Announcement About Anuncia ReFlowTM System Mini

By Natalia Martinez Duncan / June 15, 2021

Earlier this year, Anuncia Inc., a medical device company focused on the development of treatment devices for hydrocephalus and other cerebrospinal fluid (CSF) disorders, announced that the ReFlowTM System Mini received the U.S Food and Drug Administration (FDA) Breakthrough Device Designation. The ReFlowTM System Mini is the next generation version of the commercial ReFlowTM Ventricular System.

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In the NICU: Preparing Families for Life with Hydrocephalus

By Natalia Martinez Duncan / May 25, 2021

A recent study explored how neonatal intensive care units (NICUs) can better prepare families that receive a diagnosis of posthemorrhagic hydrocephalus  of prematurity (PHHP).

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Innovator Award Series: Get to Know Dr. Aditya S. Pandey

By Natalia Martinez Duncan / April 5, 2021

In this installment of our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Aditya S. Pandey, one of four scientists who received a 2020 Innovator Award. Dr. Pandey’s team is testing the use of acetazolamide (Diamox) directly into the ventricles to determine if it can prevent hydrocephalus.

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Technology Update: Neurallys developing Bluetooth enabled ICP monitor

By Natalia Martinez Duncan / February 17, 2021

French startup Neurallys is developing an implantable intracranial pressure (ICP) monitor for hydrocephalus. The device continuously measures, records and sends ICP data to a patient’s smartphone via a Bluetooth connection.

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2020 Innovator Award Series: Get to Know Dr. Stavros Taraviras

By Natalia Martinez Duncan / February 8, 2021

Learn about Dr. Stavros Taraviras, one of four scientists who received a Hydrocephalus Association 2020 Innovator Award. Dr. Taraviras is working to turn scar tissue back into ependymal cells as a novel therapeutic strategy for hydrocephalus.

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The Use of Lumboperitoneal Shunts in iNPH Patients

By Natalia Martinez Duncan / December 15, 2020

In the United States, the standard treatment for idiopathic Normal Pressure Hydrocephalus (iNPH) patients is a ventriculoperitoneal shunt (VPS). But a new study explores the effectiveness of lumboperitoneal shunts (LPS), which have also been shown to improve iNPH symptoms and are widely used in Japan.

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Study Explores Quality of Life of Children with Hydrocephalus and Caregivers

By Natalia Martinez Duncan / September 2, 2020

A new study published in the Journal of Neurosurgery: Pediatrics assessed quality of life and mental wellbeing of both children with hydrocephalus and their caregivers.

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Get to Know Dr. Engin Deniz: HA 2019 Innovator Award Grantee

By Natalia Martinez Duncan / July 27, 2020

For our Meet the Innovator Award Grantees Blog Series, we interviewed Dr. Engin Deniz, one of four scientists who received a 2019 Innovator Award. Through his research, he hopes to determine how cilia, small hair like structures that move CSF, contribute to post-traumatic hydrocephalus.

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Individuals Diagnosed with Idiopathic Normal Pressure Hydrocephalus Show Improved Quality of Life after Shunting

By Natalia Martinez Duncan / May 18, 2020

A new study found that shunting improved quality of life for people living with Idiopathic Normal Pressure Hydrocephalus (iNPH).

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Get to Know Dr. Brandon Miller: HA 2019 Innovator Award Grantee

By Natalia Martinez Duncan / February 26, 2020

In the second installment of our Meet the Innovator Awardees Blog Series, we interviewed Dr. Brandon A. Miller, one of four scientists who received an Innovator Award grant.

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Get to Know Dr. Bernadette Holdener: HA 2019 Innovator Award Grantee

By Natalia Martinez Duncan / February 10, 2020

In our first installment of our Meet the Innovator Awardees Blog Series, we interview Dr. Bernadette Holdener, one of four scientists who received a Hydrocephalus Association 2019 Innovator Award.

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Add Your Voice to the My PaTH Story Booth Project

By Natalia Martinez Duncan / February 4, 2020

Add your hydrocephalus story to the MyPaTH Story Booth Project to help researchers better understand the hydrocephalus patient experience.

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Four Scientists Awarded HA Grants to Deepen Our Understanding about Hydrocephalus

By Natalia Martinez Duncan / January 27, 2020

There is a lot we do not know about how hydrocephalus develops and how to best treat the condition across our many communities. Our 2019 Innovator Award recipients are looking to change that.

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St. Louis Event Celebrates 10th Anniversary of HA’s Research Initiative

By Natalia Martinez Duncan / November 12, 2019

Families and researchers from across the country came together on Nov. 3 to celebrate the 10th Anniversary of HA’s Research Initiative. The event, held in St. Louis, MO, highlighted the successes of our research investments and honored the trailblazers who started it all.

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ETV-CPC for the treatment of infants with hydrocephalus: Predicting Success

By Ines Schlegel / July 2, 2019

The Hydrocephalus Clinical Research Network (HCRN) conducted a study to determine which babies under two years old with hydrocephalus have the best chance of success with an ETV-CPC procedure. In her blog, Dr. Jenna Koschnitzky, National Director of Research Programs, explains why the findings of this study are important when determining if a baby under two years old should receive a shunt or undergo the ETV-CPC procedure.

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New Clinical Trial Aims to Determine Effectiveness of Shunting for iNPH Patients

By Natalia Martinez Duncan / July 2, 2019

Patients diagnosed with idiopathic Normal Pressure Hydrocephalus (iNPH) are typically treated by having a shunt placed surgically. A new clinical trial will determine whether or not shunts are an effective form of treatment for iNPH patients.

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You spoke! We wrote!

By Ines Schlegel / February 21, 2019

In October 2017, 82 individuals responded to a question we posed on social media about how hydrocephalus impacts their daily life. Researchers at the University of Pittsburgh Medical Center analyzed their responses in a new paper.

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Three Scientists Awarded HA Grants for Their Bold and Innovative Work

By Natalia Martinez Duncan / February 5, 2019

What if you could prevent or stop the development of hydrocephalus after a brain bleed or develop a shunt that doesn’t get clogged? That’s what the 2018 HA Innovator Award grantees are hoping to do through their research projects.

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Does the size of an Endoscopic Third Ventriculostomy (ETV) hole increase over time?

By Ines Schlegel / February 4, 2019

This study is the first to evaluate the size of the ETV hole using MR imaging over a period of time. This research is important because it shows us how useful MR imaging can be to neurosurgeons who want to evaluate an ETV.

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HA-Funded Researchers Awarded $2.3 Million Grant from the Department of Defense

By Natalia Martinez Duncan / January 29, 2019

HA-funded researchers were awarded funding through the Department of Defense (DoD) Congressionally Directed Medical Research Programs (CDMRP) to study acquired hydrocephalus, with a particular focus on hydrocephalus that develops after a brain injury.

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