Press Releases

Hydrocephalus Association National Conference Offers Hope and Connections for 1 Million Americans Living with Incurable Brain Disease

June 22, 2018

More than 600 patients and families impacted by hydrocephalus, a chronic neurological condition for which…

Read More

New White Paper Identifies Key Areas for Future Research to Help Reduce Posthemorrhagic Hydrocephalus

April 3, 2018

A new white paper identifies important areas for research and intervention to help reduce the…

Read More

HA President and CEO Diana Gray Elected to National Health Council Board

March 30, 2018

Diana Gray, President and CEO of the Hydrocephalus Association (HA), was recently elected to the National Health Council’s Board of Directors.

Read More

Tracy Morgan Brings Comedy to L.A. for “In Stitches: A Night of Laughs” on April 27

March 29, 2018

Actor and comedian Tracy Morgan will headline “In Stitches, a Night of Laughs,” an evening of comedy and cocktails to raise awareness and funds to find a cure for hydrocephalus.

Read More

Twenty-nine Cities and States Join Congress in Declaring September Hydrocephalus Awareness Month

September 1, 2017

Twenty-nine cities and states have joined the United States Congress in proclaiming September as Hydrocephalus Awareness Month.

Read More

Win Win Relationship for the Lookouts and Chattanoogans with Brain Condition

July 27, 2017

The Hydrocephalus Association and the Chattanooga Lookouts have built a winning team over the last 3 years, raising awareness about hydrocephalus.

Read More

Community Living with Brain Disorder Says NO MORE BS

July 20, 2017

The Hydrocephalus Association launches #NOMOREBS campaign to highlight the lack of  treatment options for the 1 million Americans living with hydrocephalus.

Read More

Olympic Gymnast Raises Hydrocephalus Awareness

March 26, 2017

Olympic Gold Medalist Laurie Hernandez Visits Local Pelham Gymnastics Center at event benefiting Legacy Gymnastics and the Hydrocephalus Association.

Read More

World Birth Defects Day: Global Alliance calls for better prevention, care and research for Neural Tube Defects (NTDs) and Hydrocephalus

March 3, 2017

The PUSH! Global Alliance joins forces with over 70 participating organizations in promoting and increasing…

Read More

Seattle Neurologist Honored for 18 Years of Service to Patients with Debilitating Brain Condition

October 14, 2016

Dr. Michael A. Williams received the Leadership Award by the Hydrocephalus Association to honor his career dedicated to caring for patients with hydrocephalus.

Read More

Families Unite with Scientists to Prevent Leading Cause of Brain Surgery in Children

September 28, 2016

The Hydrocephalus Association’s annual Vision Dinner will serve as the catalyst for a focused research…

Read More

Hydrocephalus Mom Fights to Change Pennsylvania Truancy Law

September 23, 2016

Ashley Mantheiy, who has two sons with hydrocephalus, has worked with State politicians to introduce the Student Medical Leave Act of PA 2016.

Read More

Hydrocephalus Association Converges on Capitol Hill for Rally for Medical Research Hill Day to Advocate for Increased Funding for the National Institutes of Health (NIH)

September 21, 2016

The Hydrocephalus Association joins more than 300 organizations to ask Congress to provide robust, sustained, and predictable budget increases for the NIH

Read More

Sixteen States Join Congress in Declaring September Hydrocephalus Awareness Month

September 1, 2016

Sixteen states joined Congress in declaring September as Hydrocephalus Awareness Month.

Read More

Chicago Neurosurgeon Announced as Medical Honoree of the Chicago Hydrocephalus Association WALK

August 24, 2016

Arthur DiPatri, MD, a neurosurgeon, will be honored at Chicago WALK to End Hydrocephalus.

Read More

Seattle area-based Cider Company Partners with National Patient Advocacy Organization to Raise Awareness for Incurable Brain Condition

March 28, 2016

Locust Cider founder, Jason Spears, announces a partnership with the Hydrocephalus Association to raise awareness and funds for education and research.

Read More

OpEd: Term ‘Water Head’ Causes Hydrocephalus Community to Take Notice

February 2, 2016

On January 23rd, during the Weekend Update segment on NBC’s Saturday Night Live, Michael Che used the terms “window-licking water heads” to describe followers of Donald Trump. It caused our hydrocephalus community to take notice.

Read More

Hydrocephalus Advocate Joins Scientific Peer Review of Research Applications for the Department of Defense Peer Reviewed Medical Research Program

January 21, 2016

Peer review advocate Barrett O’Connor participated in the evaluation of research applications submitted to the PRMRP sponsored by the Department of Defense.

Read More

Health System Takes Steps to Educate Medical Professionals on Often Misdiagnosed Brain Condition

January 13, 2016

The Greenville Health System (GHS) Neurological Institute will host a symposium on normal pressure hydrocephalus (NPH).

Read More

Health System Takes Steps to Educate Medical Professionals on Often Misdiagnosed Brain Condition

January 13, 2016

The Greenville Health System hosts a symposium on Normal Pressure Hydrocephalus with the support of…

Read More