Press Releases
Congressman Josh Gottheimer Joins Congressional Pediatric and Adult Hydrocephalus Caucus
Hydrocephalus is the leading cause of brain surgery in children. Rep. Josh Gottheimer (NJ-5) has joined the bipartisan…
Read MoreCongress Recognizes September as Hydrocephalus Awareness Month
Aims to raise awareness of the impact of hydrocephalus and COVID-19 especially in older adults.…
Read MoreBaltimore Mom on a Mission to Find a Cure for Son’s Brain Disorder
Jacob Heston was just four weeks old when he was diagnosed with hydrocephalus, a life-threatening…
Read MoreBergen County Board of Commissioners Issues Resolution Naming September Hydrocephalus Awareness Month
The Bergen County Board of Commissioners partners with the Hydrocephalus Association to raise awareness about hydrocephalus.
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Local Mom on a Mission to Find a Cure for Son’s Brain Disorder
Will organize new WALK to End Hydrocephalus in Decatur Lucky McMahon was just one day…
Read MoreCongressman TJ Cox Joins Congressional Hydrocephalus Caucus
Congressman TJ Cox has joined the bipartisan Congressional Pediatric and Adult Hydrocephalus Caucus.
Read MoreNYC Grandmother Fights for a Cure for Leading Cause of Brain Surgery in Children
NYC grandmother Tammara Tillman is on a mission to raise awareness and find a cure for hydrocephalus by taking part in the NYC WALK to End Hydrocephalus.
Read MoreMedical Experts and Patients to Educate New Jersey Families About Brain Disorder That Affects Over 1 Million Americans
Dementia, gait disturbance, and incontinence. Typically, when older adults have these symptoms, they’re told they…
Read MoreLocal Families Fight for a Cure for Little-Known Brain Disorder
Will take part in the Orange County WALK to End Hydrocephalus Oct. 12 in Huntington…
Read MoreHydrocephalus Awareness Month Resolution Introduced in Congress
Hydrocephalus Awareness Month resolution introduced in Congress by Representatives Chris Smith (R-NJ) and Lloyd Doggett (D-TX).
Read MoreTwo Sons, Two Brain Disorders, 18 Brain Surgeries
Houston family hopes to raise money for a cure at the WALK to End Hydrocephalus…
Read MoreFamilies Across the U.S. Walk to End Hydrocephalus
Individuals and families impacted by hydrocephalus will come together at a WALK to End Hydrocephalus in 44 cities across the U.S. to raise funds for a cure.
Read MoreChicago Family Walks to Find a Cure for Daughter’s Brain Disorder
Will join hundreds of families at Soldier Field for the Chicago WALK to End Hydrocephalus…
Read MoreConan O’Brien to Headline Comedy Show on April 11 to Raise Funds for Incurable Brain Condition
Emmy Award-winning comedian and host Conan O’Brien will headline “In Stitches, a Night of Laughs,”…
Read MoreTampa Family Walks to Find a Cure for Son’s Incurable Brain Disorder
Will join hundreds of families at Elva Rouse Park for the St. Petersburg/Tampa Bay WALK…
Read MoreRacing for a Cure! NYC Dad Builds Race Car to Help Find a Cure for Son’s Incurable Brain Disease
“Dean the Machine” race car will raise awareness for hydrocephalus, which affects 1 million Americans.
Read MoreColumbia Families Unite to Find a Cure for the Leading Cause of Brain Surgery in Children
Will take part in the Columbia WALK to End Hydrocephalus on Sept. 29 Wyatt Jeffrey…
Read MoreCongress Declares September Hydrocephalus Awareness Month
Initiative aims to raise awareness of an incurable brain disorder that affects 1 million Americans…
Read MoreLA Kings, Little Women: LA Star Terra Jole, and other Celebrities Unite for 5K WALK/Run to Find a Cure for Hydrocephalus
Los Angeles WALK to End Hydrocephalus will take place Sept. 8 at Redondo Beach Terra…
Read MoreHydrocephalus Association Says #NOMOREBS, Brain Surgery Should Not Be the Only Treatment Option for 1 Million Americans Living with Hydrocephalus
Imagine being 19 months old and already having had 10 brain surgeries or 21 years…
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