Press Releases

Harnessing the Power of Artificial Intelligence and Machine Learning to Innovate Treatments for Hydrocephalus

October 16, 2023

  [Dallas, TX, October 4, 2023] — The Hydrocephalus Association (HA) and the Rudi Schulte…

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The Hydrocephalus Association Earns a Prestigious Four-Star Rating from Charity Navigator

September 29, 2023

[Bethesda, MD, September 29, 2023] – The Hydrocephalus Association is proud to announce that our…

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Danny Bonaduce’s “Mystery Illness” Explained

June 6, 2023

  (June 6, 2023) – Danny Bonaduce’s recent battle with a “mystery illness” and lack of…

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Zach Roloff Emergency Brain Surgery

February 13, 2023

(February 13, 2023) – A few days ago, Zach Roloff, one of the stars of…

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The Phoenix Community Rallies for Hydrocephalus

December 7, 2022

President and CEO of Anuncia Medical, Inc., will join hundreds of families and medical professionals at the Phoenix WALK to End Hydrocephalus as they rally to raise awareness and critical funds for hydrocephalus.

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The Burlington Community Rallies for Hydrocephalus With the Hydrowarrior Ride

September 6, 2022

“We are so excited to be hosting this charity ride and benefit for the fifth year,” said Cathi Roberts, local event lead whose 19 year old daughter has hydrocephalus, “The event has been doubling in size each year. Last year we raised approximately $15k for critical hydroecephalus research and awareness.”

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A Father’s Love Knows No Bounds

July 14, 2022

The Marquez Family, and other families, will be attending the National Conference on Hydrocephalus July 14-16 at the Austin Marriott Downtown and are available for interviews. They are also available for phone interviews at any time before or after conference.

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Statement by Hydrocephalus Association President and CEO Diana Gray on Washington Post Article About Chloe Kral

February 15, 2022

The Washington Post recently published a story about Chloe Kral, who suffered for years and was told she had severe mental illness before discovering later that she had hydrocephalus. Here’s a statement from HA’s President & CEO Diana Gray about Chloe’s remarkable story.

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AHCRN Awarded $14 Million NINDS Grant to Study Effectiveness of Shunt Treatment for idiopathic Normal Pressure Hydrocephalus

December 8, 2021

The AHCRN, one of three research networks HA funds, was awarded a $14 million federal grant to study the effectiveness of shunt treatment for NPH.

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Fighting for Hydrocephalus Funding in Congress. October Update

November 8, 2021

October has been a busy time for Congress, and the Hydrocephalus Association has been hard at work ensuring that we have a seat at the table. We have an exciting new bill introduced and an update on congressional funding for hydrocephalus research. 

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Congressman Mike Levin Joins Congressional Hydrocephalus Caucus

October 20, 2021

Caucus helps families impacted by a brain condition that has no cure. Rep. Mike Levin (CA-49) has joined…

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Congresswoman Cindy Axne Joins Congressional Hydrocephalus Caucus

October 20, 2021

Caucus helps find solutions for the leading cause of brain surgery in children. Rep. Cindy Axne (IA-3) has…

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Congressman Lloyd Doggett Recognizes September as Hydrocephalus Awareness Month

September 29, 2021

Raises awareness of the leading cause of brain surgery in children. There are over 1…

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Local Mom on a Mission to Find a Cure for Son’s Brain Disorder

September 28, 2021

Will take part in Cincinnati WALK to End Hydrocephalus on Oct. 3rd Chase Parker Lorenzo…

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Massachusetts Governor Names September Hydrocephalus Awareness Month

September 14, 2021

Hydrocephalus is the leading cause of brain surgery in children. Every 15 minutes, a brain…

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Congressmen Lloyd Doggett and Chris Smith Join Forces to Raise Awareness About Hydrocephalus

April 14, 2021

Representatives Lloyd Doggett (D-TX) and Chris Smith (R-NJ) have joined forces to champion two critical…

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The Hydrocephalus Scoop on Capitol Hill December 2020

December 17, 2020

October and November have been a super busy time for all three branches of government (Executive, Legislative and Judicial). Here’s our latest summary of what’s been happening on Capitol Hill.

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Two Sisters, Two Brain Disorders, 36 Brain Surgeries

October 14, 2020

St. Louis family fights for a cure for leading cause of brain surgery in children…

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The Hydrocephalus Scoop on Capitol Hill for September-October 2020

October 6, 2020

In addition to celebrating Hydrocephalus Awareness month, the Hydrocephalus Association has been tracking the ins and outs of what’s happening on Capitol Hill. Read our latest advocacy update!

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Local Mom Living with Brain Disorder Fights for a Cure

September 30, 2020

Hopes to raise funds for a cure at the New Orleans WALK to End Hydrocephalus…

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