seat at the table. We have an exciting new bill introduced and an update on congressional funding for hydrocephalus research.
Read MoreCongressman Mike Levin Joins Congressional Hydrocephalus Caucus
Caucus helps families impacted by a brain condition that has no cure. Rep. Mike Levin (CA-49) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Levin’s support of children and…
Read MoreCongresswoman Cindy Axne Joins Congressional Hydrocephalus Caucus
Caucus helps find solutions for the leading cause of brain surgery in children. Rep. Cindy Axne (IA-3) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Axne’s support of families…
Read MoreCongressman Lloyd Doggett Recognizes September as Hydrocephalus Awareness Month
Raises awareness of the leading cause of brain surgery in children. There are over 1 million Americans living with hydrocephalus, a chronic neurological condition that has no cure and can…
Read MoreLocal Mom on a Mission to Find a Cure for Son’s Brain Disorder
Will take part in Cincinnati WALK to End Hydrocephalus on Oct. 3rd Chase Parker Lorenzo was just 9 months old when he was diagnosed with hydrocephalus, a life-threatening neurological condition…
Read MoreMassachusetts Governor Names September Hydrocephalus Awareness Month
Hydrocephalus is the leading cause of brain surgery in children. Every 15 minutes, a brain surgery is performed to treat hydrocephalus, a life-threatening brain disorder that affects over 1 million…
Read MoreCongressmen Lloyd Doggett and Chris Smith Join Forces to Raise Awareness About Hydrocephalus
Representatives Lloyd Doggett (D-TX) and Chris Smith (R-NJ) have joined forces to champion two critical Hydrocephalus Association priorities for the 117th Congress. Specifically, they’ve introduced H. Res. 20, a bipartisan…
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Great.com Interviews Hydrocephalus Association About the Promising Search for New Treatments
Spirit Rosenberg from Great.com interviewed the Hydrocephalus Association as part of their ‘Great.com Talks With…’ podcast. This series is an antidote to negative news stories that aims to shed light…
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The Hydrocephalus Scoop on Capitol Hill December 2020
October and November have been a super busy time for all three branches of government (Executive, Legislative and Judicial). Here’s our latest summary of what’s been happening on Capitol Hill.
Read MoreTwo Sisters, Two Brain Disorders, 36 Brain Surgeries
St. Louis family fights for a cure for leading cause of brain surgery in children Sisters Stephanie (Buffa) Vogt and Sarah Buffa have the same color hair, the same love…
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The Hydrocephalus Scoop on Capitol Hill for September-October 2020
In addition to celebrating Hydrocephalus Awareness month, the Hydrocephalus Association has been tracking the ins and outs of what’s happening on Capitol Hill. Read our latest advocacy update!
Read MoreLocal Mom Living with Brain Disorder Fights for a Cure
Hopes to raise funds for a cure at the New Orleans WALK to End Hydrocephalus Oct. 3 Imagine living your entire life with headaches and then finding out that they…
Read MoreCongressman Josh Gottheimer Joins Congressional Pediatric and Adult Hydrocephalus Caucus
Hydrocephalus is the leading cause of brain surgery in children. Rep. Josh Gottheimer (NJ-5) has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus. The Hydrocephalus Association applauds Rep. Josh Gottheimer’s support of the over one…
Read MoreCongress Recognizes September as Hydrocephalus Awareness Month
Aims to raise awareness of the impact of hydrocephalus and COVID-19 especially in older adults. What if brain surgery was the only way to stay alive? For the over 1…
Read MoreBaltimore Mom on a Mission to Find a Cure for Son’s Brain Disorder
Jacob Heston was just four weeks old when he was diagnosed with hydrocephalus, a life-threatening neurological condition that has no cure and can only be treated with brain surgery. Now…
Read MoreBergen County Board of Commissioners Issues Resolution Naming September Hydrocephalus Awareness Month
The Bergen County Board of Commissioners partners with the Hydrocephalus Association to raise awareness about hydrocephalus.
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Local Mom on a Mission to Find a Cure for Son’s Brain Disorder
Will organize new WALK to End Hydrocephalus in Decatur Lucky McMahon was just one day old when he had his first brain surgery to treat his hydrocephalus, a life-threatening neurological…
Read MoreCongressman TJ Cox Joins Congressional Hydrocephalus Caucus
Congressman TJ Cox has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus.
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